Tuesday, 3 August, 2021, began like many other days for busy parents Jody and Jamie Crook, and their children Theo and Sienna – but just hours later the world as the family knew it had turned completely on its head. Sienna, then just 14 months old, suffered a sudden cardiac arrest on the way back from an outing to the park with mum Jody, her brother, godmother Kaylie and her children. Kaylie saved her life by doing CPR until the paramedics arrived, and Sienna went on to be diagnosed with multiple heart conditions – including the inherited and currently incurable Brugada Syndrome. On this episode with Sarah Marsh from the BHF, Jody speaks bravely about coming to terms with the events of that day and the weeks and months that followed, going on to discover that she, Theo and other members of her family also have Brugada, and the emotional journey she and Jamie have been on since. Jody speaks frankly about what it’s like to learn that you have passed on a heart condition to your child, how a family tree can be completely rewritten and how her tireless support of the BHF and the charity’s work has brought her hope and new purpose.


Jody and Sienna’s story is one at the heart of the BHF’s This is Science 2.0 campaign. You can find more information here: https://www.bhf.org.uk/this-is-science/siennas-story


As a charity, the British Heart Foundation depends on the generosity of donors to continue carrying out our lifesaving research. If you too would like to donate, you can do so at bhf.org.uk/donatepod

 

If you've got any questions or concerns about your heart or circulatory health and want to talk with a cardiac nurse on the BHF’s Heart Helpline, go to our website at bhf.org.uk/hearthelpline and you'll find all the contact options there.

 

And if you’ve got your own heart story, or have any thoughts on this episode, we'd love to hear from you on email at [email protected]


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