Happy Tuesday! Today I am chatting to Finn Iles/Violet Tendencies all about her diagnosis of hypermobile ehlers danlos syndrome (hEDS), as well as a variety of comorbidities that come along with this. 

In this episode, Finn explains the journey to get to a diagnosis (which is still continuing!), what on earth EDS is, and how medicinal cannabis has helped her symptoms. Finn also takes us through the amount of advocacy work, research, and time they have had to do in order to get to where they are now, and the plans for the future support.

Please note we do talk about some elements of the NZ health system that may be different now due to the reform, or not applicable to where you are based. 

Connect with Finn over on IG: @violetyouareturningviolet  

And you can find me on IG & Tiktok: @thatssochronic 

I would also really appreciate a rating or a review wherever you’re listening to this pod! That really helps TSC reach more ears around the world - so thank you! 

@thatssochronic | @jessssbrien | #thatssochronic

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Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.




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