Substantial Matters: Life & Science of Parkinson’s
200 episodes - English - Latest episode: 14 days ago - ★★★★ - 111 ratingsHow can people with Parkinson's live a better life today? Join the Parkinson's Foundation as we highlight the treatments and techniques that can help all people affected by Parkinson’s live a better life today, as well as the research that can bring a better tomorrow.
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Episodes
Celebrating Our Parkinson’s Foundation Volunteers
April 02, 2024 11:00 - 22 minutes - 14.4 MBThis month, we are honoring and celebrating our Parkinson’s Foundation volunteers. Every volunteer helps make a difference in the everyday lives of people living with Parkinson’s disease, whether it’s by helping organize a local community walk, serving as a research advocate providing feedback and collaborating with scientists on research studies, or speaking at a panel for a community education program. There are many opportunities to get involved with the Foundation. In this episode, w...
Exploring Carbidopa-Levodopa for Treating Parkinson’s Symptoms
March 05, 2024 12:00 - 31 minutes - 18.6 MBCarbidopa-levodopa is considered the “gold standard treatment” for Parkinson’s disease. Levodopa works to replace levels of dopamine in the brain, thereby alleviating PD symptoms, while Carbidopa works to reduce adverse effects in the rest of the body. Although years have passed since the creation of this treatment, it is still commonly known to be an effective drug for reducing PD symptoms in a majority of people living with Parkinson’s. In this episode, we hear from Dr. Emily Peron, Ph...
Navigating Disparities, Ethics, and Stigma in the Black Parkinson’s Community
February 27, 2024 12:00 - 30 minutes - 17.5 MBBlack and African American people diagnosed with Parkinson’s disease (PD) face disparities in healthcare access and outcomes, potentially leading to decreased access to care, resources, and research opportunities. It is crucial to recognize their unique needs and experiences so that scientists can better understand how PD impacts diverse communities. The Parkinson’s Foundation aims to identify these healthcare disparities to better serve and support the community. In this second episode o...
Community Conversations – Re(building) Trust and Sharing Resources
February 20, 2024 12:00 - 26 minutes - 15.7 MBBlack and African American people diagnosed with Parkinson’s disease (PD) face disparities in healthcare access and outcomes, potentially leading to decreased access to care, resources, and research opportunities. It is crucial to recognize their unique needs and experiences so that scientists can better understand how PD impacts diverse communities. The Parkinson’s Foundation aims to identify these healthcare disparities to better serve and support the community. In this first episode of ...
Reintroducing Our Podcast Moderator
January 09, 2024 12:00 - 20 minutes - 14.1 MBAs we start the new year, we wanted to turn the tables on our podcast host and moderator, Dan Keller. Dan has hosted our Substantial Matters podcast series since it began more than five years ago. In this episode, we share some insight into his background, his experience, and how he came to host this series, starting as a laboratory researcher, to journalism student, to medical journalist and broadcaster. He talks about the rewards of reaching the Parkinson’s community through podcasts, and ...
¡EN ESPAÑOL! Navegar su cuidado en los inicios del diagnóstico
December 12, 2023 12:00 - 22 minutes - 40.8 MBRecibir un diagnóstico de la enfermedad de Parkinson (EP) puede ser una experiencia que cambie su vida, pero hay pasos que puede tomar desde el principio para ayudar a crear y mantener una vida de calidad con la EP. Aprender más acerca de la enfermedad, identificar una red de apoyo y formar un equipo de profesionales de la salud son algunos de los primeros pasos que hay que dar. Aunque pueda estar atravesando una oleada de emociones, no está solo y hay recursos disponibles para ayudarle a v...
¡EN ESPAÑOL! Cuidar de una madre con Parkinson
November 28, 2023 12:00 - 26 minutes - 48.6 MBLos cuidadores y aliados de cuidado brindan un apoyo inestimable a las personas que viven con la enfermedad de Parkinson (EP). Con el tiempo, el papel del cuidador puede tener que ajustarse y adaptarse a medida que avanza la enfermedad. Aunque el cuidado pueda parecer la tarea principal que lo abarca todo, es vital que usted sea capaz de encontrar el tiempo y los recursos necesarios para cuidar de sí mismo, antes de poder cuidar de su ser querido con la EP. Como parte del Mes Nacional de ...
Caregiving Over the Years
November 14, 2023 12:00 - 24 minutes - 12.8 MBParkinson’s disease is a chronic and progressive disease that affects both the person with Parkinson’s and the care partner. Considerations need to be made to deal with the present challenges, while also anticipating future caregiving needs. Patsy Ponder Dalton was the caregiver for her husband, David, since he was diagnosed with Parkinson’s at the age of 44. Even after David’s passing, she is still a highly engaged facilitator for two Parkinson’s support groups in Missouri. In this episo...
Research Series: Getting Involved in Research with Young-Onset PD
October 31, 2023 11:00 - 18 minutes - 10.3 MBEarly-onset, also called Young-onset Parkinson’s disease (YOPD), affects about 4% of the one million people with Parkinson’s disease (PD) in the United States, with a diagnosis before age 50. Although there are many characteristics similar to late-onset PD, there are a few differences such as disease progression, response to medications, and genetic risk factors. Because of the earlier age of onset, YOPD may also differ in how it affects an individual’s social relationships, marriage, parent...
Atypical Parkinsonism Series: Unique Care Needs of PSP, CBD and MSA and Helpful Resources
October 17, 2023 11:00 - 32 minutes - 18.3 MBConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the third of three podcast episodes within our atypical parkinsonism podcast series...
Atypical Parkinsonism Series: Treatment and Interdisciplinary Approach to Care
October 03, 2023 11:00 - 29 minutes - 24.2 MBConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the second of three podcast episodes within our atypical parkinsonism podcast series...
Research Series: Parkinson’s Foundation Expansion of PD GENEration to Puerto Rico and the Dominican Republic
September 19, 2023 11:00 - 21 minutes - 16.7 MBResearchers have discovered several genes that are associated with the risk of developing Parkinson’s disease (PD). To better understand this relationship, the Parkinson’s Foundation is conducting a large population study, PD GENEration: Mapping the Future of Parkinson’s Disease, a national initiative that offers genetic testing and counseling for Parkinson's-related genes at no cost for people with PD. Since different ethnic groups may have differences in their genetic backgrounds, possibly...
Atypical Parkinsonism Series: Overview, Diagnosis and Prevalence
September 05, 2023 11:00 - 32 minutes - 23.4 MBConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD)/corticobasal syndrome (CBS), and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the first of three podcast episodes within our atypi...
Pump Therapy
August 22, 2023 11:00 - 21 minutes - 16 MBTypical treatment of Parkinson’s disease (PD) consists of oral levodopa/carbidopa, along with other oral medications. Although there is no one-size fits all treatment, people with PD may experience more “off” periods, or symptom fluctuations, as the disease progresses. In this case, non-oral treatments, such as pump therapy, may be another option to consider. Examples of currently available pump therapies for Parkinson’s include medication, namely apomorphine, delivered under the skin ...
Research Series: Expanding PD GENEration
August 08, 2023 11:00 - 12 minutes - 7.77 MBVariants of several genes have been identified that raise the risk of developing Parkinson’s disease (PD). PD GENEration: Mapping the Future of Parkinson’s Disease is the Parkinson’s Foundation groundbreaking initiative that seeks to uncover the relationship between genetics and one’s risk for PD. The goal is to eventually help people better manage their disease, facilitate research into better treatments, and potentially, find a cure. The study is now expanding to actively enroll people of ...
¡EN ESPAÑOL! Los efectos del Parkinson sobre el sueño
August 01, 2023 11:00 - 32 minutes - 59.4 MBExisten diversas causas de los problemas del sueño que pueden experimentar las personas con Parkinson. Entre los trastornos del sueño más comunes están la apnea del sueño (asociada normalmente a un ronquido fuerte), el insomnio y el trastorno donde las personas actúan los sueños mientras duermen. También sabemos que los problemas emocionales, que son síntomas no motores del Parkinson, pueden estar ligados a los problemas del sueño. Por ejemplo, si uno tiene depresión o ansiedad, puede ...
The Evolution of the Parkinson’s Foundation Hospital Care Initiative
July 25, 2023 11:00 - 27 minutes - 21.7 MBOf the one million people living with Parkinson’s disease (PD) in the United States, nearly one-third of them will have a hospital encounter each year. When hospitalized, three out of four people with PD will not receive their medications on time, possibly leading to worsening symptoms, medical emergencies, and a significantly increased length of stay, greatly increasing costs to the medical system overall. To address this problem, the Parkinson’s Foundation developed key tools and ...
Sexuality from the Care Partner Perspective
July 11, 2023 11:00 - 26 minutes - 18.9 MBIntimacy is a significant part of any relationship, and sexuality is an important aspect of intimacy. Parkinson’s disease (PD) can present challenges for both intimacy and sexuality, both for the person with PD and for the care partner. The Parkinson’s Foundation Helpline can be a good resource for coping with these issues. In this episode, Anna Moreno, MSW, a Senior Parkinson’s Information Specialist at the Parkinson’s Foundation, highlights some of the more common questions that care part...
How People with PD Can Prepare for Routine Outpatient Procedures
June 27, 2023 11:00 - 27 minutes - 20.5 MBSince routine outpatient procedures may pose special needs and risks for someone with Parkinson’s disease (PD), extra planning is in order for the period before, during, and after the procedure. The procedures may be medical or dental, for example, teeth cleanings, colonoscopy, or magnetic resonance imaging (MRI). Fortunately, the Parkinson’s Foundation has developed a course that highlights key recommendations and strategies to promote optimal care and health outcomes for people wi...
The Link Between Art and Parkinson’s Disease
June 13, 2023 11:00 - 23 minutes - 18.3 MBThere’s a new and greater understanding of the relationship of Parkinson’s disease (PD) and art. Engaging in artistic practices can enhance mood, cognitive function, and enjoyment of life for people with PD. Importantly, how art causes these effects is giving greater insight into the neurobiological basis of how people in general create and respond to art. Central to this insight is the role of the neurotransmitter dopamine. In this episode, Prof. Bas Bloem, Director of the Parkinson’s Foun...
Strategies to Address Apathy and Exercise Motivation
May 30, 2023 11:00 - 17 minutes - 13.2 MBBesides being a movement disorder and affecting other physical functions, such as the digestive system, blood pressure control, and sleep, Parkinson’s disease (PD) can alter cognition, other mental functions, and mood. Apathy can be part of the disease, resulting in a lack of interest, enthusiasm, or motivation. It can result in a vicious cycle, decreasing one’s motivation to exercise and follow medication schedules, which are essential components of managing PD, including mood. In ...
¡EN ESPAÑOL! La hospitalización con la enfermedad de Parkinson
May 16, 2023 11:00 - 22 minutes - 41.7 MBLas investigaciones han encontrado que 3 de cada 4 personas con la enfermedad de Parkinson no reciben medicamentos a tiempo cuando están internadas en el hospital. Cuando esto ocurre, 2 de cada 3 personas experimentarán complicaciones innecesarias. Con visitas hospitalarias más a menudo y una alta sensibilidad a la frecuencia y dosificación de los medicamentos para la enfermedad de Parkinson, las personas con Parkinson enfrentan grandes riesgos en un hospital. En este episodio, h...
Dispelling Myths of Palliative Care
May 02, 2023 11:00 - 15 minutes - 11.6 MBA common misconception is that palliative care implies hospice, when in fact, palliative care can and should be a component of the treatment of any serious disease, including Parkinson’s. The word “palliation” means providing relief from pain and other symptoms, with a goal of improving quality of life. Individuals receiving palliative care also may receive other treatments, with curative intent if available. On the other hand, palliation can be a part of hospice, but in hospice, a person n...
¡EN ESPAÑOL! Opciones quirúrgicas en el tratamiento de la enfermedad de Parkinson
April 25, 2023 11:00 - 21 minutes - 39.6 MBAunque los medicamentos suelen ayudar a minimizar las fluctuaciones motoras de la enfermedad de Parkinson, hay ocasiones en las que la medicación no es suficiente y se plantean opciones de tratamiento avanzadas. Es importante explorar las opciones quirúrgicas con su especialista en la EP si esto es algo que puede considerar. La cirugía a menudo se reserva para aquellos que han optimizado y agotado los medicamentos para el temblor de Parkinson o que experimentan profundas fluctuaciones ...
How Artificial Intelligence Can Detect Parkinson’s from Breathing Patterns
April 18, 2023 11:00 - 20 minutes - 13.2 MBHistorically and even today, Parkinson’s disease (PD) is a clinical diagnosis, wherein a physician observes signs of the disease and an individual reports symptoms. In routine practice, there is no blood test, other biomarker, or machine to make the diagnosis or to track progression of the disease. But given advances in computing power and through computer analysis of massive amounts of data, artificial intelligence (AI) may add a valuable tool to the diagnostic process. In one form of AI, ...
How to Prevent Sudden “Off” Episodes
April 04, 2023 11:00 - 19 minutes - 15.7 MB“Off” episodes can become a troubling aspect of Parkinson’s disease (PD), especially as the disease progresses. These are periods in the day when the effect of levodopa medication wears off, either suddenly or gradually, with a return of motor or non-motor symptoms. The good news is that there are several ways to try to minimize “off” episodes, including medication timing, medication adjustments, and add-on medications. In this podcast episode, Dr. George Kannarkat, a movement disor...
¡EN ESPAÑOL! Cambios en la vista relacionados con el Parkinson
March 21, 2023 11:00 - 18 minutes - 33.7 MBLa visión es uno de los sentidos que tenemos que está conectado directamente con el sistema nervioso central. Cuando hay alguna enfermedad neurológica o algún problema que afecta esta área del cerebro, podemos esperar cambios en la visión. En este episodio, hablamos con el doctor Juan Ramírez-Castañeda, profesor asociado de neurología en la University of Texas at San Antonio y director del programa de la enfermedad de Parkinson y otros trastornos del movimiento, acerca de estos cambios...
Maximizing Resources with The Parkinson’s Foundation Helpline
March 07, 2023 12:00 - 17 minutes - 13.2 MBWith Parkinson’s disease (PD), it’s essential to know where to find a movement disorder neurologist, a physical or occupational therapist, social services to help with daily activities, and agencies that can advise on elder issues. When you don’t know that certain services even exist, looking for them is impossible. This is where the Parkinson’s Foundation Helpline can be an essential resource. Helpline staff have broad knowledge about what services may be appropriate to address certain pro...
Parkinson’s Disease in the Black Community
February 21, 2023 12:00 - 16 minutes - 10.1 MBAn early Parkinson’s diagnosis is the first step to getting Parkinson’s symptoms under control and living well with Parkinson’s. Getting a PD diagnosis is also one of the first obstacles many people in the Black PD community experience. Research has shown racial disparities in the diagnosis and treatment of Parkinson’s – finding that Black people with PD are diagnosed at a later disease stage than white people and are less likely to be diagnosed compared to other racial and ethnic g...
Treating Depression
February 07, 2023 12:00 - 18 minutes - 14.6 MBParkinson’s disease (PD) depression may be a biological part of the disease itself, resulting from PD-related changes in brain chemistry. Untreated depression and other mood disorders can have a greater impact on well-being than even common motor symptoms. Depression affects at least 50 percent of people with PD sometime in the course of their disease, but it is often under-recognized and, therefore, under-treated, even though effective treatments exist, both pharmacologic and nonpharm...
How to Cope with Blood Pressure Fluctuations
January 24, 2023 12:00 - 14 minutes - 11.7 MBParkinson’s disease (PD) affects several automatically regulated bodily functions, such as digestion, bowel activity, sweating, and blood pressure control, together known as autonomic functions. Low blood pressure, or hypotension, is common in PD, and high blood pressure (hypertension) can also occur. They may be a result of the disease itself or be caused by some of the medications to treat it. Hypotension, in particular, can be dangerous, leading to dizziness, fainting, falls, and fracture...
Meet the Researcher: How Pesticides Impact Parkinson’s
January 10, 2023 12:00 - 23 minutes - 18.9 MBResearchers are accumulating evidence about how the environment affects our health and our diseases – both our internal and external environments. A significant part of our internal environment is the gut microbiome, that is, the bacteria, fungi, and viruses that naturally inhabit our intestinal tracts. The external environment is everything around us that we eat, inhale, or come into contact with, including industrial chemicals and pesticides. Studies have shown that people with Parki...
Being There for Your Parent with Parkinson’s
December 27, 2022 12:00 - 18 minutes - 13.9 MBAdult children of a parent with Parkinson’s disease (PD) often want to help their parent but do not know how to begin. If they get involved early, they can detect changes that need to be addressed later on. A good first step is learning about the disease, its symptoms, treatment, and course. From there, they may want to become an active part of the support team that each person with PD should have from the time of diagnosis. Adult children can help schedule doctor’s appointments; attend them...
How Social Workers Can Help Ease Anxiety about the Unknown
December 13, 2022 12:00 - 21 minutes - 18.2 MBThe news of a Parkinson’s diagnosis can be overwhelming. So many questions arise, including how it will change the person’s life, what lies ahead, and what to do first. Social workers can be a vital resource in helping a newly diagnosed person, care partner, and family navigate the road ahead, as well as provide ongoing support through the course of the disease. They are the health professionals who know and can coordinate many of the most helpful resources. Or as social worker Lance Wilson,...
What to Do When the Next Medical Appointment is Months Away
November 29, 2022 12:00 - 14 minutes - 11.4 MBMedical problems often do not follow a schedule, and it can be frustrating to get them addressed when the next doctor appointment is weeks or months away. It’s important to have a plan about what to do for support between clinic appointments. A good first step is to discuss the issue with your health care team and to arrange to have a designated person or point of contact should such a situation arise. Heather Russell, RN, Coordinator of the Parkinson’s Foundation Center of Excellence at the...
¡EN ESPAÑOL! Crear un plan de autocuidado y por qué es importante para los cuidadores
November 15, 2022 12:00 - 22 minutes - 40.3 MBSer trabajadora social en una clínica significa ser parte del equipo médico y brindar atención a las personas que viven con Parkinson y a sus familias. En este episodio, hablamos con Adriana González, trabajadora social en el Centro para el Parkinson y Otros Trastornos del Movimiento de la University of California, San Diego. Como trabajadora social, Adriana ayuda a las familias y a los cuidadores a identificar recursos comunitarios y los apoya cuando enfrentan situaciones difíciles. ...
Community Care Programs for Care Partners
November 01, 2022 11:00 - 17 minutes - 12.9 MBCaregiving can be an intensive endeavor, not to mention the physical, mental, emotional, and even financial aspects of it. Just as people with Parkinson’s disease need support services, so, too, do their care partners. In this episode, Social Worker Cara Iyengar, MSW, LISW, the coordinator of the Parkinson’s Foundation Center of Excellence at the University of Iowa in Iowa City, discusses some of the Foundation’s resources that she shares with care partners, her three-pronged approach to sup...
Fall 2022 Moving Day at Home Program
October 21, 2022 19:00 - 12 minutes - 23.1 MBJoin community members from across the country for this virtual experience that allows you to move for Parkinson’s from wherever you are! This program will help you get motivated and kick off your 60 minute walk. Remember, you can walk, run, hike your favorite route, or simply just listen to the Moving Day at Home program! We encourage everyone to share photos of their experience by posting to your social media page with the hashtag #MovingDayatHome. Join us for the entire program by a...
¡EN ESPAÑOL! Cambios cognitivos
October 18, 2022 11:00 - 29 minutes - 54 MBCuando uno piensa en la enfermedad de Parkinson (EP), es fácil asociarla más con los síntomas motores, como la rigidez o el temblor; pero también existen síntomas no motores, como los cambios de estado de ánimo, la ansiedad o la depresión. En este episodio, hablamos con la doctora Elsa Baena, neuropsicóloga clínica en el Barrow Neurological Institute, Centro de Excelencia de la Parkinson’s Foundation, acerca de estos cambios cognitivos asociados con el Parkinson. La doctora Baena...
Medication-Induced Parkinsonism - How is it Different?
October 04, 2022 11:00 - 15 minutes - 11.7 MBThis episode explores parkinsonism, a group of conditions with symptoms similar to those of Parkinson’s disease, itself a neurological degenerative brain disorder resulting from neurons in the brain failing to make enough dopamine. It is characterized by a loss of motor control, including stiffness, slow movements, resting tremors, and postural instability. Plus, non-motor symptoms of depression, loss of the sense of smell, gastric problems, mood and cognitive changes are common. Parki...
CEO John Lehr Offers Broad Insight into the Parkinson's Foundation
September 20, 2022 11:00 - 20 minutes - 15.9 MBPast podcasts have given glimpses into the broad range of programs and initiatives that the Parkinson’s Foundation has developed and supports. But to give a better understanding of the Foundation’s mission, its operation, reach, and funding, we spoke with John Lehr, its president and CEO. He discussed the reasons for the merger of the National Parkinson Foundation and the Parkinson’s Disease Foundation to form today’s Parkinson’s Foundation, what the new organization has accomplished, and it...
Traveling with Parkinson’s Disease
September 06, 2022 11:00 - 19 minutes - 15.3 MBParkinson’s disease (PD) can be an impediment to certain activities, but with proper planning, people can still pursue many of the things they have always enjoyed. One of those things is travel – to see family, visit friends, or explore new sights and cultures. One key to enjoying travel is planning. Pay special attention to issues that are known to affect how you feel and function. Packing extra medications when traveling has always been a good idea, but with today’s unpredictability...
Feeling Nausea with Parkinson’s
August 23, 2022 11:00 - 17 minutes - 13.6 MBPeople often view Parkinson’s disease (PD) in terms of its motor symptoms, including slow movements, tremors, and stiffness. Often, these symptoms can be controlled with levodopa or other dopaminergic drugs. But just as troubling or more so to the person with PD are the non-motor symptoms of nausea, constipation, low blood pressure, mood disturbances, sleep problems, and more. In this episode, we focus on feeling nausea with Parkinson’s disease in an interview with Andrew Feigin, MD, Profess...
Meet the Researcher: Disparities in PD Care
August 09, 2022 11:00 - 20 minutes - 15 MBAs with many medical conditions, people with Parkinson’s disease (PD) may experience disparities in access to care, in diagnosis, treatments, and ancillary care. These disparities may be based on age, gender, race, financial situation, language barriers, and geographic location, among other factors. Dr. Lynda Nwabuobi, now a movement disorders specialist at New York-Presbyterian/Weill Cornell Parkinson’s Disease and Movement Disorders Institute in New York City, received her specialized trai...
Channeling Creativity Throughout the Parkinson’s Journey
July 26, 2022 11:00 - 21 minutes - 15.5 MBMany people with Parkinson’s disease (PD) continue to work, socialize, and enjoy life, making accommodations as necessary to fit the disease into their lifestyles. And while no one would choose to have PD, some people have even found or created benefits of having it. One of them is Barry Blaustein, an award-winning Hollywood writer, director, and producer, who wrote several of Eddie Murphy’s movies and developed several of his Saturday Night Live characters, writing many of Murphy’s skits wi...
Managing Comorbidities with Parkinson’s Disease
July 12, 2022 11:00 - 19 minutes - 14.4 MBJust as people in the general population have to contend with various unrelated medical conditions, so may people with Parkinson’s disease (PD). Such conditions are termed “comorbidities,” that is, diseases or conditions occurring along with, in this case, PD. Examples are cardiovascular disease, strokes, arthritis, diabetes, asthma, cancer, cataracts, other diseases of aging, as well as those that can occur at any stage of life. An important consideration is to determine which health profes...
¡EN ESPAÑOL! Definición y manejo de la distonía
June 28, 2022 11:00 - 8 minutes - 15.1 MBLa distonía es un trastorno del movimiento que causa contracciones involuntarias de los músculos. Estas contracciones llevan a posturas anormales de partes del cuerpo y a veces a movimientos repetitivos. En este episodio, hablamos con la doctora Marta San Luciano, Profesora Asociada de Neurología en la University of California San Francisco, acerca de la definición y el manejo de la distonía. La doctora San Luciano nos explica que la distonía es un síntoma común de la enfermedad de Par...
Addressing the Unmet Needs of Women with PD
June 14, 2022 11:00 - 15 minutes - 9.82 MBForty percent of people living with Parkinson’s disease (PD) are women, but compared to men, they have a longer time to diagnosis, less access to neurologist care, and are underrepresented in research studies. Although PD presents special considerations for women, they are, overall, treated the same as men. Some of the differences are body weight, drug metabolism, symptoms, monthly hormone cycles, hormonal changes across different stages of life, pregnancy, and family and other care giving r...
Meet the Researcher: Gene Silencing to Prevent and Treat Levodopa-Induced Dyskinesia
May 31, 2022 11:00 - 24 minutes - 18.8 MBDyskinesia is a condition involving erratic, uncontrollable muscle movements such as twitches, jerks, twisting, or writhing of the face, arms, legs, or trunk. It can be a complication after long-term use of levodopa to treat Parkinson’s disease. Dyskinesias can be mild, or they may be severe enough to interfere with normal functioning. Basic laboratory research has revealed some of the changes in the brain after long-term exposure to levodopa. In this episode, Kathy Steece-Collier, PhD...
¡EN ESPAÑOL! Los beneficios de la fisioterapia
May 24, 2022 11:00 - 21 minutes - 38.9 MBEn los últimos años, se han publicado varios estudios que sugieren que empezar la fisioterapia en las etapas tempranas de la enfermedad de Parkinson puede tener beneficios neuro-protectores, lo que significa que ayuda a mantener el cerebro más saludable. En el caso de las personas con Parkinson, la fisioterapia puede ayudar con el equilibrio, con la marcha y para mantener buena fuerza. En este episodio, hablamos con Ana Sanchez Junkin, doctora en fisioterapia con especialidad clínica e...