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Tess has come a long way through physical therapy. Learning to walk. Loosening her upper body and reaching upwards over time. Going up and down stairs. But there's one thing she just won't do.

New to the show and not sure where to begin? I gotcha. Check out the Top 5 Most Downloaded Episodes Ever.  

My blog about our life with Tess

More information about Hao-Fountain Syndrome or USP7