#21 - Patti Demuri, Rare Disease Patient Advocate

In this episode our guest is Patti Demuri, a Rare Disease Patient Advocate & Educator. 

We’ll be discussing:

Demuri's background and her path to becoming a Rare Disease Patient Advocate What makes rare disease patients unique in how they interact with healthcare & clinicians.The concept of medical trauma How Telehealth can benefit rare disease patients

Links to Check Out:

LinkedIn: https://www.linkedin.com/in/pattidemuri/

 

Links to Check Out for Sam:

Website: https://www.telehealtheasy.com

Twitter https://twitter.com/samiamlip

LinkedIn: https://www.linkedin.com/in/samlippolis

Clubhouse: https://www.joinclubhouse.com/@samiamlip