Screening gap costing babies' lives
Morning Report
English - May 31, 2023 19:40 - 3 minutes - 3.57 MB - ★★★★ - 11 ratingsNews Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
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Spinal muscular atrophy is the most common genetic cause of death in New Zealand babies without treatment but it's not included in the newborn screening programme.
Doctors warn that waiting until symptoms appear, the only way it's diagnosed here, means it's already too late for some children.
Ruth Hill reports.