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Rarest of Them All: Ultra-Rare Rheumatic Diseases – Part 1
Rheum Advisor on Air
English - February 25, 2021 16:26 - 15 minutes - 21.7 MBMedicine Health & Fitness health healthcare medicine rheumatology Homepage Download Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Rheuminating About COVID-19: A Rheumatologist’s Perspective
Multisystem autoimmune rheumatic diseases are rare or ultra-rare disorders linked to significant mortality and morbidity. However, with the rise of new technology, including data registries and advanced genetic analysis, rare rheumatic disease research is being propelled forward to inform future therapeutic options and improve patient outcomes.
In light of Rare Disease Day 2021, Dr Jonathan Miner, MD, PhD, discusses his work and contributions to the rare disease space, and speaks to the importance of research and the management of patients with rare rheumatic diseases.