How to get a treatment for your toddler’s rare disease

The story of a mother's race against time to find a genetic treatment for her son, and the technology that's helping her do it - CRISPR mice from China.

Correction - January 8th, 2020: An earlier version of this podcast episode stated that the gene therapy method that’s being developed to treat Maxwell would alter his genetic map. That is incorrect. The gene therapy method in question, which is called AAV9, won’t alter Maxwell’s mutation. We regret the error.

Featuring
Dan Vergano, BuzzFeed: @dvergano
Amber Freed: @Maxs_Milestones

Links to resources discussed:
This Mom Is Buying Mutant Mice From China To Find A Cure For Her Son’s Rare Genetic Disease
Milestones for Maxwell

Host:
Arielle Duhaime-Ross (@adrs), host and lead reporter of Reset

About Recode by Vox:
Recode by Vox helps you understand how tech is changing the world — and changing us.

Follow Us:
Newsletter: Recode Daily 
Twitter: @Recode
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The story of a mother's race against time to find a genetic treatment for her son, and the technology that's helping her do it - CRISPR mice from China.

Correction - January 8th, 2020: An earlier version of this podcast episode stated that the gene therapy method that’s being developed to treat Maxwell would alter his genetic map. That is incorrect. The gene therapy method in question, which is called AAV9, won’t alter Maxwell’s mutation. We regret the error.

Featuring

Dan Vergano, BuzzFeed: @dvergano

Amber Freed: @Maxs_Milestones

Links to resources discussed:

This Mom Is Buying Mutant Mice From China To Find A Cure For Her Son’s Rare Genetic Disease

Milestones for Maxwell

Host:

Arielle Duhaime-Ross (@adrs), host and lead reporter of Reset

About Recode by Vox:

Recode by Vox helps you understand how tech is changing the world — and changing us.

Follow Us:

Newsletter: Recode Daily 

Twitter: @Recode

Learn more about your ad choices. Visit podcastchoices.com/adchoices