22 - Cystic Fibrosis ft. Alexa Wallin (@chronic.insights on Instagram)

R is for Rare

English - July 08, 2021 18:12 - 1 hour - 76.7 MB - ★★★★★ - 6 ratings
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Previous Episode: 18 Years Undiagnosed ft. Narcolepsy Patient Lindsey Kizer

Next Episode: 23 - Menkes Syndrome ft. Daniel DeFabio

This week's interview is with another INTERNATIONAL guest, Alexa Wallin! She is from Winnipeg, Canada, and has Cystic Fibrosis (CF), a rare and genetic condition that affects the respiratory and digestive systems. Alexa has received a lung transplant (and suffered a stroke during the transplant), and she also runs an Instagram where she shares educational content AND her story! Alexa and I discuss family planning w/ a genetic disease, how rare disease life is different as a Canadian, and much more!

Be sure to subscribe to R is for Rare on Spotify or wherever you get your podcasts, and be sure to follow me on Instagram @risforarepodcast!

Follow Alexa on Instagram - @chronic.insights

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Send in a voice message: https://podcasters.spotify.com/pod/show/annie-watson/message