110: Makings Lemonade With Lemons – The Wahmanns

Positivity Effect by Dr. Tom
110: Makings Lemonade With Lemons - The Wahmanns









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Making Lemonade With Lemons

Robert and Maryann Wahmann are the founders of NCAN, The Neuroendocrine Cancer Awareness Network. Founded in 2004, their mission is to intensify awareness of Neuroendocrine Cancer including Carcinoid. NCAN provides access to information about NETs, and funding for NET cancer research. For the past 12 years NCAN has provided information and support to NET patients and caregivers through e-mail, our web site, and toll free phone number. Our phone line is open 7 days a week 9 am – 9 pm EST, 365 days a year! The phone line is answered by a patient or a caregiver at all times. This is very important to us . We want you to know the person on the other end of the phone understands first hand about the disease. Several thousand free information packets have been mailed worldwide. We provided many support groups worldwide with information, merchandise, awareness items and financial support.

CLICK HERE for the Neuroendocrine Cancer Awareness Network

NCAN’s twitter handle: @NetCancerAware

On today’s episode we discuss:

How Maryann’s carcinoid cancer was misdiagnosed for 7 years
How a lack of information drove Robert and Maryann to found NCAN
How NCAN’s conferences allow for doctors and patients to meet and discuss the disease
What it takes to walk through life with a long term disease
Making lemonade with lemons
What it means to Robert and Maryann to be a leader
Taking the road less traveled

Why they encourage patients to be advocates of their own health
The importance of how the delivery of a diagnosis is given
What are the symptoms of  neuroendocrine cancer?
How someone like Steve Jobs actually died of neuroendocrine cancer, not pancreatic

 

Robert and Maryann’s impact: They want to be remembered for their foundation and for making a difference in people’s lives despite the adversities that may have come their way

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Another episode of the Positivity Effect goes live next Tuesday – stay tuned!!

The post 110: Makings Lemonade With Lemons – The Wahmanns appeared first on The Positivity Effect.