Get Paid for Sharing YOUR Patient Experience

Medical researchers have FINALLY realized something that we in the chronic illness space have known for a while - that the true experts are not necessarily those who have studied a condition but are in fact those of us who live with a condition 24 hours a day, seven days a week, 365 days a year. 

Due to this realization, researchers now want to include our voices (as well as those of our family caregivers) in their studies. And we are getting paid for our time and input. 

Because it can be difficult to connect with patients and caregivers, there are organizations that exist to join the dots. One of these is Rare Patient Voice (RPV), and my guest today is Mel Havert, the Patient Outreach Manager for RPV. 

Mel's role is based around connecting with patients and caregivers, and inviting them to the RPV panel so that they can assist with research opportunities and make their voices heard.

Listen in to find out how you can be involved, improve medical research, and get paid for your time and experience!

In this episode:

What is Rare Patient Voice and what does it do?How patients can join and how the RPV process worksThe key question - how much patients can be paid?!What RPV does (and doesn't do) with your personal data How patients can sign up to RPV via the PGP affiliate link

Full notes and resources at https://patientsgettingpaid.com/blog/paid-research-patient-experience