Parkinson's Disease Caring Podcast artwork

Parkinson's Disease Caring Podcast

30 episodes - English - Latest episode: almost 2 years ago - ★★★★★ - 24 ratings

Parkinson's Disease Caring Podcast provides care partners and caregivers of loved ones with Parkinson's disease with valuable information from Parkinson's disease specialists, caregivers, and patients. Timely and engaging interviews inform the care partner or caregiver to help equip them with the knowledge and confidence necessary to enjoy the caregiving years with less struggles and heartache.

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Episodes

#29 Diagnosis and Treatment of Psychosis of Parkinson's disease: What a caregiver needs to know!

June 23, 2022 03:00 - 50 minutes - 34.5 MB

On this episode, I discuss what a caregiver needs to know when confronted with psychosis exhibited by their loved one. It is important for caregivers to understand some of the common and reversible causes of psychosis related to Parkinson's disease. The psychosis may manifest as visual, auditory, or tactile hallucinations. In some cases, delusional thoughts and paranoia may be present during the psychotic episode.  When a loved one experiences psychosis, you must know what kind of medical a...

#28 Introduction to focus on Parkinson's Disease Psychosis

April 29, 2022 20:00 - 15 minutes - 10.6 MB

In this episode, I introduce the topic of psychosis as it relates to Parkinson's disease. I review some of the important information about the different forms of psychosis including illusions, hallucinations, and delusional thoughts. This episode will set the stage for the upcoming month of episodes diving deep into this topic. We will discuss the biology of psychosis, the various causes of this problem in PD, and the available treatments. Our discussion on treatments will include both pharm...

#27 Caring for a Loved One with Cognitive Impairment and Psychosis of Parkinson's disease (Interview with Caregiver Sharon)

March 23, 2022 19:00 - 43 minutes - 30.1 MB

One of the greatest challenges for a caregiver of a loved one with Parkinson's disease is managing episodes of psychosis.  On today's episode, I interview a caregiver named Sharon. Sharon is a caregiver for her husband with a 14 year history of PD. In the recent years, he has experienced a decline in cognitive function as well as episodes of psychosis that included visual and tactile hallucinations as well as delusional thoughts. Sharon shares some of these experiences with us and explains ...

#26 Treatment of Mild Cognitive Impairment and Dementia in Parkinson's disease

March 01, 2022 19:00 - 27 minutes - 18.8 MB

In this episode, I discuss the current recommendations for treatment of Mild Cognitive Impairment of Parkinson's disease as well as the Dementia of Parkinson's disease. The discussion includes both pharmacological recommendations as well as non-pharmacological recommendations based upon the available medical literature. We discuss the recent publication of the Movement Disorder Society recommendation for treatment of Mild Cognitive Impairment and Dementia of Parkinson's disease.  The Parkin...

#25 Understanding Mild Cognitive Impairment and Dementia (Interview with Dr. Keith Josephs, Mayo Clinic Movement Disorder Specialist, Behavioral Disease Specialist, and Research Scientist)

February 14, 2022 16:00 - 52 minutes - 36.3 MB

My guest interview is Dr. Keith Josephs, Professor of Neurology and Research Scientist at the Mayo Clinic in Rochester, Minnesota. Dr. Josephs is a world expert on Parkinson's disease and related Atypical Parkinson disorders as well as Alzheimer's disease and other dementia illness.  We discuss where Parkinson's disease starts in the peripheral system of the body as well as in the brain. He shares his thoughts about the research looking into the types of pathological changes that happen in ...

#24 Mild Cognitive Impairment and Dementia of Parkinson's Disease

February 10, 2022 21:00 - 21 minutes - 14.5 MB

This month, we will turn our attention to cognition in people with Parkinson's disease. In this introduction episode, I talk about the clinical diagnosis of Mild Cognitive Impairment of Parkinson's disease and what this actually means. I discuss how this condition may progress throughout the course of the illness. I discuss Dementia of Parkinson's disease and the prevalence rate of this condition. This month, we will focus on the neuropathology of cognitive changes of Parkinson's disease an...

#23 Swallow Therapies for Parkinson's Disease (Interviews with Juliana Harl and Tiffany Turner, SLP) (Episode 3)

January 25, 2022 14:00 - 27 minutes - 19 MB

In this episode, we conclude the month long topic of swallow impairment in Parkinson's disease. I share treatment recommendations with you from two interviews conducted with local speech and language pathologist who specialize in swallowing therapy. Juliana and Tiffany share practice and very useful advice that care partners and caregivers will benefit from to help their loved one.  I also present the recommendations from a multidisciplinary consensus panel that published their treatment re...

#22 Swallowing Impairment in Parkinson's Disease (Episode 2) (Interview with Juliana Harl, Speech-Language Pathologist)

January 18, 2022 04:00 - 44 minutes - 30.4 MB

In this episode, I discuss the process of swallowing and areas of dysfunction of swallowing in Parkinson's disease. I explain the three phases of swallowing and many of the problems that occur in each stage related to Parkinson's disease. Then I describe testing available to assess for swallowing dysfunction. To further explain the diagnostics available for swallowing impairment, I interviewed Juliana Harl, a Speech-Language Pathologist in practice who specializes in Parkinson's disease. S...

#21 Swallowing Impairment in Parkinson's disease (Episode 1)

January 10, 2022 17:00 - 13 minutes - 9.39 MB

In this episode, I introduce the topic for the month of January on this podcast. The topic is swallowing dysfunction of Parkinson's disease. The medical term for swallowing impairment is dysphagia. This month we will dive deep into this topic reviewing the potential problems that may occur for people with Parkinson's disease. I introduce the topic today. In the following shows, we will discuss in great detail the testing options, treatment options, and nutritional support for swallowing impa...

#19 Update on Clinical Trials for Parkinson's Disease

January 03, 2022 02:00 - 20 minutes - 14 MB

At the recent International Movement Disorder and Parkinson's Disease meeting of 2021, exciting research updates were presented. The clinical trials presented included trials of disease modification, therapies for the motor symptoms, and therapies for the non-motor symptoms.  Trials with negative outcomes were also presented at this meeting.  Dr. Klos discusses highlights of this meeting.  The Parkinson's disease Caring Podcast is produced and hosted by Dr. Kevin Klos. Please visit www.pdca...

#20 Happy New Year! New Season of Parkinson's Disease Caring Podcast Ahead!

January 03, 2022 02:00 - 2 minutes - 1.74 MB

Thank you for supporting the Parkinson's Disease Caring Podcast in 2021! We are looking forward to a great year ahead.  The format of the Podcast will change slightly this year. Each month or two, the podcast will focus on a clinical problem that is commonly reported in the PD clinic. I will dedicate the weekly shows to this topic and dive deep into the information you need to know related to this topic. I will add interviews with patients, care partners, caregivers, and other experts to pr...

#18 Caregiving Myths that may Sabotage the Care of Your Loved One

September 30, 2021 13:00 - 35 minutes - 24.7 MB

In my clinical practice, I have the opportunity to discuss many caregiving related subjects with my patients and their caregivers. I hear many pervasive opinions on certain topics that many caregivers learn from misinformation on the internet, discussed in support groups, and other resources. These myths have the opportunity to sabotage the care of your loved one. On this episode, I bring to your attention some of the more common myths and misconceptions and address the science behind my rec...

#17: New Technologies for Deep Brain Stimulation Surgery (DBS) and Recommendations for Care Partners in monitoring a loved one after DBS surgery(Interview with Dr. Andrew Conner, Oklahoma DBS Neurosurgeon)

August 30, 2021 22:00 - 1 hour - 43.4 MB

This show shares my interview with Neurosurgeon, Dr. Andrew Conner, from the University of Oklahoma Neurosurgery department. Dr. Conner received his DBS training from one of the top rated DBS centers in the world, the University of California San Francisco .  In the last few years, the field of Movement Disorders have witnessed numerous advances in technology for Deep Brain Stimulation (DBS). Now there are three device companies producing innovative hardware for the market place. The surgic...

#16: Servant Caregiving (Interview with caregiver Jack)

August 13, 2021 11:00 - 27 minutes - 18.8 MB

True happiness results when a caregiver is able to serve a loved one with their entire mind, body and spirit. As caregivers, we have an incredible opportunity to find this happiness in our journey with a loved one battling Parkinson's disease. To find this happiness, we have to put aside our own selfish thoughts and desires and give our best to our loved one. This is certainly easy to say and hard to accomplish.  I interviewed a caregiver named Jack. His wife, Lois, was a patient in my prac...

#15: The importance of dietary protein and protein interaction with dopamine therapy for Parkinson's disease

July 14, 2021 01:00 - 27 minutes - 19 MB

Perhaps you and/or your loved one with Parkinson's disease have read about protein intake and possible interactions with dopamine therapy. You may have read articles recommending a diet low in protein if you have Parkinson's disease.  On this episode, I discuss the facts and science behind dietary protein intake and Parkinson's disease. I discuss proper timing of levodopa or dopamine therapy and protein intake. I present some cases from my clinic illustrating these concepts.  As a care par...

#14: Constipation, poor digestive motility, and digestive emergencies you need to know about to help your loved one with Parkinson's disease (Interview with Gastroenterologist, Dr. Matt Blankenship)

June 20, 2021 07:00 - 45 minutes - 31.1 MB

In this episode, I interview a board certified gastroenterologist, Dr. Matt Blankenship from Tulsa, Oklahoma. Dr. Blankenship has experience treating numerous digestive system problems related to Parkinson's disease. He is also one of the most experienced interventionalists in the US regarding Duopa therapy.  Dr. Blankenship discusses the different types of constipation that our loved ones commonly face throughout the illness with Parkinson's disease. He offers practice treatment advise for...

#13: How to monitor your loved one for swallowing impairment and what to do about it (Interview with Tiffany Turner, MS, CCC-SLP, BCS-S Board Certified Specialist in Swallowing)

June 05, 2021 13:00 - 32 minutes - 22.3 MB

In this episode, I interview a Swallow Specialist from Oklahoma, Tiffany Turner, to learn about how Parkinson's disease may impair swallowing function. Tiffany explains how dysfunction in the nervous system may lead to swallowing difficulty and what clinical signs we need to be aware of as caregivers that such a problem is developing. Tiffany explains how a swallow disorder is evaluated in the clinic and in the hospital settings. She details for us what she is looking for and how she recogni...

#12 Leadership in caregiving for a loved one with Parkinson's Disease (interview with caregiver Anka)

May 27, 2021 12:00 - 39 minutes - 27.3 MB

One of the many challenges in caregiving for a loved one with Parkinson's disease is assuming a new role in the relationship and family. Many of us caregivers may not have been the leader of the family especially related to making decisions, handling the family finances, and even taking care of our family member. Parkinson's disease will progress to a point where an individual will have great difficulty maintaining this leadership role and will now depend upon a caregiver for everything.  A...

#11: Klos Clinic: An Unfamiliar Rescue Therapy That You and Your Loved One Need to Know Exists

May 11, 2021 22:00 - 14 minutes - 9.86 MB

Today's Klos clinic will discuss a rescue therapy option that very few people are ever told about in the Neurology clinic. In fact, this option will certainly be unlikely to be discussed with new rescue therapies on the market such as Inbrija and Kynmobi. Join Dr. Klos for this episode to learn more about this important option to help your loved one battle off times. If this therapy seems reasonable to consider, please discuss with your loved one and the healthcare provider to see if this op...

#10: Duopa Pump Therapy (Interview with PD patient JR)

April 27, 2021 19:00 - 35 minutes - 24.4 MB

Duopa therapy is an important addition to the treatment options for people with Parkinson's disease. Very few patients and caregivers learn about this therapy from their provider due to lack of experience using the product. Many are reluctant to consider the therapy due to misconceptions about the procedure and maintenance of the pump system.  On this episode, I interview a patient with Parkinson's disease currently using the Duopa system in my clinical practice. He shares insight into his ...

#9: Ask Dr. Klos

April 11, 2021 03:00 - 23 minutes - 16.5 MB

On this episode, Dr. Klos answers your questions regarding Parkinson's disease. Thank you for emailing your questions for today's show.  If you would like to submit questions for a future show, please email them to [email protected].  Thank you for listening to episode #9. If you would like to find more resources for care partners and caregivers for loved ones with PD, please check out www.pdcaring.com. 

#8: Klos Clinic: Levodopa Phobia: What care partners and caregivers need to know

March 30, 2021 12:00 - 25 minutes - 17.5 MB

Many Parkinson's disease experts have suggested that one of the leading causes of disability for Parkinson's disease patients is the fear of using levodopa (dopamine) therapy by the healthcare provider and/or the patient. This fear stems from myths and misconceptions pervasive on the internet, in medical clinics, and support groups. This fear has resulted in patients unnecessarily delaying this important therapy or limiting the dose which may under treat the motor symptoms of the disease.  ...

#7 Klos Clinic: Exercise for the Care Partner/Caregiver and PWP

March 04, 2021 18:00 - 22 minutes - 15.6 MB

As a care partner or caregiver for a loved one with PD, you have certainly by now heard the importance of exercise and therapy for your loved one with PD. Why is it so important for your loved one? Does exercise only benefit physical symptoms? Is there evidence that exercise might slow the progression of PD for your loved one? Additionally, are you exercising? If so, are you consistent with your exercise program? Are there advantages to regular aerobic exercise for your brain health? Tune ...

#6: Exercise and Physical Therapy for Your Loved One with Parkinson's Disease (interview with Keith Khoo, PT)

February 15, 2021 16:00 - 36 minutes - 25.4 MB

Exercise and balance therapy are important interventions in the treatment of Parkinson's disease. But what exercise should a person with Parkinson's disease perform? How often and for how long? Should the carepartner and caregiver engage in regular exercise as well? These are some of the many questions I hear in the PD clinic from patients and caregivers.  As PD advances, what issues related to fall risk should we be aware of as a caregiver? Is there a point in the progression when Physical...

#5: Guilt in Caregiving (part 2 of interview with caregiver Alice)

February 02, 2021 12:00 - 26 minutes - 18.2 MB

Caregivers for loved ones with Parkinson's disease experience guilt. There are many reasons why a caregiver may experience guilt along the journey and the severity of the guilt certainly varies. For example, caregivers may feel guilty when taking time away from their duties to pursue personal time. You may feel guilt when you compare how you are handling certain situations to other caregivers. Caregivers may struggle with balancing demands on their time from other personal responsibilities o...

#4: Building Confidence as a Care Partner and Caregiver (Interview with Alice part 1)

January 18, 2021 18:00 - 26 minutes - 18.2 MB

Alice is a caregiver for her husband with Parkinson's disease for the last 34 years. This is part one of a two part interview discussing her experience navigating the care partner and then caregiving role. She provides helpful advice to build confidence in your caregiving role.  There are many elements that Alice shares requiring the interview to be broken into two episodes. This episode focuses on helpful advice in dealing with the changes that Parkinson's disease brings to a family. On th...

#3: Klos Clinic: Kynmobi for off episodes of Parkinson's Disease

January 10, 2021 12:00 - 30 minutes - 21.1 MB

A common complication of Parkinson's disease is off episodes related to levodopa therapy. After many years of taking levodopa therapy, an individual with Parkinson's disease may experience off episodes in which the benefit of a dose of levodopa therapy may fade resulting in the return of Parkinson's disease symptoms. For some patients, the off episodes are mild and non troublesome. However, for most patients, off episodes are troublesome due to discomfort of symptoms or loss of function.  O...

#1: Preview: Dr. Kevin Klos previews his podcast designed to offer hope and confidence for Care Partners and Caregivers of loved ones with Parkinson's disease.

December 26, 2020 20:00 - 12 minutes - 8.61 MB

Movement Disorder and Parkinson's Disease specialist, Dr. Kevin Klos, previews his new podcast for Care Partners and Caregivers with loved ones battling Parkinson's disease. Dr. Klos is also a care partner for his mother who was diagnosed with Parkinson's disease. New episodes will be produced every week. His episodes will vary between interviews with current caregivers and patients in his clinical practice, Klos clinic shows that provide quick updates on new medications and therapies for Pa...

#2: How a clinical trial might benefit your loved one with Parkinson's disease (with guests Joe and Barbara)

December 26, 2020 20:00 - 40 minutes - 27.8 MB

There are many reasons why patients with Parkinson's disease may choose not to participate in a clinical trial. Many of these reasons may not be valid reasons due to misconceptions about PD clinical trials. Although clinical trials are not ideal for some patients, this episode explores why your loved one with PD might wish to consider participation in a trial. Learn from care partner Joe and his wife Barbara from their experience with a PD clinical trial and how this decision impacted her tr...

#1: Preview: Dr. Kevin Klos previews his podcast designed to offer hope and confidence for Care Partners and Caregivers of loved ones with Parkinson's disease.

December 26, 2020 20:00 - 12 minutes - 8.61 MB

Movement Disorder and Parkinson's Disease specialist, Dr. Kevin Klos, previews his new podcast for Care Partners and Caregivers with loved ones battling Parkinson's disease. Dr. Klos is also a care partner for his mother who was diagnosed with Parkinson's disease. New episodes will be produced every week. His episodes will vary between interviews with current caregivers and patients in his clinical practice, Klos clinic shows that provide quick updates on new medications and therapies for Pa...