Your Pain is NOT Invisible with Professor Lara Bloom

On this episode, Mariah Heller sits down with Professor Lara Bloom to discuss Ehlers Danlos, Chronic Pain, and "Invisible Ilnesses" to dig deeper into WHY these issues have been so heavily neglected by the healthcare system, and WHAT we can do about it. Tune in for a conversation with an incredible person doing incredible things.

Lara Bloom is the President and CEO of The Ehlers-Danlos Society and responsible for globally raising awareness of rare, chronic and invisible diseases, specialising in the Ehlers-Danlos syndromes, hypermobility spectrum disorders (HSD) and related disorders. Before joining the Ehlers-Danlos Society Lara ran EDS UK from 2010-2015.

Lara regularly works with umbrella organisations lobbying at government level internationally. In addition to her role as President and CEO of The Ehlers-Danlos Society, she is the Global Ambassador for Global Genes and Advocacy Committee Member for Rare Diseases International, Co-Investigator in the NIHR CONCORD: CO-ordiNated Care Of Rare Diseases, Expert Advisor in the European Reference Network Groups RECONNECT & VASCERN, Expert Advisor to PARADIGM & EPF, Working Group Member of the GenTAC Alliance Patients, Families, and Clinicians, and a Patient Group Consultative Forum Member for the Medicines and Healthcare Products Regulatory Agency.

Commemorating ten years in the field of patient advocacy for the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), chronic illnesses, and rare diseases, Lara was officially appointed a Professor of Practice in Patient Engagement and Global Collaboration at Penn State College of Medicine, USA, on March 11, 2020.

Website: www.ehlers-danlos.com
Website 2: www.larabloom.com
LinkedIn: https://www.linkedin.com/in/larabloom/?originalSubdomain=uk
Instagram: @lara.bloom and @ehlers.danlos