Effie and Sarah discuss:  

The moment she found out about her son’s diagnosisCTNNB1 syndromeHow it presents in her sonHer experience in early interventionThe impact OT has had on her and her son’s lifeHer advice for OT practitioners working with families Memorable moments in OT so farHippotherapyParents trusting in therapistsReflections on OT from a parent perspectiveHer podcastResourcesCTNNB1 Facebook groupGlobal genesNational Organization of Rare Diseases (NORD)

Connect with Effie

Website: https://effieparks.com/Podcast: https://effieparks.com/podcastInstagram: https://www.instagram.com/onceuponagene.podcast/Twitter: https://twitter.com/OnceUponAGene

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