What is Chronically Surviving with Marcelle Longlade

Once Upon A Gene

English - September 17, 2020 11:00 - 33 minutes - ★★★★★ - 258 ratings
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What is Chronically Surviving with Marcelle Longlade
Marcelle Longlade is living with multiple rare diseases. Her platform, Chronically Surviving connects community, offers accessible yoga and other healing practices and services.

EPISODE HIGHLIGHTS
Can you tell me how you became involved with Our Odyssey?
Had you been part of an advocacy or support group prior?
Can you tell us about the rare diseases you're living with?
What affects you the most daily?
Tell me about the shift from your biomedical engineer job.
When you started yoga, did you know right away that you wanted to tailor your practice to the rare disease and disability community?
What are you most excited about for the future?

LINKS AND RESOURCES MENTIONED
EPISODE 036 - Anna Laurent on Alagille Syndrome and Her Road to Advocacy
https://effieparks.com/podcast/episode-36-anna-laurent-alagille-syndrome
One Rare
https://onerare.org/
Our Odyssey
https://ourodyssey.org/
Chronically Surviving
https://www.chronicallysurviving.com/

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What is Chronically Surviving with Marcelle Longlade

Marcelle Longlade is living with multiple rare diseases. Her platform, Chronically Surviving connects community, offers accessible yoga and other healing practices and services.

EPISODE HIGHLIGHTS

Can you tell me how you became involved with Our Odyssey?

Had you been part of an advocacy or support group prior?

Can you tell us about the rare diseases you're living with?

What affects you the most daily?

Tell me about the shift from your biomedical engineer job.

When you started yoga, did you know right away that you wanted to tailor your practice to the rare disease and disability community?

What are you most excited about for the future?

LINKS AND RESOURCES MENTIONED

EPISODE 036 - Anna Laurent on Alagille Syndrome and Her Road to Advocacy

https://effieparks.com/podcast/episode-36-anna-laurent-alagille-syndrome

One Rare