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My Pfeiffer Pfamily
Once Upon A Gene
English - December 26, 2019 12:00 - 33 minutes - ★★★★★ - 258 ratingsParenting Kids & Family advocate caregiver disability genetherapy genetics inclusion parenting raredisease rarediseasepodcast raredisorder Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
ONCE UPON A GENE - EPISODE 010
My Pfeiffer Pfamily
Synthiea Kaldi was the first person I knew to call when I was told something was wrong with Ford. I admire her so much and would be lost without her humor and understanding. Finding someone like Synthiea, someone who lives with a lot of hard stuff but can also find the humor in it, is a really valuable resource for your mental health and general outlook. It's not easy being a parent, especially when your child has a complex medical need. Synthiea is further ahead in this unplanned detour along a dirt road with a lot of potholes and I'm constantly learning from her. It's impossible not to feel the light that radiates from her and I'm excited to share our conversation about her beautiful daughter and their experience with Pfeiffer Syndrome so far. Today we're talking about Mallory, Sythiea's little girl.
CONNECT WITH SYNTHIEA
Synthiea Kaldi on Facebook: https://www.facebook.com/skaldi
TUNE INTO THE ONCE UPON A GENE PODCAST
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ONCE UPON A GENE - EPISODE 010
My Pfeiffer Pfamily
Synthiea Kaldi was the first person I knew to call when I was told something was wrong with Ford. I admire her so much and would be lost without her humor and understanding. Finding someone like Synthiea, someone who lives with a lot of hard stuff but can also find the humor in it, is a really valuable resource for your mental health and general outlook. It's not easy being a parent, especially when your child has a complex medical need. Synthiea is further ahead in this unplanned detour along a dirt road with a lot of potholes and I'm constantly learning from her. It's impossible not to feel the light that radiates from her and I'm excited to share our conversation about her beautiful daughter and their experience with Pfeiffer Syndrome so far. Today we're talking about Mallory, Sythiea's little girl.
CONNECT WITH SYNTHIEA
Synthiea Kaldi on Facebook: https://www.facebook.com/skaldi
TUNE INTO THE ONCE UPON A GENE PODCAST
CONNECT WITH EFFIE PARKS