How Our Rare Kids Can Shape Us

Once Upon A Gene

English - April 16, 2020 11:00 - 34 minutes - ★★★★★ - 258 ratings
Parenting Kids & Family advocate caregiver disability genetherapy genetics inclusion parenting raredisease rarediseasepodcast raredisorder Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed

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ONCE UPON A GENE - EPISODE 026
How Our Rare Kids Can Shape Us
Molly D'Angelo is sharing her adorable son's story with us who has a rare genetic disorder of obesity. People can be very judgmental and cruel. Rare parents watch their kids struggle so much and we have fear about their futures on a regular basis. We grow a thick skin, but even we are not immune to the ignorance and unkindness we can receive. Stories like Josh's help spread awareness and educate us all to have more compassion and understanding.
EPISODE HIGHLIGHTS
Tell us about your family.
What causes the obesity disorder? Is it a genetic mutation?
After your son was born, when did you realize something was different?
How do you combat human stupidity and general unkindness in looks and comments geared towards you as a parent and also Josh?
Does Josh also have an autism diagnosis?
What are some of Josh's favorite things?
What's Josh's relationship with his brothers like?
What kind of advocate has this made you?
What do you want people to do or say when they meet Josh?

LINKS AND RESOURCES MENTIONED
Molly D'Angelo Instagram (@mollyedangelo)
https://www.instagram.com/mollyedangelo/
LEAD for Rare Obesity on Facebook (@LEADforRareObesity)
https://www.facebook.com/LEADforRareObesity/
Love What Matters on Facebook (@lovewhatreallymatters)
https://www.facebook.com/lovewhatreallymatters/
Morgan's Wonderland
https://www.morganswonderland.com/

ONCE UPON A GENE - EPISODE 026

How Our Rare Kids Can Shape Us

Molly D'Angelo is sharing her adorable son's story with us who has a rare genetic disorder of obesity. People can be very judgmental and cruel. Rare parents watch their kids struggle so much and we have fear about their futures on a regular basis. We grow a thick skin, but even we are not immune to the ignorance and unkindness we can receive. Stories like Josh's help spread awareness and educate us all to have more compassion and understanding.

EPISODE HIGHLIGHTS

Tell us about your family.

What causes the obesity disorder? Is it a genetic mutation?

After your son was born, when did you realize something was different?

How do you combat human stupidity and general unkindness in looks and comments geared towards you as a parent and also Josh?

Does Josh also have an autism diagnosis?

What are some of Josh's favorite things?

What's Josh's relationship with his brothers like?

What kind of advocate has this made you?

What do you want people to do or say when they meet Josh?

LINKS AND RESOURCES MENTIONED

Molly D'Angelo Instagram (@mollyedangelo)