19. Jan Wiese, Caregiving with Grace and Intention for a Daughter with Job’s Syndrome
Made Visible
English - November 13, 2018 05:00 - 52 minutes - 48.4 MB - ★★★★★ - 105 ratingsAlternative Health Health & Fitness caregiver chronicillness health wellbeing wellness Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
When Lucy Wiese was three years old, she was diagnosed with a rare disease called Job’s Syndrome (or Hyper IgE Syndrome). For Jan Wiese, Lucy’s mom, that was the beginning of her journey as a full-time caregiver. On today’s episode, Jan and I talk about the trajectory of her daughter’s serious illness and the experimental treatment Lucy received at the NIH, how she and her husband have navigated caregiving for Lucy while also parenting their son Joel, and her hopes for Lucy’s future and her own.
Learn more about Jan and check out the show notes here.
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