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Project CF Spouse
Living With Cystic Fibrosis
English - March 03, 2020 15:33 - 15 minutes - 14.3 MB - ★★★★★ - 20 ratingsMedicine Health & Fitness Government cystic fibrosis cf. bonnell foundarion chronic illness positivity personal stories self help advocacy cf community cf modulators cftr Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
When you think about cystic fibrosis, you probably think about the patient, and the parents who take care of them until they're adults. But what about a patient's spouse or partner? When a person starts dating someone with CF they probably don't know the patient's history, nor can they grasp the complications of the disease right away. A person with the disease has had a lifetime to get used to it. The same may be true of their parents. But for a partner, it is an entirely different story. In this podcast, meet the wonderful Megan Barker, the Director of Project CF Spouse. Her husband has CF. Rob Ronnenberg is in charge of the group's strategic planning, and his wife has CF. I shared some tears with these two wonderful people; I am so glad to know them. Their foundation is off to a great start.
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