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Costly transplants: don't go broke. More help...
Living With Cystic Fibrosis
English - September 12, 2022 04:00 - 33 minutes - 23 MB - ★★★★★ - 20 ratingsMedicine Health & Fitness Government cystic fibrosis cf. bonnell foundarion chronic illness positivity personal stories self help advocacy cf community cf modulators cftr Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
The Children’s Organ Transplant Association (C.O.T.A), helps people waiting for transplants, fund the procedure and everything that surrounds it.
Laura Bonnell learned about COTA when her nephews needed a bone marrow transplant (not CF related). When someone needs a transplant, they usually living in their home state and getting a transplant in another state or city. They have to be close to their transplant hospital. They might be there for four months. This means there is an additional rent cost, transportation costs, spouse or a parent staying with you, etc. Rick Lofgren joins us today to talk about C.O.T.A. As you know, The Bonnell Foundation offers lung transplant grants. But even our grants don’t cover all the costs of a transplant, and health insurance certainly does not cover all the expenses.
C.O.T.A, as you're about to hear, is a non profit, so family's will not be taxed on the money raised (which is true of Go Fund Me fundraisers).
Social media for C.O.T.A
FB: https://www.facebook.com/COTAFans/
Website: https://cota.org
Twitter: https://twitter.com/COTA_ORG
Linkedin: https://www.linkedin.com/company/cota_org/
Instagram: https://www.instagram.com/cota_org/
For more information on The Bonnell Foundation find us at: https://thebonnellfoundation.org/
Our new CF Familia page: https://thebonnellfoundation.org/familia/en-home/
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Genentech: https://www.gene.com/
Viatris: https://www.viatris.com/en
The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis. You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic
This podcast was produced by JAG in Detroit Podcasts: https://jagindetroit.com/
Please like, subscribe, and comment on our shows, wherever you get your podcasts.
Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: [email protected]
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en