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CF in Egypt Episode 2 - CF Dad Anas Mansour
Living With Cystic Fibrosis
English - January 25, 2021 05:00 - 29 minutes - 27.1 MB - ★★★★★ - 20 ratingsMedicine Health & Fitness Government cystic fibrosis cf. bonnell foundarion chronic illness positivity personal stories self help advocacy cf community cf modulators cftr Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Thirty-five-year-old Anas Mansour has 5-year-old twin boys with cystic fibrosis. He lives in Cairo, Egypt. Mansour and his wife are trying to keep the boys as healthy as possible, but it is challenging. The disease isn't officially recognized yet in Egypt, so insurance doesn't cover medications. The medications they do have access to aren't like anything we have in the United States. Even basic care, such as getting your hands on digestive enzymes for example, it is difficult and costly. Mansour believes he may have to leave his country to make certain his children get the medications they need. Things are getting better there, but today the life expectancy is 12 years old, whereas it's 47 years old in the U.S. You'll hear his heartbreaking story.
For more information on The Bonnell Foundation and how you can help fight CF in Egypt, find us at https://thebonnellfoundation.org/
Sponsor: Vertex Pharmaceutical - the science of possibility. https://www.vrtx.com
The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis. You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic
This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/
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Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: [email protected]
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en