CF in Egypt Episode 1 - Dr. Samya Nasr
Living With Cystic Fibrosis
English - January 25, 2021 05:00 - 36 minutes - 33.2 MB - ★★★★★ - 20 ratingsMedicine Health & Fitness Government cystic fibrosis cf. bonnell foundarion chronic illness positivity personal stories self help advocacy cf community cf modulators cftr Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Dr. Samya Nasr, Director of the CF Clinic at the University of Michigan hospital, and Professor of Pediatrics. In 1997 Dr. Nasr began talking to doctors in her native country of Egypt about the fact that many CF patients were not being diagnosed. Physicians there (and the Ministry of Health) didn't believe CF existed in their country. In 2007 Dr. Nasr convinced doctors it did exist after testing people with symptoms and diagnosing 1,000 patients. Dr. Nasr talks about the challenges faced today (lack of medications), the challenge for the future (getting pharma the ability to license drugs so they will be covered under insurance. They can’t until the government recognizes the genetic disease) and getting patients CF modulators.
For more information on The Bonnell Foundation and how you can help fight CF in Egypt, find us at https://thebonnellfoundation.org/
Sponsor: Vertex Pharma - the science of possibility. https://www.vrtx.com
The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis. You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic
This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/
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