![Living With Cystic Fibrosis artwork](https://is3-ssl.mzstatic.com/image/thumb/Podcasts123/v4/5a/76/e5/5a76e567-63af-e2a8-80d6-9d48370e7114/mza_8582817271683398642.jpg/100x100bb.jpg)
CF Bridge of Hope
Living With Cystic Fibrosis
English - February 20, 2023 05:00 - 39 minutes - 36.1 MB - ★★★★★ - 20 ratingsMedicine Health & Fitness Government cystic fibrosis cf. bonnell foundarion chronic illness positivity personal stories self help advocacy cf community cf modulators cftr Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Imagine having children with CF and living in another country. In your country they don't have any CF medications, and maybe only a handful of people have been diagnosed with the disease. Even testing equipment is difficult to come by. Doctors in your country don't have a lot of knowledge about CF, and basic medications aren't accessible. The Bonnell Foundation and others have worked tirelessly to raise awareness, and to make change in many middle eastern countries, but it's a slow process.
This is why we're excited to tell you about the non-profit Dr. Golnar Raissi and her husband created to help them at their CF clinic in Stanford, Connecticut. They put together the CF Bridge of Hope to extend the same treatment people are getting in the U.S. to people living in other counties with limited resources.
Doing great work with Dr. Raissi and her husband, is Bean Corcoran. Bean helps with the entire program, getting applications complete and another part of the program. They also can send unexpired meds to people in need, and the organization pays for shipping. So if you have CF meds you don't need, email the Bridge of Hope. Beans adult son Will has CF. CF Bridge of Hope is currently helping people in Romania, Guatemala, Ukraine and Pakistan.
The Bonnell Foundation podcast page: https://thebonnellfoundation.org/audio-podcasts/
Email us at: [email protected]
CF Bridge of Hope email: [email protected]
CF Bridge of Hope: https://www.cfbridgeofhope.org
Thanks to our sponsors:
Vertex Pharmaceutical: https://www.vrtx.com
Genentech: https://www.gene.com
Viatris: https://www.viatris.com/en
Please like, subscribe, and comment on our shows, wherever you get your podcasts.
Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: [email protected]
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en