CF Attorney and Patient Beth Sufian
Living With Cystic Fibrosis
English - February 19, 2019 23:48 - 51 minutes - 47.1 MB - ★★★★★ - 20 ratingsMedicine Health & Fitness Government cystic fibrosis cf. bonnell foundarion chronic illness positivity personal stories self help advocacy cf community cf modulators cftr Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
When Beth Sufian was born with Cystic Fibrosis in 1965, there were no CF treatments and no prescriptions for enzymes that she could take to digest her food. Beth has dealt with many CF challenges along the way, and it made her stronger and molded her into the attorney she is today. Sufian lives in Texas where she's practiced law for the past 25 years, many of those years with her husband. She focuses on health law so she can help CF patients and people with other chronic illnesses navigate the complex legal system. She was recently in the news again for helping a 22 old woman with CF who lost her Social Security benefits because that agency felt her health had improved. Sufian will talk about the Megan Willis case, special needs trusts (do you need them?) and clear up legal misunderstandings about CF. She'll also talk about her life, growing up with Cystic Fibrosis.
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