All things Lung Transplant with Jen Weber
Living With Cystic Fibrosis
English - December 05, 2022 05:00 - 28 minutes - 26.5 MB - ★★★★★ - 20 ratingsMedicine Health & Fitness Government cystic fibrosis cf. bonnell foundarion chronic illness positivity personal stories self help advocacy cf community cf modulators cftr Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Attorney Jen Weber is 49 years old and waiting to have her third lung transplant. Weber lived in Indiana until this third transplant, when she had to move to Durham, North Carolina to be near her transplant hospital: Duke University Health. Weber also started a non-profit five years ago that meets inpatient and outpatient needs ( for example: pajama pants, slippers, cell phone chargers). Weber worked for the Indiana Supreme Court for 16 years (in personal and operations) while going through her first transplant. Weber is trying to help us understand the emotional and financial toll a transplant can take on a person, and their family.
As she waits for her third transplant Weber is in need of a living kidney donor. Anyone interested in getting tested can call: 919.613.777.
Something we did not talk about in the podcast is her love of music! Weber is a cellist! She still plays with the Carmel Symphony.
Duke kidney donation application: (Duke kidney transplant phone number 919-613-7777
https://redcap.duke.edu/redcap/surveys/?s=9EHPAAPMFM
Donate to C.O.T.A for Jen's transplant expenses: https://cota.org/campaigns/COTAforJenWarrior
Comfort Finders Foundation: https://comfort-finders.org
For more information on The Bonnell Foundation find us at: https://thebonnellfoundation.org/
Our new CF Familia page: https://thebonnellfoundation.org/familia/en-home/
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Genentech: https://www.gene.com/
Viatris: https://www.viatris.com/en
The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis. You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic
This podcast was produced by JAG in Detroit Podcasts: https://jagindetroit.com/
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Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: [email protected]
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en