The unquestioned support of patient organizations
Journeys through pulmonary fibrosis
English - April 30, 2024 14:43 - 29 minutes - 24.3 MB - ★★★★★ - 5 ratingsMedicine Health & Fitness pulmonary fibrosis ild interstitial lung disease lung fibrosis patient journey rare disease scleroderma sarcoidosis ipf Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
In this episode of the ‘Journeys Through Pulmonary Fibrosis’ podcast, our host Steve Jones sits down with two guests from the USA and Norway to discuss the importance of connecting with people who live with pulmonary fibrosis at different stages of their journey. They also discuss the many different ways in which patient organizations provide support, globally and locally. Hear more from our guests on how patient organizations will continue to fight for all those impacted by this condition.
The importance of connecting with the wider pulmonary fibrosis community.
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.