Shared decision making
Journeys through pulmonary fibrosis
English - November 30, 2022 14:16 - 21 minutes - 17.4 MB - ★★★★★ - 5 ratingsMedicine Health & Fitness pulmonary fibrosis ild interstitial lung disease lung fibrosis patient journey rare disease scleroderma sarcoidosis ipf Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
In our fourth episode, we examine the importance of shared decision making, which helps empower patients to make choices about their disease management in collaboration with their medical teams. We hear from people who are living with pulmonary fibrosis, a wife and care partner and from medical specialists, each underlining the value of shared decision making and providing some examples of this best practice in action.
How shared decision making can draw on wide expertise and support people living with pulmonary fibrosis
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.