Journey into the unknown
Journeys through pulmonary fibrosis
English - January 14, 2022 15:50 - 16 minutes - 13.9 MB - ★★★★★ - 5 ratingsMedicine Health & Fitness pulmonary fibrosis ild interstitial lung disease lung fibrosis patient journey rare disease scleroderma sarcoidosis ipf Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
In the sixth episode of season two, we are joined by our courageous group of guests made up of those living with various pulmonary fibrosis conditions, their care partners and specialized doctors. In this episode, we explore the different and unpredictable ways pulmonary fibrosis can progress and the various approaches our guests have taken to confront the condition head-on. While the unpredictability can make planning for the future a challenge, we’ll hear how it has taught our guests resilience and has given them an opportunity to truly live life in the moment.
How to best deal with an unpredictable and progressive condition
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.