Creating a dream team
Journeys through pulmonary fibrosis
English - April 09, 2021 08:45 - 23 minutes - 19.6 MB - ★★★★★ - 5 ratingsMedicine Health & Fitness pulmonary fibrosis ild interstitial lung disease lung fibrosis patient journey rare disease scleroderma sarcoidosis ipf Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
We are joined by John who spent a decade seeking a correct diagnosis of the rare lung disease, Idiopathic Pulmonary Fibrosis. Listen to him explain the importance of sharing symptoms with your doctor and how he considers his eventual diagnosis to be the beginning of a new journey.
The importance of communication
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.