An optimistic approach
Journeys through pulmonary fibrosis
English - February 24, 2021 13:00 - 33 minutes - 27.3 MB - ★★★★★ - 5 ratingsMedicine Health & Fitness pulmonary fibrosis ild interstitial lung disease lung fibrosis patient journey rare disease scleroderma sarcoidosis ipf Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
We are joined by Jim, who spent nearly three years seeking a correct diagnosis of a rare lung disease called RA-ILD (Rheumatoid Arthritis-Associated Interstitial Lung Disease). Listen to Jim discuss his father’s journey with the same condition and how Jim’s diagnosis changed his perspectives.
How life-changing diagnoses can change perspectives
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.