Advocacy At All Ages
IFOPA Podcast Series
English - April 19, 2021 20:25 - 27 minutes - 50.2 MBNon-Profit Business Science Life Sciences advocacy fop education geneticconditions medical nonprofit research support Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Oh yes, Honey!
Next Episode: Fighting FOP in the Land of the Midnight Sun
In our second podcast of the 2021 Advocacy Series, IFOPA Family Services Coordinator Karen Kirchhoff interviews Amanda Cali, FOP mom, Advisor to the Tin Soldiers Program, Trustee of the Radiant Hope Foundation and Executive Associate on the International Clinical Council on FOP (ICC). Amanda candidly speaks about her experiences raising a child with FOP and shares the parenting strategies she used to empower her children to ensure they grew up with a self-sufficient mindset and were prepared to live successfully on their own. Amanda also discusses different opportunities she gave her sons at different ages (child, teen and young adult years) that helped them eventually become their own best advocate.