Help and Hope Happen Here
446 episodes - English - Latest episode: 5 days ago -This Podcast is going to be about Pediatric Cancer and the need to keep the awareness of this terrible disease in the public eye. My plan is to be able to interview a wide spectrum of people who all have a passion and a stake in finding a way to make the lives of these Pediatric Cancer Patients easier. I will interview oncologists, nurses, recovered patients, parents who have had to oversee their children's cancer fight, heads of Pediatric Cancer Foundations and Organizations , and others who would like to use this forum to advocate for these children.
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Episodes
Holly Reames and Eric Meyer will talk about the Chemotherapy drug Cisplatin which is a very effective treatment against Pediatric Cancer but often causes hearing loss for its patients.
April 14, 2024 15:00 - 44 minutes - 30.7 MBHearing loss is a very well known side effect and long term effect that survivors of Pediatric Cancer must be aware of, especially if they are being treated with Cisplatin during Chemotherapy, which is a very effective medicine in helping to save lives of these children and adolescents . Holly Reames and Eric Meyer, who work at Fennec Pharmaceuticals will talk about the ramifications of this hearing loss, which if it happens, is always permanent.
Mariah Forster Olson and Mary Beth Collins will talk about the critical subject of SURVIVORSHIP on today's podcast and will discuss the toolkit for survivors of Pediatric Cancer and their families to help them get through a very difficult experience.
April 08, 2024 00:00 - 1 hour - 69.9 MBFor the past 3 years Mariah Forster Olson and Mary Beth Collins have been working on a Toolkit to help Pediatric Cancer survivors and their families try and navigate through the period when they have gone past the 5 year mark since their cancer diagnosis, but have many issues to conquer both physically and mentally because of what they went through during their cancer experiences. This toolkit is now available and has already helped many patients and their families who have entered the Survi...
Tabitha Odom will talk about her daughter Sailor who was diagnosed with B Cell Acute Lymphoblastic Leukemia in November of 2022 and is now about halfway through her final maintenance treatment protocol which is expected to be completed in January of 2025.
April 01, 2024 01:00 - 50 minutes - 34.5 MBTabitha Odom thought that her 2 year old daughter Sailor might have the flu when she brought her to a Walk In Clinic in November of 2022 as she had not been feeling well. Later that night Tabitha became worried when she received a phone call at 9:00 PM and said that Sailor needed to go to a hospital emergency room. After that she was sent to UTMB Hospital in Galveston Texas where Tabitha was told that Sailor had B Cell Acute Lymphoblastic Leukemia. Tabitha will talk about Sailor's successf...
Vickie Stevens and Don McCarthy will talk about their son Rio and his current battle with Stage 4 Neuroblastoma which he was diagnosed with in August of 2023
March 28, 2024 01:00 - 53 minutes - 37.1 MBIn April of 2023 Vickie Stevens and Don McCarthy's little son Rio was experiencing a loss of appetite, limping instead of walking, and losing energy. After a stay at a local hospital did not solve the question of what was wrong with Rio, he was transferred to a large hospital in London and was finally diagnosed with Stage 4 Neuroblastoma. Rio is now into his 8th month of treatment and the hope is that he will at some point be able to travel to Memorial Sloan Kettering in New York to take a ...
Abby Wagle met Ella Bresee when she was 12 years old in 2019. They quickly became best friends and then in 2021, Ella was diagnosed with Medulloblastoma. Abby will talk about losing Ella to this disease in 2022 and how she has honored her friend since.
March 21, 2024 13:00 - 44 minutes - 30.7 MBAbby Wagle and Ella Bresee met in 2019 when they played competitive basketball against each other. They quickly became best friends and then in 2021, Ella was diagnosed with the Pediatric Brain Cancer Medulloblastoma. Abby is now a sophomore in high school and will talk about the close friendship that she and Ella had, and how difficult it was when Ella passed away in September of 2022. Abby will talk about the many ways that she has honored her friend since then and will continue to honor h...
Kelly Stevens will talk about her son Charlie and his fight against Acute Myeloid Leukemia, which led to his very unfortunate passing on January 27th of 2021, just 2 days after his 3rd birthday.
March 18, 2024 00:00 - 1 hour - 51 MBAfter little Charlie Stevens was taken to his doctor after he developed a lesion in his right eye, it became apparent that he had too many white blood cells, but an X Ray and ultrasound showed him to be healthy in the early days of 2020. Just six weeks later Charlie was diagnosed with Acute Myeloid Leukemia. A very aggressive treatment protocol led to his remission that year but just before Christmas Charlie relapsed and he passed away on January 27th, of 2021, just 2 days after his 3rd birt...
Brian Burkhardt will talk about his son Oliver who was diagnosed during Covid with Acute Lymphoblastic Leukemia, and the Non-Profit called the Oliver Patch Project that he started by accident and is in all 50 states.
March 14, 2024 00:00 - 1 hour - 49.2 MBBrian Burkhardt and his family left their home in Miami and went to the Florida Keys during Spring break in early in 2020 where they had to isolate because of Covid. Two days after they returned home his son Oliver was having trouble breathing which sounded like a Covid issue, but turned out to be the Pediatric Blood Cancer Acute Lymphoblastic Leukemia. Brian will talk about this diagnosis, Oliver's successful treatment , and the more than creative Non-Profit called the Oliver Patch Project...
Emily Gordon and her daughter Vara James will talk about Vara's battle with Wilms Tumor which is a kidney cancer, her recovery, and the Rock Cancer program that they helped start .
March 10, 2024 23:00 - 1 hour - 43.5 MBWhen Vara James was 9 years old in 2016 she was diagnosed with the Kidney Cancer Wilms Tumor. Now 17 years old, Vara has been cancer free since February of 2018 and has many options to look at as she is able to live as normal of a life as possible. Vara and her mother Emily Gordon will talk about these past 8 years which include helping to start the Rock Cancer program along with Neuro Oncologist Dr. Carl Koschmann, which gives Pediatric Cancer patients the opportunity to gain confidence an...
Kim Denice will talk about being a Pediatric Cancer survivor of Hodgkins Lymphoma which was diagnosed when she was a high school senior in 2013, and her current work at the Leukemia and Lymphoma Society
March 07, 2024 14:00 - 56 minutes - 38.9 MBIt took 5 years after waking up each day feeling tired and sick, but Kim Denice was finally diagnosed with Hodgkins Lymphoma as a senior in high school in 2013. Kim will talk about the struggles that she had while she was in treatment and even to this day, as she has been cancer free for over 10 years. Kim will also talk about her involvement in the Leukemia and Lymphoma Society and the fact that she is able to live her life in the best manner possible.
Christen Gray will talk about her son Finn who was diagnosed with Ewings Sarcoma when he was 5 years old in 2018 and passed away on January 21st of 2020. Christen will also discuss her Finn's Fighter's Non- Profit
March 04, 2024 02:00 - 57 minutes - 39.8 MBChristen Gray's 5 year old son Finn complained of back pain in the day's before he was to go to kindergarten in 2018. As Christen drove Finn to school for his first day, his back was hurting so much that he had trouble sitting in his car seat. Just a few days later Finn was diagnosed with the Pediatric Bone Cancer Ewings Sarcoma. Christen will talk about Finn's all too short life which ended on January 21st of 2020, and the non- profit Finn's Fighters which her family started in 2019 and its...
Bryan and Shauna Smith will talk about their son Oliver who passed away from Ewings Sarcoma one day after his 12th birthday in 2019, and the Ollie Bots Project that was started in his honor.
February 28, 2024 22:00 - 1 hour - 51 MBWhen 10 year old Oliver Smith was trying out for his under 11 hockey team in the fall of 2016 his father noticed that Oliver was not as agile, fast, and flexible as he normally was. He also complained of pain in his groin area. Other symptoms arrived and in early 2017, Oliver was diagnosed with Ewings Sarcoma which was already at Stage 4. Oliver fought his battle for nearly 2 and half years before passing away on June 27th of 2019, just 1 day after his 12th birthday. Oliver's parents Bryan a...
Shauna Falvey will talk about her 6 year old daughter Mia who was diagnosed with Medulloblastoma in the summer of 2022 and has been dealing with one obstacle after another during her 20 month treatment protocol.
February 26, 2024 02:00 - 45 minutes - 31.3 MBIt took a confirmation from St. Jude Children's Research Hospital to finally confirm that 6 year old Mia Falvey had Medulloblastoma after waiting for an official diagnosis for more than 30 days. Since the summer of 2022 Mia has been under treatment for this most common form of Pediatric Brain cancer and is waiting for an upcoming MRI which will tell the doctors what her next treatment protocol will look like.
Eliy Simmer was diagnosed with Ewings Sarcoma on May 12th of 2021 and will talk about her journey which began when she was a 14 year old High School freshman. Eliy is now a High School Senior and her future looks to be unlimited.
February 22, 2024 14:00 - 46 minutes - 31.9 MBBothered by pain in her shoulder blade since the fall of 2020 while she was a member of her high school volleyball team, 14 year old Eliy Simmer saw many doctors but did not get diagnosed with Ewings Sarcoma until May 12th of 2021. Eliy spent the rest of that year undergoing treatment for this form of pediatric cancer and in January of 2022 her treatment protocol successfully ended. Now a high school senior, Eliy is looking forward to the next steps in her life in which she has a variety of ...
Donna DeSousa Schmidt will talk about her daughter Maggie who was diagnosed with Malignant Rhabdoid Tumors when she was 16 years old in 2016 and passed away on June 1st of 2017, just 6 weeks after her 17th birthday.
February 19, 2024 01:00 - 52 minutes - 35.8 MBMaggie Schmidt was a 16 year old seemingly healthy teenager when she competed in a Tough Mudder race in the summer of 2016. 18 days after that, Maggie started experiencing symptoms that would lead to a diagnosis of Malignant Rhabdoid Tumors in October of that year. As she tried to overcome whatever setbacks came her way, Maggie had one bad break after another and passed away from this form of Pediatric Cancer on June 1st of 2017, just 6 weeks after her 17th birthday. Her mom Donna will talk...
Parker Watson is a 10 year old survivor of Acute Lymphoblastic Leukemia and will talk along with Noah Janfaza about Team Impact and Parker's association with the Harvard Men's Hockey Team because of that organization
February 15, 2024 01:00 - 37 minutes - 25.5 MBParker Watson was diagnosed with Acute Lymphoblastic Leukemia when he was 4 1/2 years old and is now a Pediatric Cancer survivor. His parents Michelle and Mike found out about Team Impact and Parker was connected with the Harvard Men's Hockey Team, has been their Team Impact Representative since January 31st of 2023. Noah Janfaza in his 3rd year of being the Student Manager for the Harvard Hockey team and is also the Liason between Team Impact and Harvard. Parker and Noah will both talk abo...
Michelle Watson will talk about Team Impact who connects Kids who have serious illnesses or disabilities with College Sports teams, as they did with her son Parker who is a Pediatric Cancer survivor.
February 11, 2024 20:00 - 38 minutes - 26.2 MBMichelle Watson's 10 year old son Parker was diagnosed with Acute Lymphoblastic Leukemia when he was 4 1/2 years old in 2017. Now 10 years old, Parker was connected through Team Impact with the Harvard Men's Hockey team and he has been an official Team Member of the Crimson since January 31st of 2023. Michelle talks about how much Team Impact has meant to her family and how much joy that Parker has felt being with a group of college athletes that take their role of accepting Parker very seri...
Amanda Cruz will talk about her son Zioniah, who passed away on September 19th of 2023 after a tortuous battle with Lymphoma in which nothing went right for him during his treatment
February 07, 2024 21:00 - 1 hour - 43.4 MBAmanda Cruz has the difficult task in explaining all the things that went wrong during her son Zioniah's treatment for Lymphoma which started in late 2022 and lasted until his passing on September 19th of 2023. Amanda will talk about the myriad of mistakes that were made medically which led to Zioniah unnecessarily being in a great deal of pain during much of his treatment protocol. Amanda will also discuss the lack of support that she has received since Zioniah passed away as she is not eve...
Dominique Epthorp's son Ashton was diagnosed with T Cell Acute Lymphoblastic Leukemia after his original diagnosis of A Typical Pneumonia in 2022 and is now 8 months into his Maintenance program.
February 05, 2024 16:00 - 56 minutes - 38.6 MBAfter an original diagnosis of A Typical Pneumonia after a persistent cough sent Dominique Epthorp's son Ashton to see his doctor in the late summer of 2022, a recheck of his symptoms after Ashton had a shortage of breath after running, showed that his real diagnosis was T Cell Acute Lymphoblastic Leukemia. Ashton has been in his Maintenance program for 8 months and is looking forward to ringing the bell at his hospital, signifying No Evidence of Disease on September 9th.
Dominique Epthorp's son Ashton was diagnosed with T Cell Acute Lymphoblastic Leukemia in September of 2022 and is now a little over a year into his Maintenace program which he hopes to complete in September.
February 05, 2024 16:00 - 56 minutes - 38.6 MBAfter an original diagnosis of A Typical Leukemia after a persistent cough sent Dominique Epthorp's son Ashton to see his doctor in the late summer of 2022, a recheck of his symptoms after Ashton had a shortage of breath after running, showed that his real diagnosis was T Cell Acute Lymphoblastic Leukemia. Ashton has been in his Maintenance program for a little over a year and is looking forward to ringing the bell at his hospital, signifying No Evidence of Disease on September 9th.
Nora Schmidt will talk about her daughter Maddie who went to her eye doctor for a regular appointment which went well, but the very next day she developed an issue with her right eye which led to her passing from DIPG on December 31st of 2022
February 01, 2024 02:00 - 56 minutes - 38.8 MBNora Schmidt noticed that her daughter Maddie's right eye was crossing inward, one day after she had gone to her eye doctor for a simple eye appointment in which everything looked fine. This situation, which according to her Eye Doctor and a Pediatric Opthamologist could have been a common condition known as Strabismus, but instead turned out to be DIPG. Nora will talk about Maddie's journey which lasted for just over 10 months before her passing from this Pediatric Brain Cancer on December...
Amber Friesen will talk about her daughter Taylor and her fight with Aveolar Rhabdomyosarcoma which was diagnosed just before the Pandemic began in 2020 and very sadly ended with her passing in December of 2021
January 28, 2024 19:00 - 45 minutes - 31.1 MBAmber Friesen was told by her soon to be 10 year old daughter Taylor that she had what looked to be either a lump or a cyst on her right hand. Unfortunately what this turned out to be was the Pediatric Cancer Aveloar Rhabdomyosarcoma. On today's podcast Amber will talk about her beloved daughter who was diagnosed with this cancer in early 2020 and passed away in December of 2021. Amber will also talk about the non-profit TAYLOR'S DREAM that she started to honor the life of Taylor.
Dr. Daniel Morgenstern will talk about his expert knowledge on Neuroblastoma and his work in Drug Development for Pediatric Cancer patients on today's podcast.
January 25, 2024 15:00 - 51 minutes - 35.7 MBDr. Daniel Morgenstern grew up and was educated in England and went to the University of Cambridge as part of his medical education. In 2016 he moved to Toronto where he became a Staff Oncologist at Sick Kids Hospital in Toronto with his expertise being in the Pediatric Cancer Neuroblastoma. While working diligently on this cancer, Dr. Morgenstern is also involved in drug development in trying to find new novel therapies that will help Pediatric Cancer patients who need new medicines which a...
Marta Blanco will talk about her daughter Sofia who was diagnosed with Non Hodgkins Lymphoma when she was 4 years old in 2003, but passed away just after her 13th birthday in April of 2012 from the shocking side effect of Heart Failure
January 22, 2024 01:00 - 55 minutes - 38.1 MBHaving a side effect or long term effect after surviving a battle with Pediatric Cancer is not at all surprising. On today's podcast Marta Blanco will talk about her daughter Sofia, who after being diagnosed with Non Hodgkins Lymphoma in 2003 when she was 4 years old, suffered from Heart Failure during her treatment for this form of Pediatric Cancer. Although Sofia had recovered from her Lymphoma battle and managed to have a good quality of life for a number of years, she passed away from t...
Kurt Myers and his wife PJ will talk about their daughter Ailani and the High Risk- Poor Prognosis battle with Acute Lymphoblastic Leukemia which began when their daughter was 2 years old in 2019 and continues today in 2024.
January 18, 2024 12:00 - 1 hour - 50.4 MBKurt Myers and his wife PJ's daughter Ailani was originally diagnosed with Acute Lymphoblastic Leukemia when she was 2 years old in 2019. Because of a genetic mutation, her diagnosis was changed several weeks into her treatment to ALL which was determined to be high risk with a poor prognosis. Kurt and PJ will talk about what Ailani has had to go through including many relapses, 2 Bone Marrow Transplants, and treatment at some of the leading Pediatric Cancer hospitals in the United States. A...
Ryan Callahan was a star player in the National Hockey League for over a decade and his wife Kyla will discuss with great passion their Ryan Callahan Foundation which gives so much to Pediatric Cancer patients and their families.
January 15, 2024 02:00 - 1 hour - 49.4 MBRyan Callahan began his outstanding National Hockey League career with the New York Rangers during the 2006-2007 season, and during the 2014 season went to the Tampa Bay Lightning. While in Tampa, he and his wife Kyla started the Ryan Callahan Foundation to help Pediatric Cancer patients and their families get as much enjoyment during their cancer journey's as possible. Kyla will talk about their Foundation with incredible passion on today's podcast.
Kathy and Joe Arabia will talk about their daughter Anna who passed away from the Pediatric Brain Cancer Gliomatosis Cerebri in 2013 and will discuss their AYJ fund that they established in honor of Anna
January 11, 2024 14:00 - 1 hour - 48 MBBefore walking upstairs in her home in 2009, 13 year old Anna Yan Ji slipped and fell and afterwards, said that she felt funny. Shortly thereafter it was discovered that Anna had suffered a seizure and this seizure led to a diagnosis of the very rare Pediatric Brian Cancer, Gliomatosis Cerebri . Anna's parents, Kathy and Joe Arabia will talk about Anna and her cancer diagnosis, which lasted for 3 1/2 years before her eventual passing. They will also talk about their AYJ Fund which will be c...
Elena Bliss will talk about the very difficult battle that her daughter Brittney fought from May of 2022 until June of 2023 before passing away from Embryonal Rhabdomyosarcoma just after her 5th birthday.
January 08, 2024 02:00 - 1 hour - 48.1 MBBrittney Bliss was diagnosed with Embryonal Rhabdomyosarcoma just after her 4th birthday in 2022. Her mother Elena will talk about the 13 month battle in which her beloved daughter never really caught a break, despite the fact that she was treated at some of the leading Pediatric Cancer hospitals in the country including Boston Children's Hospital and Children's Hospital of Philadelphia. Brittney passed away from this form of Pediatric Cancer on June 6th of 2023, just 10 days after her 5th b...
Lysi Kinyon and Sara Ross McHenry are both long term survivors of Neuroblastoma and will talk about their experiences for more than 20 years of trying to deal with the difficult long term side effects from this form of Pediatric Cancer.
January 04, 2024 14:00 - 47 minutes - 32.4 MBLysi Kinyon was diagnosed with Neuroblastoma before she was even born and Sarah Ross McHenry was diagnosed with this form of Pediatric Cancer when she was 8 years old. Lysi and Sarah will talk about the many long term side effects that both of them have had to experience for more than 20 years and how, even with all of their difficulties, they have been able to live their best lives possible, which includes giving back to others.
Martine Kalbhenn will talk about her son Jackson who was diagnosed at 5 years old in early August of 2023 with the Bone Cancer Ewings Sarcoma and is successfully going through his treatment at the Barbara Bush Children's Hospital in Portland Maine.
January 01, 2024 16:00 - 47 minutes - 32.6 MBMartine Kalbhenn was 3000 miles away at her family's home in Kennebunk, Maine when her 5 year old son Jackson tripped and fell while running and hurt his leg badly while visiting his Grandmother in California. Martine received a phone call from her husband Kyle and made plans to immediately travel out west. Jackson's fall was far from normal, as he was diagnosed with the Bone Cancer Ewings Sarcoma. Martine will talk about that time period in which his fall occurred in late July, and how he ...
Jen Gaspar will talk about her son Nick who was diagnosed with a Mixed Germ Cell Brain Tumor in May of 2021 as he was completing his 8th grade academic year, and passed away from this form of Pediatric Brain Cancer on May 19th of 2023.
December 28, 2023 13:00 - 49 minutes - 34.2 MBNick Gaspar was a 14 year old 8th grader who became lethargic and his normally upbeat personality became withdrawn in May of 2021. He also developed a tremor in his left hand and after being taken to his pediatrician, was quite quickly transported to Boston Children's Hospital where he was diagnosed with a Mixed Germ Cell Brain Tumor. Nick's mother Jen will talk about the next 2 years of Nick's life, which originally showed promise after his tumor was completely removed during a 12 hour Cran...
Sophia Takla was crowned Miss Oregon in 2022 and had a top 10 finish in the 2023 Miss America Pageant. Sophia is also a huge advocate for the cause of Pediatric Cancer as she will explain on today's podcast.
December 21, 2023 15:00 - 50 minutes - 34.4 MBSophia Takla's 8 year old cousin Tristan passed away from Medulloblastoma 15 years ago when Sophia was 8 years old, as was Tristan. Sophia will talk about that period of time and what she has been doing as a Pediatric Cancer advocate since his Tristan's passing and will continue to do for many years to come. Sophia will also discuss her being crowned Miss Oregon in June of 2022 and her top 10 finish in the Miss America Pageant in 2023. Sophia has accomplished so much in her life already an...
Carol Pound will talk about her son Max who was diagnosed with the Pediatric Brain Cancer Diffuse Hemispheric Glioma when he was ten years old , fought his battle in the best manner possible, but passed away on January 11th of 2023.
December 17, 2023 15:00 - 46 minutes - 31.7 MBMax Pound was an outstanding young athlete and full of life until 2020 when his mother Carol, who in her professional life was involved with early oncology drug development, noticed some concerning health signs and took Max to get them checked out. Shortly after that Max was diagnosed with Diffuse Hemispheric Glioma, a very rare form of Pediatric Brain Cancer at the age of 10. Through much of 2021 Max was feeling well enough to return to his athletic endeavors and to school when possible, ...
Autumn Gentry will talk about her daughter Isla who was diagnosed with Acute Myeloid Leukemia when she was 2 1/2 years old, and had almost nothing go right for her during her 13 month battle before her passing in August of 2020.
December 11, 2023 02:00 - 1 hour - 47.6 MBAfter returning from a trip to the Zoo in 2019 with her then 5 year old son Sawyer and her 2 1/2 year old daughter Isla , Autumn Gentry noticed a number of freckles on Isla's body. After being reassured by Isla's Pediatrician that she was a "healthy child", her doctor ordered blood tests just to be sure that everything was okay, which it was not. Isla was quickly diagnosed with the Pediatric Blood Cancer Acute Myeloid Leukemia. After a relapse 5 month's after her diagnosis, Isla was preparin...
High School Students Dustin Liang and Amine Bentahar will talk about Dustin's Leukemia diagnosis, and the Dustin Strong Organization that Amine started in his friend's honor on today's podcast
December 04, 2023 01:00 - 38 minutes - 26.3 MBHigh School senior Dustin Liang was diagnosed with T Cell Acute Lymphoblastic Leukemia on June 4th of this year and in response to that his friend Amine Bentahar, a sophomore at his high school, started the Dustin Strong organization in honor of Dustin's Pediatric Cancer battle. Dustin will talk about his treatment and how he is doing and Amine will discuss what has already happened with the organization and the plans that he has for it going forward.
Grainne Owen will talk about her son Killian who passed away in 2003 from Acute Lymphoblastic Leukemia and since then, her Curing Kids Cancer Non-Profit has raised $27 million dollars to help in this Pediatric Cancer fight.
November 30, 2023 11:00 - 1 hour - 51.3 MBGrainne Owen and her husband Clay started their Curing Kids Cancer Non-Profit after their son Killian passed away from Acute Lymphoblastic Leukemia in 2003. Grainne will talk about her beloved son and his fight against this most common form of Pediatric Cancer, and her Non-Profit which has raised $27 million dollars to help these kids and their families, with many more dollars to be raised in the coming years.
Stacy Kreizman will talk about her role with the Leukemia and Lymphoma Society and that non-profits recent major initiative to helping children who have been diagnosed with Pediatric Blood Cancers.
November 24, 2023 16:00 - 49 minutes - 34.1 MBThe Leukemia and Lymphoma Society has been the largest Non-Profit fundraiser of Blood Cancer research for nearly 75 years. On today's podcast I will speak with Stacy Kreizman who is the Senior Manager of Patient and Community Outreach for this Non-Profit in New Jersey and Northeastern Pennsylvania. Stacy will talk about her role in this non profit in which she truly is a Jack Of All Trades, and will also discuss the $175 million dollar new initiative that the Leukemia and Lymphoma Society is...
Colleen Tanaka will talk about her 9 year old son Tenzin who was diagnosed with T Cell Acute Lymphoblastic Leukemia in June of 2022, went through various difficulties early in his treatment, and at this point is cancer free.
November 19, 2023 17:00 - 1 hour - 41.6 MBWhen Colleen Tanaka's then 8 year old son Tenzin was not feeling well and had been showing troubling symptoms in the spring of 2022, Colleen took him to his Pediatrician , an Ear Nose and Throat Specialist, an Allergist , and to an Emergency room Doctor with no blood work being taken. Finally, Tenzin went to Stony Brook Hospital in New York, blood work was taken, and he was diagnosed with T Cell Acute Lymphoblastic Leukemia in June of 2022. Colleen will talk about Tenzin's 17 month treatmen...
Leslie Jared and Lauren Kirages will talk about their roles as Nurse Navigators who work with DIPG patients and their families, doing whatever is necessary and possible to try to ease the burden of the worst form of Pediatric Brain Cancer.
November 16, 2023 01:00 - 1 hour - 47.4 MBBecoming a Nurse and caring for Pediatric Cancer patients is a very difficult job in itself and becoming a nurse and working with DIPG patients and their families makes their jobs only more difficult. On today's podcast Nurse Navigators Leslie Jared and Lauren Kirages will talk about their experiences working with these kids who have been diagnosed with this type of Brain Cancer which, as we know, still does not have any survivors after a certain time period. Leslie and Lauren will speak ve...
Breanna and Matt Meo will talk about their son Landon who passed away after a 21 month battle with Medulloblastoma on December 17th of 2022.
November 13, 2023 13:00 - 58 minutes - 40.5 MBAfter being diagnosed with Medulloblastoma in March of 2021, Breanna and Matt Meo's 8 year old son Landon was admitted to St. Jude Children's Research Hospital to begin a clinical trial which was working well until Landon relapsed in March of 2022. Breanna and Matt will talk about the difficult treatment that Landon went through as well as some good times, especially in the first few months of 2022 when he was able to attend 3 Sacramento Kings basketball games, meet the players from that tea...
Grace Wethor will talk about her amazing life as a 22 year old young woman who is an Award Winning Film Director, a Best Selling Author, an Actress, the owner of her own Media and Marketing Company, and a nearly 9 year survivor of Brain Cancer.
November 08, 2023 21:00 - 53 minutes - 36.5 MBGrace Wethor began her life as a self described "Super Active Child" as she was a Dancer, a member of a World Championship Synchronized Figure Skating Team at the age of 9, then joining the Circus when she was 11, hanging by her toes 30 feet in the air on a trapeze. When she was 13 years old, Grace was diagnosed with a Brain Stem Glioma which is a form of Pediatric Brain Cancer which looks a great deal like DIPG but has never been diagnosed as such. Grace was diagnosed on January 9th of 20...
Sandy Hecker will talk about her 22 years working with the Food and Drug Administration in the fight against both Pediatric and Adult Cancer, and her visit to Curefest where she met parents who are so involved in the cause of Pediatric Cancer.
November 06, 2023 16:00 - 53 minutes - 36.7 MBFor the past 22 years Sandy Hecker has been working with the Food and Drug Administration to help in the fight against both Adult and Pediatric Cancer. Sandy will talk about her positive thoughts involving this large organization and that they are committed to helping in every way possible to helping these families deal with such a difficult problem. Sandy will talk about what this organization faces as far as obstacles are concerned, their involvement in clinical trials, and their work in ...
Grace Bronleewe, is a singer and songwriter who is known by the name of GREYLEE on all of her platforms. She is also very connected to the Pediatric Cancer community and will talk about her amazing performance of the song BRAVE on today's podcast.
October 29, 2023 15:00 - 51 minutes - 35.2 MB19 year old Grace Bronleewe is a very accomplished singer/songwriter from Nashville, Tennessee. Known as GREYLEE on all of her musical platforms, Grace will talk about her very strong connection to Pediatric Cancer, as she lost friends Treven in May of 2020, and Noah in January of 2021 to Leukemia and Brain Cancer respectively. Grace will talk in depth about Treven and Noah and her song BRAVE that she wrote at the request of her friend Noah's family, and performed beautifully before a stan...
Amanda DeCicco will talk about giving birth to her son Jayden while a high school senior, sucessfully being able to raise her newborn and completing her studies, and then dealing with Jayden's diagnosis of DIPG when he was 6 years old
October 25, 2023 15:00 - 49 minutes - 33.9 MBAmanda DeCicco's son Jayden was born while Amanda was a high school senior. After completing her studies and raising Jayden , he was diagnosed with DIPG at the age of 6. On today's podcast Amanda will talk about what her beloved son went through before his passing in April of 2015, how she turned her grief into becoming a Born Again Christian, writing a book called THE HERO WITHIN, and helping other families who are in their own Pediatric Cancer battles.
Joanne Whall will talk about her son Kieran who was diagnosed with B Cell Acute Lymphoblastic Leukemia this past February, some of the early difficulties he went through, and how Kieran is doing now.
October 23, 2023 01:00 - 1 hour - 42.9 MBJoanne Whall's son Kieran was diagnosed with B Cell Acute Lymphoblastic Leukemia when he was 4 years old this past February. On today's podcast Joanne will talk about what Kieran has been through over the past 8 months, including such difficulties as having a severe allergic reaction to a drug he was taking, and still needing blood thinner shots because of a clot that he developed in his jugular vein. Kieran is 2 months away from approaching the maintenance part of his recovery program, whic...
Robin and Bella Cervantes will talk about Bella's diagnosis of Retinoblastoma when she was 2 1/2 years old in February of 2015, her very successful recovery, and what Bella is now doing for the cause of Pediatric Cancer.
October 18, 2023 14:00 - 46 minutes - 31.9 MBAfter reading on facebook about a little girl that had a "glow" in her eye which turned out to be eye cancer, Robin Cervantes looked at pictures of her daughter Bella and realized that she had a very similar glow in her right eye. The next morning, Robin began the process that led to Bella, then 2 1/2 years old to the diagnosis of the eye cancer Retinoblastoma. Robin and Bella will both talk about how Bella, now 11 years old, was able to make a very successful recovery from this eye cancer ...
Amanda Hawkins will talk about her 7 year old daughter Ashton who was diagnosed with Medulloblastoma on August 22nd of this year and faces a number of challenges as she moves through her cancer battle.
October 16, 2023 01:00 - 50 minutes - 34.5 MBOn August 22nd of this year, exactly 8 weeks before today's podcast is being published, 7 year old Ashton Hawkins was diagnosed with the Pediatric Brain Cancer Medulloblastoma. On today's podcast, Ashton's mom Amanda will talk about what Ashton has been through over the past 8 weeks and what challenges that she faces as her treatment protocol is still in its early stages.
Olivia Zhang started her non - profit CANCER KIDS First when she was 14 years old in 2019. Now a freshman at Harvard, her non-profit is now the largest Youth Led Pediatric Cancer Non-Profit IN THE WORLD.
October 11, 2023 20:00 - 58 minutes - 40.2 MBOlivia Zhang started her incredible journey in the cancer world back in 6th grade, when first her grandfather and then her 7th grade after school teacher were diagnosed with cancer and passed away. Olivia was very close to both of them and this led to her starting the non-profit CANCER KIDS FIRST as a 14 year old in 2019. Her non-profit is now the largest Youth Led Pediatric Cancer Non-Profit in IN THE WORLD. Cancer Kids First has 30,000 world wide volunteers, has impacted 8000 Pediatric Ca...
Jordan and Scott Arogeti will talk about their SUPPORT NOW Organization on today's podcast. This organization makes it a simple process for people who want to help those in need to receive support in many ways.
October 09, 2023 01:00 - 57 minutes - 39.8 MBJordan and Scott Arogeti came up with a method to make it as easy as possible for people who wanted to support those in need to find a simple process to do so. This process is known as SUPPORT NOW, an organization that has been fully open for less than one month. SUPPORT NOW is already getting great feedback from individuals who have used this easy way to give what they can to families and individuals who need whatever help they can get through the kindness of others.
Chrystie Blankenship will talk about adopting her daughter Reese after she was abused by biological family members, and her subsequently being diagnosed with DIPG in 2019 before passing away in 2023
October 05, 2023 00:00 - 52 minutes - 35.8 MBChristie Blankenship and her husband decided to adopt 16 month old Reese in 2017 after she was so abused by biological family members that Reese was unable to to walk, talk, or see. 2 years later Reese was diagnosed with DIPG on May 29th of 2019, and exactly 4 years later on May 29th of this year she passed away from this dreaded form of Pediatric Brain cancer. This is a truly incredible story of a mother who did everything possible to make a life for her daughter that was worth living.
On today's podcast Hannah and and her mother Priscilla will talk about Hannah's diagnosis of Acute Lymphoblastic Leukemia when she was 2 years old in 2003, and about her life since which has seen Hannah graduate from Texas Tech University in 2022
October 02, 2023 00:00 - 56 minutes - 38.5 MBHannah Gilbert was diagnosed with Acute Lymphoblastic Leukemia when she was 2 years old in January of 2003. On today's podcast, Hannah and her mother Priscilla will talk about what Hannah went through in the early stages of her cancer battle, and how she has been able to lead a healthy and productive life as she graduated from Texas Tech University with a degree in Communications in 2022. It is always great to see a Pediatric Cancer diagnosis be defeated by a patient who is moving on with wh...