Michele Manion, Primary Ciliary Dyskinesia Foundation

We present another example of how people can be harmed by misleading messages about medical research. Michele Manion leads a rare disease advocacy group, the Primary Ciliary Dyskinesia Foundation. She has seen how people with rare diseases may hang on every word of possible hope. Recently a medical journal article touched off a wildfire among people with PCD in their families, but she thought it was misleading. Hear her talk about the reality of how people may be harmed by the spread of poorly-worded research news. See our broader blog post at: http://www.healthnewsreview.org/?p=46051