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Words Matter: The Patient Perspective of Language Used on Social Media
Healthcare Unfiltered
English - December 15, 2020 12:24 - 41 minutes - 76.2 MB - ★★★★★ - 125 ratingsScience Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Real-World Evidence and Value-Based Care in the Academic World
Next Episode: Advances in Multiple Myeloma From the ASH Annual Meeting
Laura Lee (@lauraelee), JD, a lawyer by training and journalist in North Carolina, brings her unique perspective to the show to discuss how language used on social media to describe the outcomes of clinical trials and the tolerance of therapies in a patient population can be damaging to patients on an individual level. She expresses some of her larger concerns in the way medical information is displayed and discussed online, including the tone that is used, how quality of life measures fall short in providing value for individual patients, and the lack of compassionate language used in studies that are poorly conducted.