Health Affairs Narrative Matters
45 episodes - English - Latest episode: about 1 year ago - ★★★★★ - 6 ratingsPersonal essays from the front lines of care
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Episodes
Abortion Care Is Essential Medical Care
April 17, 2023 05:00 - 20 minutes - 18.7 MBAn abortion care provider shares stories from the front line and urges physicians to defend abortion care access within their communities. Read by author Rachel Jensen. If you enjoy this essay, order the Health Affairs February 2023 issue.
Keeping Quiet About Genetic Risk
March 29, 2023 05:00 - 23 minutes - 22 MBFailing to protect people at risk for genetic disease from discrimination may have a silencing effect and erode trust in the patient-provider relationship. Read by author Susanna Smith. This article is a reworked excerpt from an unpublished book manuscript. If you enjoy this essay, order the Health Affairs March 2023 issue.
Understanding Pandemic Experiences Among America’s Elders
February 09, 2023 06:00 - 29 minutes - 27.4 MBOlder Americans’ experiences of the COVID-19 pandemic, including social isolation and loneliness, generosity, and resilience, must be studied and addressed. Read by authors Louise Aronson and Ashwin Kotwal. If you enjoy this essay, order the Health Affairs December 2022 issue.
Standing Up For My Sister
October 14, 2022 05:00 - 27 minutes - 25 MBIntegrating family caregivers into the health care team is particularly important for patients with intellectual disabilities. Read by author Duke University's Courtney Van Houtven. If you enjoy this essay, order the Health Affairs theme issue on disability and health.
A Health System That Won't Learn From Its Mistakes
September 28, 2022 05:00 - 21 minutes - 19.4 MBWhen a patient dies from a medical error, there often is no recourse for the family. Read by author Chandra Keller. If you enjoy this essay, order the September 2022 Health Affairs issue.
Echoes of Trauma: Post-Intensive Care Syndrome
August 31, 2022 05:00 - 20 minutes - 19.1 MBPost–intensive care syndrome affects many patients discharged from the acute care setting. Read by author Joanna Bayes. If you enjoy this essay, order the August 2022 Health Affairs issue.
As Hospitals Restrict Visitors, What Constitutes A ‘Good Death’?
June 29, 2022 05:00 - 28 minutes - 26.1 MBDuring the COVID-19 pandemic, a narrow view of patients’ and families’ preferences has led to the unjust application of policies meant to accommodate dying patients and their families. Read by author Nora Osman Segar from Yale New Haven Hospital and Yale Medical School. If you enjoy this essay, order the June 2022 Health Affairs issue.
Halfway Around The World, Echoes Of Physician Moral Injury
May 12, 2022 05:00 - 22 minutes - 20.9 MBA physician seeks respite from the injustice of US care delivery but encounters familiar signals of system failure abroad. Read by author Jason Prior. If you enjoy this essay, order the May 2022 Health Affairs issue.
Surviving Two Pandemics
March 17, 2022 05:00 - 25 minutes - 23.1 MBA Washington insider discusses lessons learned from communicating about the HIV/AIDS pandemic and current failures to talk effectively about COVID-19. Read by author Richard Sorian from 340B Health. If you enjoy this essay, order the March 2022 Health Affairs issue.
Honoring Dr. Shalon Irving, A Champion for Health Equity
February 14, 2022 06:00 - 32 minutes - 29.8 MBShalon Irving’s 2017 death brought national attention to maternal mortality among Black women in the US. This essay remembers her life and legacy. Read by Wanda Irving, chair of the board of Dr. Shalon’s Maternal Action Project. If you enjoy this essay, order the February 2022 Health Affairs Racism and Health theme issue.
After A Death, Bringing Stillbirth Prevention To The US
January 26, 2022 06:00 - 21 minutes - 19.5 MBA mother whose son was stillborn at thirty-six weeks is working to import stillbirth prevention policies from abroad. Read by author Marny Smith, assistant director of Graduate Career Services at the Austin W. Marxe School of Public and International Affairs at Baruch College. If you enjoy this essay, order the January 2022 Health Affairs issue.
To Uncover My Mother's Genetic Disorder, I Had To Lead The Way
December 17, 2021 06:00 - 24 minutes - 22.2 MBA genetic counselor uses her own resources to identify the root cause of her mother’s changing personality. Read by author Shivani Nazareth, certified genetic counselor and product manager at Invitae, and a visiting lecturer at the Icahn School of Medicine at Mount Sinai. When Nazareth’s mother became ill, symptoms pointed to dementia but potentially something more, and she suggested genetic testing to find the root cause of her mother’s illness. The fields of genomics and prec...
Opening Up About My Struggle With Recurring Depression
November 29, 2021 06:00 - 25 minutes - 23.1 MBA health care leader shares her story of living with major depression and calls for better treatments. Read by author Nora Super, senior director of the Milken Institute Center for the Future of Aging and the executive director of the Milken Institute Alliance to Improve Dementia Care. “I decided to share my story because I think so many of us who live with depression live in the shadows,” Super says. “We’re afraid to tell our stories because of the tremendous stigma associated wit...
Perinatal Mental Illness Nearly Ended My Life
October 22, 2021 05:00 - 26 minutes - 23.9 MBA psychiatry professor’s recovery from perinatal depression drives her research to facilitate practice and policy change. Read by author Kara Zivin, a research career scientist at the Veterans Affairs Ann Arbor Healthcare System, and a senior health researcher at Mathematica. Order the October Perinatal Mental Health Theme Issue.
‘Long COVID’: Making The Invisible Visible
October 01, 2021 05:00 - 27 minutes - 24.8 MBAfter recovering from acute COVID-19 infection, a physician is stricken with the debilitating symptoms of long COVID. Read by author Maria Victoria Bovo, a pediatric gastroenterologist at the Hospital Germans Trias i Pujol, in Badalona, Spain. Order the September issue of Health Affairs.
"Long COVID": Hacer Visible Lo Invisible
October 01, 2021 05:00 - 24 minutes - 22.7 MBDespués de recuperarse de una infección aguda por COVID-19, un médico sufre los síntomas debilitantes del COVID prolongado. Leído por la autora María Victoria Bovo, gastroenteróloga pediátrica del Hospital Germans Trias i Pujol, en Badalona, España. Solicite la edición de septiembre de Health Affairs.
'Remain In Mexico': Stories Of Trauma And Abuse
July 21, 2021 06:00 - 27 minutes - 25.1 MBTwo families’ stories—a separation at the border and an assault in a migrant shelter—show the horrific dimensions of US migration policy. Read by co-author Alfonso Mercado from the University of Texas Rio Grande Valley. Order your copy of the July 2021 issue of Health Affairs.
As a mother with COVID-19, I faced stigma and shame
June 23, 2021 06:00 - 16 minutes - 15.1 MBChildbirth can be an extremely stressful time in any period. Imagine delivering a baby during a global pandemic, just hours after testing positive for COVID-19 despite taking public health precautions. In this episode of the Narrative Matters podcast, Sara Edmond talks about testing positive for COVID-19 shortly before the birth of her daughter, and facing suspicion and stigma from her providers as a result. Edmond, a clinical psychologist at the Veterans Affairs Connecticut Heal...
The hidden curriculum of hospice: die fast, not slow
May 13, 2021 06:00 - 24 minutes - 22.2 MBHospice care is meant to optimize quality of life and minimize sources of distress at the end of life. In theory, enrollees are entitled to an unlimited number of days of hospice care, though they have to be recertified after 6 months. But in practice, some patients end up discharged alive rather than re-enrolled. In this episode of the Narrative Matters podcast, Health Affairs’ Jessica Bylander talks to Krista Lyn Harrison, an assistant professor of geriatrics and health policy at...
Charity care needs to be better than this
April 29, 2021 06:00 - 18 minutes - 17.4 MBCharity care is health care that is provided for free or at a reduced cost to eligible patients, with no expectation that the patient will pay. Under the Affordable Care Act, nonprofit hospitals are required to provide charity care to eligible patients, or risk losing their tax-exempt status. But data show large variation in how much charity care hospitals actually provide. In this episode of the Narrative Matters podcast, Health Affairs’ Jessica Bylander talks to David Velasquez...
General medical education should not be a commodity
March 22, 2021 12:00 - 23 minutes - 43.5 MBIn June 2019, Hahnemann University Hospital, a teaching hospital that had served poor residents in Philadelphia for more than 170 years, filed for bankruptcy and, within months, closed its doors for good. The complex story of its closure, after being purchased by a private equity executive, highlights concerns with health care finances and how physician training is caught in the middle. In this episode of the Narrative Matters podcast, Jessica Bylander talks to Sharon Griswold, a p...
COVID-19 through the eyes of a black medical student
February 18, 2021 16:13 - 32 minutes - 25.9 MBIn the face of the racial health disparities made more visible during the COVID-19 pandemic, statistics tell only part of the story. Read by author Shuaibu Ali, a medical student at Dartmouth College.
Out of options for patients with serious mental illness
January 15, 2021 15:35 - 14 minutes - 17.1 MBA woman with serious mental illness cycles between a state hospital, shelters, nursing homes, and psychiatric units, with no permanent place to land. Read by the author Brian Scott Barnett, a staff psychiatrist at Cleveland Clinic.
Climate migration and the future of health care
December 07, 2020 20:00 - 19 minutes - 22.2 MBA physician treats two patients who were forced from their home countries by extreme weather associated with climate change. Read by author Katharine Lawrence from the New York University Grossman School of Medicine.
This, too, is what racism feels like
November 02, 2020 18:00 - 19 minutes - 22.1 MBAfter George Floyd’s killing, a physician reflects on how the health effects of racism become embodied for her and other Black Americans. Read by author Brooke Cunningham, originally published in November 2020.
A mother in wonderland: securing services for my blind child
October 31, 2020 17:00 - 24 minutes - 28.5 MBA parent navigates complex education policy to secure services and supports for her blind child. Read by author Carla Keirns, originally published in October 2020.
Challenges in ensuring the quality of generic medicines
September 12, 2020 17:00 - 14 minutes - 12 MBA refill of a generic attention deficit hyperactivity disorder prescription leads to new side effects and raises questions about the quality of generic drugs. Read by Kevin Schulman, originally published in September 2020.
A patient with COVID-19 is left behind as care goes virtual
August 03, 2020 17:00 - 10 minutes - 8.28 MBVirtual strategies for health care visits during a pandemic must not exclude marginalized patients. Read by author Kumara Sunday, originally published in August 2020.
An understaffed hospital battles COVID-19
August 03, 2020 17:00 - 11 minutes - 9.36 MBDuring the peak of the COVID-19 pandemic, staffing ratios reached untenable levels. Read by author David Scales, originally published in August 2020.
Protecting access to abortion during the COVID-19 pandemic
August 03, 2020 17:00 - 11 minutes - 9.41 MBSeveral states attempted to deem abortions nonessential during the COVID-19 pandemic, leaving some women with difficult choices. Read by author Maryl Sackeim, originally published in August 2020.
Finding time for compassion in a busy emergency department
July 06, 2020 17:00 - 14 minutes - 11.5 MBA medical error in the emergency department causes emotional trauma for a patient, who seeks compassion in the aftermath. Read by author Angela Blood, originally published in July 2020.
Racism in my medical education
June 01, 2020 17:00 - 20 minutes - 16.6 MBAn Asian American physician calls for more diversity and a commitment to health equity in US medical schools. Read by author Michelle Ko, originally published in June 2020.
Held against our wills: reimagining involuntary commitment
May 14, 2020 17:00 - 17 minutes - 14.4 MBInvoluntary psychiatric treatment for people with serious mental illness should focus on returning to health instead of reducing danger. Read by author Abraham Nussbaum, originally published in May 2020.
Poems - The Headache, Epidemic, Admission
April 01, 2020 17:00 - 6 minutes - 5.15 MBThese three poems won the 2019 Narrative Matters poetry contest. Read by authors Anjali Jain, Ronald Valdiserri, and Alex Sievert, originally published in April 2020.
The power of access to affordable care
March 14, 2020 17:00 - 12 minutes - 9.67 MBA patient and student with severe asthma chases adequate insurance coverage until the Affordable Care Act provides something more. Read by author Rachel Stern, originally published in March 2020.
There’s no algorithm for empathy
February 14, 2020 18:00 - 16 minutes - 13.1 MBWhen physicians rely on a behavioral "recipe" to convey empathy, patient care can suffer. Read by author Hannah Wild, originally published in February 2020.
To treat my patient, I had to understand her trauma
January 01, 2020 18:00 - 16 minutes - 13.6 MBA patient who is a survivor of abuse benefits from a health care approach that acknowledges her past trauma. Read by author Eve Rittenberg, originally published in January 2020.
When people you love are the unintended consequences of opioid policy
December 01, 2019 18:00 - 20 minutes - 17.1 MBAfter the release of federal guidelines to curb opioid misuse, a patient is unable to obtain effective pain treatment and dies from complications. Read by author Mary Beth Foglia, originally published in December 2019.
Measles, mumps, and communion: a vision for vaccine policy
November 19, 2019 18:00 - 19 minutes - 16.1 MBA pediatrician offers a vision for vaccine policy that promotes public health while respecting religious beliefs. Read by author Joshua Williams, originally published in November 2019.
My struggle to access lifesaving mental health care
April 01, 2019 17:00 - 25 minutes - 20.9 MBA patient must overcome systemic hurdles to stay on the only effective treatment for her depression: ketamine. Read by author Ashley Clayton, originally published in April 2019.
'Go back to California': when providers fail transgender patients
September 10, 2017 16:00 - 17 minutes - 14.2 MBA transgender doctor is mistreated by a health care provider — and wants to make the system better for patients like her. Read by author Laura Arrowsmith, originally published in September 2017.
The importance of being
October 31, 2016 16:00 - 22 minutes - 25.8 MBGood patient care is found not on a computer screen but in being truly present with patients. Read by author Abraham Verghese, originally published in October 2016.
Asthma and injustice on Chicago's Southeast side
May 14, 2016 16:00 - 16 minutes - 11.1 MBA physician discovers a potential environmental link to asthma attacks in a poor Chicago community. Read by author Kohar Jones, originally published in May 2016.
'I don't want Jenny to think I'm abandoning her': views on overtreatment
May 01, 2014 16:00 - 17 minutes - 12.1 MBA palliative care physician helps a cancer patient cope with her coming death, while her oncologist struggles to give up treatment. Read by author Diane Meier, originally published in May 2014.
Undocumented immigrants and kidney transplant: costs and controversy
February 14, 2014 17:12 - 16 minutes - 11.1 MBA nephrologist's patient is ideally suited for kidney transplant — except that he is an undocumented immigrant. (read by author Vanessa Grubbs, originally published in February 2014)