Have The Nerve: A Podcast About Disability
46 episodes - English - Latest episode: 17 days ago - ★★★ - 1 ratingDo you have the nerve to talk about disability?
Have The Nerve is a podcast brought to you by Spinal Cord Injuries Australia and funded by the Australian Government Department of Social Services. Join host, Susan Wood, as she talks you through everything to do with disability.
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Episodes
Episode 38: Get To Know Your Body - Strength Training
April 11, 2024 07:00 - 19 minutes - 13.7 MBThis is Have The Nerve Shorts - the short episodes between the long ones where we talk about things From The Internet, you can Get To Know Your Body and there might be even Something To Think About. In this episode, Exercise Physiologist Alicia Payne comes on to talk about why strength training is for everyone of any ability! NeuroMoves is a specialised exercise service for people with neurological conditions and physical disabilities. Our team of Exercise Physiologists and Physiotherapist...
Episode 37: From The Internet - Was He Wrong For Using The Accessible Bathroom?
March 28, 2024 09:00 - 14 minutes - 10.3 MBThis is Have The Nerve Shorts - the short episodes between the long ones where we talk about things From The Internet, you can Get To Know Your Body and there might be even Something To Think About. Hey there fellow doomscrollers! In this episode you are listening to Laura Burling, Jade Williams and Susan Wood answer the question: AITA for using a disabled stall? In what initially seems like a case a lot of us may know, of someone using the accessible stall who probably shouldn't be, we fi...
Episode 36: A Moment That Changed Everything
March 13, 2024 13:00 - 26 minutes - 18.1 MBTrigger warning, this episode speaks in detail about attempted suicide. Listener discretion is advised. In this episode, 2023 Lifeline Ambassador and public speaker, Matthew Caruana, comes on to share his story, At 16, in an attempt to end his life Matthew jumped seven storeys from a building. He survived, sustained a spinal cord injury and began a journey that would literally change his whole life. Additional information for this episode: Matthew Caruana: https://www.mattcaruana.com/ S...
Episode 35: Something To Think About - Where Is The Support For Spouses and Partners?
February 07, 2024 13:00 - 18 minutes - 12.8 MBThis is Have The Nerve Shorts - the short episodes between the long ones where we talk about things From The Internet, you can Get To Know Your Body and there might be even Something To Think About. On this episode of Have The Nerve, Forrest Campbell comes on to talk about his observations about the lack of peer support for his wife when he sustained his spinal cord injury in 2015. He talks about how the difficulty of transitioning to a new life wasn't just felt for him, but became very rea...
Episode 34: Get To Know Your Body - Shoulder Health
January 17, 2024 13:00 - 21 minutes - 14.6 MBThis is Have The Nerve Shorts - the short episodes between the long ones where we talk about things From The Internet, you can Get To Know Your Body and there might be even Something To Think About. In this episode Physiotherapist Colbey Van Leeuwen talks about what shoulder health means and why it's so important you know the right way to take care of them. NeuroMoves is a specialised exercise service for people with neurological conditions and physical disabilities. Our team of Exercise ...
Episode 33: From The Internet - Is The Boyfriend Overprotective?
January 03, 2024 13:00 - 21 minutes - 15.1 MBIt's 2024 - A New Year, A New Start. This is Have The Nerve Shorts - the short episodes between the long ones where we talk about things From The Internet, you can Get To Know Your Body and there might be even Something To Think About. In this episode you are listening to Laura Burling, Jade Williams and Susan Wood answer the question: WIBTA for saying my girlfriend and I aren’t going to anime expo if she has to leave Monday and I have to leave Sunday? As we read more into the predicame...
Episode 32: Disability and the Performing Arts
December 21, 2023 13:00 - 59 minutes - 41 MBWe’ve spoken about access to large scale events such as music festivals, concerts, Susan may have mentioned something about the weird inclusion issue in running events, but what about smaller scale events like attending a play, or hang on – what if you are a playwright with a disability and you want to stage a production, what if you are a stage actor with a disability and want to perform? Do you get a fair chance? Jacqueline Tooley is the former Accessibility Manager of the Darlinghurst Th...
Episode 31: Disability Royal Commission, Connecting Cultures and the landscape of disability for First Nations
November 29, 2023 13:00 - 1 hour - 49.1 MBTrigger warning, this episode discusses sexual and physical abuse of people with disabilities and listen discretion is advised. In this episode of Have the Nerve Susan speaks to Jake Briggs, long time disability advocate, Managing Director of CultureConnex and host of the podcast Keep Rolling with Jake Briggs. They talk about his career as an advocate, his work in service provision, his work supporting First Nations People during the Royal Commission into Violence, Abuse, Neglect and Expl...
Episode 30: Continence Poverty - The Cost When You Can't Afford
October 19, 2023 13:00 - 39 minutes - 27 MBHow many times a year do you think the average person with a disability, requiring products like these would need to go to the bathroom? How much does it cost? What does someone do when they can’t afford basic medical necessities to go to the bathroom? AND what happens if you are an immigrant who needs continence products and you don’t qualify for any funding at all? Edwina Spooner from Coloplast is back and we talk about the very sobering realities for a lot of people who don’t have a...
Episode 29: Companion Cards and the Meticulous Planning Just To Go Out
September 20, 2023 14:00 - 1 hour - 43.3 MBIt's getting into the warmer seasons now and when the weather gets warmer people like to go out more. What does that have to do with this episode? Senior Community Services Coordinator Laura Burling and Representative Advocate Jade Williams talk with Susan about what a Companion Card is, why they are important and they talk about why more people should understand the meticulous planning behind going to even the most simple of social situations for most people with disabilities. Informat...
Episode 28: Have the courage to be your own advocate
July 30, 2023 15:00 - 50 minutes - 35 MBIn this episode of Have the Nerve Susan speaks to Geraldine Watts. disability advocate. After a series of accidents that affected her spine, in 2016 her intervertebral disc disintegrated and she lost mobility, function and sensation. It was only in 2020 where she was formerly diagnosed with a spinal cord injury that set her off to find and absorb as much information about her disability as possible. We talk about her journey with mental health and mental wellbeing, the barriers of accessin...
Episode 27: Ground Zero at Brand X - Voices from #SydneyWorldPride Part Two
June 29, 2023 14:00 - 1 hour - 46.9 MBSydney WorldPride 2023 didn’t just happen in two weeks between February to March, it’s the gift that keeps on giving and Susan will keep giving those gifts. Let's cast our minds back, hit rewind, do some reminiscing and hear performances and interviews of the artists that made up Ground Zero at Brand X in Darlinghurst, New South Wales. Ground Zero was a performing arts creative development and performance program presented as part of The Flying Nun by Brand X and Sydney WorldPride 2023. G...
Episode 26: Emergency Preparedness and Planning for People with Disabilities
May 28, 2023 14:00 - 1 hour - 49.8 MBAccording to the Department of Foreign Affairs and Trade, the Asia-Pacific region is the most disaster prone region in the world. Australia has a long history with heatwaves, bushfires, drought, flood and tropical cyclones and we’re going from La Nina to El Nino, meaning, potentially a repeat of the 2019 – 2020 bushfires that saw the whole country on fire. In this episode, Susan talks to Michelle Villeneuve, Associate Professor of Occupational Therapy and Deputy Director at the Centre fo...
Episode 25: The Underdogs - Disability and High School
April 26, 2023 14:00 - 53 minutes - 36.9 MBIn Episode 23 - Be Curious, Not Judgemental, Paediatric Nurse Consultant Jodie Thompson from Kids Collaborative and Paediatric Clinical Psychologist Amanda Lane-Brown talked with Susan about primary schooling and children with disabilities. What about high school? CONTENT WARNING: This episode discusses suicidal ideation and addiction. Listener discretion is advised. If you are struggling with similar feelings we encourage you to please call the 24 hour crisis support service Lifeline on ...
Episode 24: Voices from Sydney Mardi Gras 2023 #SydneyWorldPride
February 27, 2023 22:00 - 28 minutes - 19.6 MBIt is Sydney WorldPride and Have The Nerve will be bringing you interviews from all over the place, highlighting the voices of people with disabilities in this community. TW: This episode does contain content about abuse that can be triggering to some people. In this episode, you'll here from Aspen Luke, a 17 year old Susan met on the train, who is about to participate in his first Mardi Gras on Aspect/Austism Australia’s float and former president of People With Disability Australia (PW...
Episode 23: Be Curious, Not Judgemental - Disability and Primary School
February 06, 2023 00:00 - 49 minutes - 34.1 MBIt's the beginning of a new school year for students in Australia. For the first episode of 2023 (coincidentally starting with Episode 23!), Paediatric Nurse Consultant Jodie Thompson from Kids Collaborative and Paediatric Clinical Psychologist Amanda Lane-Brown talk with Susan about how being curious to ask questions without judgement is THE key element for children with a disability entering primary school. We also talk about self-esteem, masking disability and how there should be a great...
Episode 23: Be Curious, Not Judgemental - Disability and Primary Schools
February 06, 2023 00:00 - 49 minutes - 34.1 MBIt's the beginning of a new school year for students in Australia. For the first episode of 2023 (coincidentally starting with Episode 23!), Paediatric Nurse Consultant Jodie Thompson from Kids Collaborative and Paediatric Clinical Psychologist Amanda Lane-Brown talk with Susan about how being curious to ask questions without judgement is THE key element for children with a disability entering primary school. We also talk about self-esteem, masking disability and how there should be a great...
Episode 22: Finding your confidence on the days when you really feel disabled
December 21, 2022 13:00 - 34 minutes - 23.5 MBOn the final episode of 2022, Emily Bray comes on to talk about confidence, meaning and purpose on the days when you really feel disabled. What does that mean? These are the times where something has happened and you have the very confrontational thought: "Holy crap. I'm actually disabled". Where do you find the resilience to keep going when you have a body that requires you to think about added challenges? How do you feel confident going to the shops or going… anywhere with a running c...
Episode 21: NDIS, WTH?! (Where's The Help)
November 13, 2022 13:00 - 53 minutes - 37.1 MBWhen you don't know what something is, how do you know what to ask for? The most major reform for people with disabilities in Australia, but so fraught with tedious obstacles. This is the third episode where we have covered the NDIS because it is such a complicated beast. How much do you actually know about NDIS Support Coordination? Have you ever looked at your NDIS plan and felt lost? Confused? Have you ever attempted to find legal aid to help you at an Administrative Appeals Tribunal?...
PSA: Vote for Have The Nerve in the 2022 Australian Podcast Awards!
October 31, 2022 02:00 - 47 seconds - 605 KBVote right now for our podcast in this year’s Australian Podcast Awards Listeners’ Choice category! Head to https://australianpodcastawards.com/vote and type in Have The Nerve. Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
Episode 20: The Overlooked Victim Survivors of Domestic Violence and Sexual Assault
October 19, 2022 13:00 - 1 hour - 46.8 MBTW: This episode talks about domestic violence, sexual assault, coercive control and suicide. Listener discretion is advised. If you need support you can call the National Domestic Family and Sexual Violence Counselling Service on 1800 RESPECT or visit https://www.1800respect.org.au/ In Australia, on average, one woman a week is murdered at the hands of a current, or former partner, and approximately 10 women a day are hospitalised for assault injuries perpetrated by spouse or domestic pa...
Episode 19: I Am More Than My Disability
September 07, 2022 14:00 - 24 minutes - 16.9 MBIt is Spinal Cord Injury Awareness Week in Australia and this year we’re saying #IAmMoreThanMyDisability. Emily Bray is a wife, mother, social worker, researcher and PhD candidate. We talk about the language of disability and subconscious bias. What happens if you don’t want to be an athlete? Well… nothing, you just live a regular life. But why does it seem to hard for the broader community to grasp? We cover so many things: awareness days, disability only events, being congratulated fo...
Episode 18: Neuroplasticity and The Human Body
August 31, 2022 14:00 - 46 minutes - 32.2 MBFor this episode of Have the Nerve, Susan talks to Dr Camila Quel de Oliveira, Lecturer in Physiotherapy at UTS, and NeuroMoves Physiotherapist Hannah Maslen about the most amazing part of the human body – the brain. From in the womb to end of life, we talk about neuroplasticity and the information super highway that is the spinal cord. How does this relate for people with spinal cord injuries? Camila and Hannah will tell you all about it. Information in this episode NeuroMoves exercise s...
Episode 17: The Importance of Diversity in Politics with Senator Jordon Steele-John
August 17, 2022 14:00 - 26 minutes - 18 MBIn this episode Susan speaks to Western Australia Greens Senator, Jordon Steele-John. We talk about his first day working at Parliament House as a person with a disability, the importance of disability representation in politics and diversity and how including people with disabilities in legislation goes well beyond topics such as the NDIS and Disability Support Pension. Information in this episode Jordon Steele-John: https://www.aph.gov.au/Senators_and_M... https://greens.org.au/wa/pe...
Episode 16: The Psychology of Grief, Pain and Complex Trauma
August 02, 2022 14:00 - 33 minutes - 22.7 MBListeners are advised that the following podcast does discuss situations around grief and trauma that can be triggering to people. On this episode I talk about the complexities of grief and trauma with clinical psychologist, Skye Dong. Skye helped develop SCIA’s Engage Program as part of our broader Resilience Programs. We're going to talk about the different ways people manifest pain and trauma, and why the way we deal with trauma and pain in terms of disability is a lot more than the di...
Episode 15: Employment, Disability and Changing a Culture of Discrimination
June 03, 2022 04:00 - 31 minutes - 22 MBFinding work and having a disability is hard. No like, it's really hard. In this episode, Susan talks to Phat Ngo, Employment Service Manager for SCIA's EmployAbility Service and Dominika Jachym, EmployAbility's Employment Coach about the obvious misconceptions of disability and employment, how that feeds into the hesitation a lot of employers have when hiring someone with a disability, how employers can better themselves to be a more inclusive workplace, help people with disabilities cli...
Episode 14: Why is standing so important for people who can’t move their legs?
May 04, 2022 14:00 - 25 minutes - 17.3 MBMaybe some of you may not have thought this was possible. Maybe some of you didn't know that this could and should be something to consider. We're not talking about miraculously standing up and walking around, Physiotherapist Colbey Van Leeuwen and Exercise Physiologist Alicia Payne talk about the importance of standing in therapy, particularly for people who have had traumatic spinal cord injuries, the technology and what the research says. Credits This episode has been written, produce...
Episode 13: Sexual Rights, Sex Work and Disability with Rachel Wotton
March 30, 2022 13:00 - 57 minutes - 39.4 MBThat irresistible urge, the attraction, the anticipation and excitement for the slightest touch. Rachel calls it skin hunger. Rachel Wotton is a Sex Worker living in Inner Sydney, Churchill Fellow and PhD candidate at Western Sydney University. Her PhD is about exploring the experiences of people with disabilities accessing sex workers in Australia. Susan and Rachel talk about the misconceptions of two marginalised communities, the legacy of her 2011 documentary Scarlet Road, how her wor...
Sexual Rights, Sex Work and Disability with Rachel Wotton
March 30, 2022 13:00 - 57 minutes - 39.4 MBThat irresistible urge, the attraction, the anticipation and excitement for the slightest touch. Rachel calls it skin hunger. Rachel Wotton is a Sex Worker living in Inner Sydney, Churchill Fellow and PhD candidate at Western Sydney University. Her PhD is about exploring the experiences of people with disabilities accessing sex workers in Australia. Susan and Rachel talk about the misconceptions of two marginalised communities, the legacy of her 2011 documentary Scarlet Road, how her wor...
Episode 12: So, How Disabled Do You Need To Be For The NDIS?
February 03, 2022 04:00 - 39 minutes - 27.4 MBEligibility within the NDIS is a little bit of grey area. Although under the NDIS Act 2013 there are no specific diagnosis or disabilities listed, actually accessing the NDIS can be fraught with problems. For the first full episode of Have the Nerve in 2022, Susan talks to SCIA's Senior Support Coordinator Louise Hilton and SCIA's Policy and Advocacy Officer Megan Bingham about about how the selective process of funding has larger systemic consequences and where a gap in disability educa...
Have The Nerve is back for Season Two!
January 20, 2022 02:00 - 37 seconds - 485 KBHave the Nerve: A Podcast about Disability is back for 2022! Join Susan Wood and she delves further into the great realm of disability. Subscribe to us, give us a five star rating on your streaming platform and don't forget to tell everyone you know to listen! Funded by Australian Government Department of Social Services. For more information visit https://www.dss.gov.au/. Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and ...
Episode 11: Tourism, Access and City Planning with Access Bondi
December 01, 2021 13:00 - 23 minutes - 16 MBNow that Summer is upon us in the Southern Hemisphere, Mike Cerrone, Project Officer for Waverley Council's Access Bondi! talks to Susan about why it's important for tourist destinations to be accessible for all people of all abilities. Bondi Beach is a popular tourist destination on the east coast of Australia that brings in millions of visitors every year. We talk about how decent and suitable access can change society's perceptions on inclusion, give people freedom of choice when they g...
Episode Ten: Psychosexual Exploration, Sexual Self-Esteem and Disability
October 13, 2021 13:00 - 45 minutes - 31.1 MBCandice Care-Unger and Arlyn Owens from Royal Rehab's Sexuality Service in Sydney talks to Susan about how sexual self-esteem and empowering sexual confidence in people with disability is more than the literal mechanics of sex. Whether you've had your disability long term, or recently, Candice and Arlyn talk about psychosexual intervention, the holistic approach to sexual wellbeing and how the media's ableist portrayal of sex has skewed society's expectation of dating someone with a disabi...
Episode Nine: Nazim Erdem - Paralympic Gold Medalist, Wheelchair Rugby
September 22, 2021 14:00 - 14 minutes - 10 MBWe’re celebrating the diversity of disability and highlighting spinal cord injury awareness for the entire month of September. In this bonus episode of Have The Nerve, former Australian Steeler and Paralympic Wheelchair Rugby Gold medalist, Naz Erdem joins me to talk about his life as a Paralympian across five Paralympic games, his post Paralympic career and his hopes for the future of disability and sports. Information about what we have discussed in this episode: Paralympics Australi...
Episode Eight: Louise Sauvage - Paralympic Gold Medalist and Coach, Wheelchair Racing
September 16, 2021 02:00 - 39 minutes - 26.9 MBHave The Nerve is celebrating the diversity of disability and the importance of disability representation for the month of September. In this episode, Louise Sauvage (Former wheelchair racer, Australian Paralympic Wheelchair Racing Gold Medalist and now the coach for up-and-coming wheelchair para-athletes and Australian Paralympic gold medalist Madison de Rozario), talks about growing up in Perth, her career as a Paralympian and the importance of universal accessible design and disability ...
Episode Seven: Talking about first experiences after a spinal cord injury
August 11, 2021 14:00 - 46 minutes - 32 MBWhen you think about first milestones in your life what do you think about? First day of school? First kiss? First boyfriend or girlfriend? ....What about the first time you realised your injury is permanent? Or the first time you fell out of your wheelchair? It's not often we get to talk about what it's like to experience, or sometimes re-experience, things for the first time following a spinal cord injury. Chloe and Jacob talk with Susan talk about the confronting realisation of acqui...
Episode Six: Over 65's, NDIS and Aged Care funding
July 07, 2021 14:00 - 38 minutes - 26.2 MBNavigating support funding for older Australians with a disability can be difficult. What happens if you are aged 65 and over and acquire a disability? For this episode we’re going to be discussing supports for older Australians with a disability from the NDIS to My Aged Care Funding. You'll hear lived experiences from Susan who sustained a brain injury in 2005 and was able to get onto the NDIS before she turned 65 and Di, who is the wife and primary carer of her husband, Gary who sustain...
Episode Six: Over 65s, NDIS and Aged Care funding
July 07, 2021 14:00 - 38 minutes - 26.2 MBNavigating support funding for older Australians with a disability can be difficult. What happens if you are aged 65 and over and acquire a disability? For this episode we’re going to be discussing supports for older Australians with a disability from the NDIS to My Aged Care Funding. You'll hear lived experiences from Susan who sustained a brain injury in 2005 and was able to get onto the NDIS before she turned 65 and Di, who is the wife and primary carer of her husband, Gary who sustain...
Episode Five: Pain management and medicinal cannabis
June 02, 2021 14:00 - 28 minutes - 19.5 MBWhat is like to live with pain that never stops? What is out there for pain management? CONTENT WARNING: This episode discusses suicidal ideation and addiction. Listener discretion is advised. If you are struggling with similar feelings we encourage you to please call the 24 hour crisis support service Lifeline on 13 11 14. For this episode, Susan talks to Cannadoc cofounders Dr David Feng and Kevin Brabazon about how medicinal cannabis is changing the lives of people with spinal cord inj...
Episode Four: What you should know about SCI and bowel management
May 05, 2021 14:00 - 28 minutes - 19.9 MBDid you know that acquiring a spinal cord injury can affect more than somebody's legs? Spinal cord injury (SCI) can significantly affect the bowel. Edwina Spooner from Coloplast explains how an SCI can affect the bowel, surgical and non-surgical options, considerations for intimacy and maintaining your independence. Information about what we have discussed in this episode: SCIA Continence Care - https://scia.org.au/continence-care/ Coloplast continence information - https://www.coloplast....
Episode Three: What you should know about SCI and bladder management
May 05, 2021 14:00 - 30 minutes - 21.3 MBDid you know that acquiring a spinal cord injury can affect more than somebody's legs? Spinal cord injury (SCI) can significantly affect the bladder. Edwina Spooner from Coloplast explains what a neurogenic bladder is, the importance of hygiene, good catheter technique and considerations you should make for situations like going out an intimacy. Information about what we have discussed in this episode: SCIA information about continence care - https://scia.org.au/continence-care/ Coloplast...
Episode Two: Life lessons with SCIA's Peer and Family Support Team
March 31, 2021 13:00 - 35 minutes - 24.3 MBCan having a disability change you? The SCIA Peer and Family Support team talk about their lived experiences and the reality of living with a spinal cord injury. Hear from Rob, Dan and Jess about what is truly important, lessons they’ve learnt along the way like patience, advocating for themselves, independence and dealing with mental health. Let’s put disability into perspective; changing mindsets, learning from other people, engaging in support and services available and not forget abou...
Life lessons with SCIA's Peer and Family Support Team
March 31, 2021 13:00 - 35 minutes - 24.3 MBCan having a disability change you? The SCIA Peer and Family Support team talk about their lived experiences and the reality of living with a spinal cord injury. Hear from Rob, Dan and Jess about what is truly important, lessons they’ve learnt along the way like patience, advocating for themselves, independence and dealing with mental health. Let’s put disability into perspective; changing mindsets, learning from other people, engaging in support and services available and not forget abou...
Episode One: Got Pride! Identity, discrimination and overcoming barriers for queer people with disability
March 03, 2021 13:00 - 36 minutes - 25 MBWhat are some of the challenges that people with disability within the queer community face when finding supports? Join host Susan Wood, SCIA Peer and Family Support Coordinator Jess Pellow, SCIA Policy and Advocacy Team Leader Michael Magro and ACON Community Health Promotion Officer, LGBTQ+ People With Disability Project Charbel Zada to talk about the QueerAbility NDIS Toolkit, dating and relationships, representation and what can we do as a society to better understand the issues and ta...
Got Pride! Identity, discrimination and overcoming barriers for queer people with disability
March 03, 2021 13:00 - 36 minutes - 25 MBWhat are some of the challenges that people with disability within the queer community face when finding supports? Join host Susan Wood, SCIA Peer and Family Support Coordinator Jess Pellow, SCIA Policy and Advocacy Team Leader Michael Magro and ACON Community Health Promotion Officer, LGBTQ+ People With Disability Project Charbel Zada to talk about the QueerAbility NDIS Toolkit, dating and relationships, representation and what can we do as a society to better understand the issues and ta...
Have The Nerve - Trailer
February 19, 2021 04:00 - 39 seconds - 508 KBGet ready for Spinal Cord Injuries Australia’s brand new podcast Have the Nerve! We will cover topics important to people living with spinal cord injuries and neurological conditions - including sexuality, advocacy, over 65s, NDIS and more! We aim to inform, educate and empower people with disability, their families, carers, friends as well as people who work in the disability sector. We will be releasing episodes from March 4, so hit that follow button wherever you’re listening. H...