"Nothing to Lose": Patients Fight to Be Heard

I AM BIO

English - October 26, 2021 09:00 - 34 minutes - 31.2 MB - ★★★★★ - 67 ratings
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Previous Episode: Escaping the Food Allergy Prison

Next Episode: Pressure on STEM from Covid and Inequity

Today we have two powerful stories. Each one is as different as the disease that it’s about. Yet there is a common thread: patients want and need to be heard. You will hear from a mom who will do whatever it takes to save her son’s life. And you will learn about a young woman who is fighting for herself and her underserved patient community.

Guests:

Amber Freed, SLC6A1 Connect

Melodie Blackwell, COCCI