GearUp4CF - Why I Ride
4 episodes - English - Latest episode: almost 3 years ago -This uplifting podcast will bring you into the life and families of those with Cystic Fibrosis. This includes a collection of interviews featuring Riders, Volunteers and Families involved with the annual ride for GearUp4CF, and the Cystic Fibrosis community. Their personal stories share how this genetic disease affects families, the struggles of daily living, and the journey to finding a cure.
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Episodes
Mike Hamilton
June 27, 2021 20:08 - 27 minutes - 19.9 MBMike Hamilton was diagnosed with CF in his pre-teens years. He remained healthy by being an active cyclist and playing soccer. Currently studying as an undergrad student, he explains how important research for CF is to find the proper drugs and cure for this genetic disease. To read more about his work in detail, this article highlights their research, specifically with the drug Ivacaftor (primarily the G551D mutation) and it's affects on CF Patients. Mike is currently one of the...
Todd Homenuk
June 23, 2021 06:40 - 14 minutes - 10.6 MBTodd was diagnosed with Cystic Fibrosis at a young age. He lived a relatively normal life through his teens and into University. Recently, being hospitalized, he was given Trikafta and saw a massive improvement. Listen to his story. Bonus, during the taping of this podcast, the Cystic Fibrosis drug Trikafta is now approved in Canada for Doctors to prescribe. This is a HUGE victory, but there is still more work to be done. The drug is available, but depending on your insurance provid...
Aaron Mittler
June 18, 2021 02:22 - 4 minutes - 3.08 MBAaron Mittler, father of Lucy Mittler and CF patient, has been an active participant with Gearup4CF since it's early stages. He found that by becoming an advocate, and riding in Gearup4CF to raise money, was so important for funding research in helping to find a cure. His team, Lycra for Lucy, is a force! They've raised over $300 000 since starting the ride. He encourages you to get involved, to be a part of something bigger then yourself. #CysticFibrosisNeedsACure.
Brenda & Kenny Mackenzie
June 17, 2021 19:54 - 12 minutes - 8.89 MBBrenda, a mom of three boys discovered two of her three boys were positive with Cystic Fibrosis. Listen to Brenda's story along side her son Kenny on why they ride with Gearup4up, why they are a large part of the community and advocates for CF, and why it's important to show your support all year around.