Down Syndrome Center Podcast
181 episodes - English - Latest episode: 10 days ago - ★★★★★ - 31 ratingsThis podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.
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Episodes
#178 - John's Crazy Socks!
April 18, 2024 11:00 - 28 minutes - 39.7 MBJohn and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks. Listen to the podcast to find out why their mission is about something so much greater than "just socks." For more information about John's Crazy Socks (and to buy your own!), visit: https://johnscrazysocks.com If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner wit...
#177 - Weight Loss Medications and Surgeries
April 04, 2024 10:00 - 28 minutes - 39.4 MBDr. Vibha Singhal, pediatric endocrinologist, and Dr. Kellen Hayes, bariatric surgeon, joined the podcast to give their thoughts on the latest buzz around weight loss medications and bariatric surgeries. They also give their thoughts specifically on these treatments/management strategies for people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndro...
#176 - Happy World Down Syndrome Day 2024!
March 21, 2024 10:00 - 26 minutes - 36.4 MBNDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing. He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them.
#175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa)
March 07, 2024 11:00 - 29 minutes - 39.8 MBDr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado. He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune system can potentially be used in treatment of common disease conditions seen in people with Down syndrome. To learn more about the Human Trisome Project, visit: https://www.trisome.org To learn more about research trials in Down syndrome, visit...
#174 - Dating in Down Syndrome (with Terri Couwenhoven)
February 22, 2024 11:00 - 25 minutes - 34.8 MBTerri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She rejoined the podcast this week to talk about dating and Down syndrome. For more information on Terri, her amazing resources, book her as a speaker for your group, go to: https://www.terricouwenhoven.com/ Resources discussed on the podcast: Dating in Down...
#173 - Sexuality and Down Syndrome (with Terri Couwenhoven)
February 08, 2024 18:39 - 30 minutes - 42.1 MBTerri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She has been on the podcast before but joins us again to today for updates on the topic of sexuality and Down syndrome. For more information on Terri, her amazing resources, book her as a speaker for your group, go to: https://www.terricouwenhoven.com/ Resourc...
#172 - Hearing Health in Down Syndrome (with Dr. Heather Porter)
January 25, 2024 11:00 - 23 minutes - 32 MBDr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 2 of the 2 part podcast. https://www.boystownhospital.org/services/ear-nose-throat/pediatric-hearing-clinic If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/d...
#171 - Hearing Health in Down Syndrome (with Dr. Heather Porter)
January 11, 2024 16:38 - 17 minutes - 24 MBDr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 1 of a 2 part series. https://www.boystownhospital.org/services/ear-nose-throat/pediatric-hearing-clinic If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/down...
#170 - Dementia in Down Syndrome, Part 2 (with Dr. Seth Keller)
December 28, 2023 11:00 - 21 minutes - 30 MBDr. Seth Keller concludes our discussion on dementia in Down syndrome with part 2 of this podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.
#169 - Dementia in Down Syndrome, Part 1 (with Dr. Seth Keller)
December 14, 2023 11:00 - 22 minutes - 30.9 MBDr. Seth Keller joined the podcast to share his insights into dementia and Down syndrome. This is part 1 of a 2 part podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Cente...
#168 - Year End Update!
November 28, 2023 11:00 - 13 minutes - 18.7 MBListen as Dr. Vellody reflects on the history of this podcast, the history of the Down Syndrome Center, and looks towards the future for both! To learn more about the Down Syndrome Center, you can visit https://www.chp.edu/our-services/down-syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochild...
#167 - Talk Tools (with Heather Vukelich)
November 16, 2023 16:54 - 31 minutes - 43.1 MBSpeech language pathologist Heather Vukelich joined the podcast today to inform us about TalkTools and techniques to address feeding and speech clarity in people with Down syndrome. Websites/Resources www.talktools.com www.happykidstherapy.com www.happykidstherapy.com/feeding-class https://www.instagram.com/happykidstherapy/ If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to...
#166 - Gigi's Playhouse (with Nanci Gianni)
November 02, 2023 10:00 - 28 minutes - 38.7 MBNancy Gianni, Founder and Chief Belief Officer of Gigi's Playhouse, joined the podcast as part of our "Meet The Nationals" series. Gigi's Playhouse provides free educational, therapeutic-based, and career development programs for individuals with Down syndrome, their families, and the community, through a replicable playhouse model. Their mission and purpose is to change the way the world views Down syndrome and to send a global message of acceptance for all. For more information on Gigi...
#165 - Friendship Circle (with Rabbi Mordy Rudolph)
October 19, 2023 10:00 - 23 minutes - 32.6 MBRabbi Mordy Rudolph joined the podcast to discuss the Friendship Circle of Pittsburgh. This amazing organization was established in 2006 with the intention of creating a more inclusive community. It is a community-based program that brings together people of diverse abilities and interests. Information on the local chapter in Squirrel Hill PA can be found: https://www.fcpgh.org If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSynd...
#164 - Black Down Syndrome Association
October 05, 2023 10:00 - 42 minutes - 58.2 MBKelli Caughman and Crystal Lotterberry, founders of the Black Down Syndrome Association joined the podcast today to share their stories and how they led to the creation of this fantastic organization. For more information, go to https://www.blackdownsyndrome.org/. Co Founders [email protected] [email protected] General : [email protected] Website: https://urldefense.com/v3/__http://www.blackdownsyndromeassociation.org__;!!NH...
#163 - Aging in Down Syndrome (Life Expectancy, Early Aging, Menopause)
September 21, 2023 10:00 - 24 minutes - 34.3 MBDr. Brian Chicoine and Dr. Hannah Graham from the Adult Down Syndrome Center with Advocate Health Care in Park Ridge, Illinois joined the podcast today to discuss a listener question on menopause in Down syndrome. While I had these experts on the podcast, we also discussed other aging related topics in Down syndrome. For more information on the Adult Down Syndrome Center, go to: https://www.advocatehealth.com/health-services/adult-down-syndrome-center/. To access the Down Syndrome Reso...
#162 - Is Homeschooling An Option for Children with Ds? (with LaTaasha Byrd)
September 07, 2023 10:00 - 37 minutes - 51 MBLaTaasha Byrd joined the podcast today to answer listener questions about homeschooling. Is homeschooling a legitimate option for children with Down syndrome. If so, what are some important considerations that may be unique in this population? Countdown to K https://countdowntok.com Countdown Academy https://countdown-academy.teachable.com Inclusion is for the Included Book https://countdowntokstore.company.site
#161 - Special Olympics
August 17, 2023 10:00 - 26 minutes - 35.8 MBGary Cimaglia, Special Olympics North America’s Vice President of Sports, joined the podcast today to give a broad overview of the Special Olympics and how you and your loved ones can be involved. For more information, go to https://www.specialolympics.org. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://give...
#160 - Down Syndrome Regression Disorder (with Dr. Jon Santoro)
August 03, 2023 10:00 - 24 minutes - 33.8 MBDown Syndrome Regression Disorder (formerly called Unexplained Regression in Down Syndrome or Down Syndrome Disintegrative Disorder) is a diagnosis that has previously been missed or misdiagnosed in people with Down syndrome. It is a topic in high interest amongst researchers in the field, including today's podcast guest Dr. Jon Santoro from Children's Hospital of Los Angeles. Dr. Santoro gave us a review of the topic as well as current research into the diagnosis and treatment of this con...
#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims)
July 20, 2023 10:00 - 17 minutes - 24.3 MBDr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims. So many people with Down syndrome have sensory difficulties with these tasks and Dr. Frank helped explain her approach to these situations. For fantastic caregiver resources on these types of topics, go to: https://adscresources.advocatehealth.com/ Some examples of equipment discussed on the podcast: ...
#158 - Update on COVID (with Dr. Andy Nowalk)
July 06, 2023 10:00 - 21 minutes - 29 MBThe official pandemic status may be gone, but COVID still lingers. Listen as Dr. Andy Nowalk shares with us the latest updates on COVID, including the upcoming COVID vaccine boosters.
#157 - Understanding Grief and Grieving in People with Down Syndrome
June 22, 2023 10:00 - 19 minutes - 26.3 MBHow do we help people with Down syndrome during times of grief and grieving? Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss her perspective. For more information on Dr. Reif, go to https://rosereif.com/about/. For more information on this topic, check out Dr. Reif's book https://www.amazon.com/Helping-Child-syndrome-Understand-Death/dp/B0BXN5TFCC/. Dr. Reif's recommended this resource by Fred Rogers as well https://ww...
#156 - Behavioral Analysis (with Dr. Stacy Taylor)
June 08, 2023 10:00 - 33 minutes - 45.4 MBDr. Stacy Taylor, with Advance Behavior and Analysis, is an expert in behavioral analysis and special interest in patients with Down syndrome, joined the podcast to discuss her approach to behavioral questions that we received from you! We discussed inappropriate word usage, dumping behaviors, and scripting among other topics. For more information on Dr. Taylor's practice, including potentially scheduling a visit with the practice, visit http://advancebehavior.com/. To find a behavi...
#155 - Down Syndrome Affiliates in Action
May 25, 2023 10:00 - 23 minutes - 31.9 MBAs part of our Meet the Nationals series, Sarah Mulligan, Executive Director of Down Syndrome Affiliates in Action joined the podcast to talk about the great work that this organization does with local affiliates all over the country. For more information on DSAIA, see https://www.dsaia.org. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this...
#154 - Bitty and Beau's Coffee Shop
May 11, 2023 15:46 - 31 minutes - 43.6 MBBen Wright, co-creator of Bitty and Beau's Coffee along with his wife Amy Wright, joined the podcast today to discuss the motivation behind these amazing coffee shops! There will be a Bitty and Beau's Coffee Shop opening in Pittsburgh soon so we asked Ben to join us to give us some background on why he is so passionate about these shops (and it's not just the coffee!). If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]....
#153 - Improving Tolerance to Device Wearing (hearing aids, glasses, CPAP masks)
April 27, 2023 10:00 - 24 minutes - 34 MBDr. Lina Patel from the Sie Center in Denver joined the podcast again today. Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glasses, CPAP masks, etc. can be a challenge. Dr. Patel addressed a listener question on this topic on today's podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center,...
#152 - Addressing Unhealthy Eating Habits (with Shannon Frizzell)
April 13, 2023 10:00 - 17 minutes - 23.7 MBUnhealthy eating patterns are unfortunately common in people with Down syndrome. On this podcast, dietician Shannon Frizzell joins to discuss a listener question on some engrained eating patterns in their loved one with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyn...
#151 - A Conversation with Friends - Happy World Down Syndrome Day!
March 21, 2023 10:00 - 13 minutes - 21.5 MBIn honor of World Down Syndrome Day, enjoy this roundtable coversation recorded between my brother and his friends!
#150 - How to Address Throwing Behaviors (with Dr. Tarin Santamaria)
March 01, 2023 12:11 - 19 minutes - 26.2 MBDr. Santamaria rejoins the podcast to address a listener question on throwing behavior. What's the best approach when your child with Down syndrome has a tendency to throw objects? And how do you keep everyone else safe? :) Join us for a conversation on this specific topic as well as general thoughts on behavior management. And keep those listener questions coming! If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]....
#149 - Juvenile Idiopathic Arthritis (with Dr. Jordan Jones)
February 02, 2023 12:00 - 23 minutes - 31.7 MBDr. Jordan Jones is an Associate Professor of Pediatrics and Pediatric Rheumatologist from Children's Mercy Hospital in Kansas CIty, MO. Dr. Jones has a special interest in working with children with Down syndrome and has published numerous articles on this topic. He joined the podcast today to discuss a listener-requested topic on juvenile idiopathic arthritis in Down syndrome. For more information on Dr. Jones, please visit https://www.childrensmercy.org/profiles/jordan-t-jones/. If...
#148 - Jack's Basket (with Carissa Carroll)
January 05, 2023 12:00 - 27 minutes - 38 MBCarissa Carroll, Founder and Executive Director of Jack's Basket, joined the podcast today to talk about her story and how it influenced her to create Jack's Basket. This organization serves families all over the world, offering a welcome and congratulations to new families wherever they may be. You can find more information about Jack's Basket at https://www.jacksbasket.org/. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCent...
#147 - Forget Me Not - A Powerful Documentary on Inclusive Education
December 15, 2022 11:00 - 19 minutes - 27 MBAward winning Director, Olivier Bernier joined the podcast today to talk about his recently released documentary called Forget Me Not. Part American, part Quebecois, Olivier is also the Co-Founder and Creative Director of the production company, Rota6 Films, specializing in documentary and commercial films. As 3-year-old Emilio prepares to start school, his family finds itself embroiled in a challenge all too common for children with disabilities – to secure the right to an inclusive educat...
#146 - Hirschsprung Disease
December 01, 2022 10:00 - 39 minutes - 53.5 MBDr. Kelly Austin, Director of the Colorectal Center for Children at Children's Hospital of Pittsburgh, joined the podcast to discuss Hirschsprung disease. Seen more commonly in people with Down syndrome, listen to learn more about this important condition. Colorectal Center of Children https://www.chp.edu/our-services/surgery-pediatric/pediatric-surgery-services-we-offer/colorectal-center-for-children If there is a topic that you would like us to cover on the podcast, please e-mail m...
#145 - The Importance of Exercise in Down Syndrome
November 17, 2022 10:00 - 29 minutes - 39.9 MBScott Quaife, NSCA-CPT, Health and Wellness Coordinator with Down Syndrome Innovations in Kansas, joined the podcast to discuss the importance of exercise in Down syndrome and overcoming potential obstacles to reaching exercise goals. For more in-depth information on this topic, please visit: https://vimeo.com/753072214 Down syndrome innovations https://kcdsi.org If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. ...
#144 - Global Down Syndrome Foundation
November 03, 2022 10:00 - 22 minutes - 31.5 MBMichelle Sie Whitten from the Global Down Syndrome Foundation joined the podcast today as part of our "Meet the Nationals" series. For more information on Global Down Syndrome Foundation https://www.globaldownsyndrome.org Prenatal & Newborn Pamphlet: https://www.globaldownsyndrome.org/prenatal-testing-pamphlet/ GLOBAL Adult Healthcare Guideline: https://www.globaldownsyndrome.org/medical-care-guidelines-for-adults/ If you have a podcast topic you would like us to address, pleas...
#143 - Depression, Anxiety, and OCD in Down syndrome
October 20, 2022 10:00 - 30 minutes - 41.4 MBDr. Anna Esbensen, psychologist with the Thomas Center for Down Syndrome at Cincinnati Children's Hospital, joined the podcast to answer a listener question about psychological issues that are seen in Down syndrome. Thomas Center for Down Syndrome https://www.cincinnatichildrens.org/service/t/down-syndrome/services Association of University Centers on Disabilities https://www.aucd.org/directory/directory.cfm?program=UCEDD The National Association for the Dually Diagnosed (NADD) h...
#142 - Exciting Upcoming Events with DSA Pittsburgh!
October 07, 2022 19:12 - 25 minutes - 34.9 MBTo celebrate Down Syndrome Awareness Month, representatives from the Down Syndrome Association of Pittsburgh (DSAP) joined the podcast today to reflect on their experiences as parents as well as highlight the ongoing work of DSAP. The highlight event of the year is the Buddy Walk which is coming up on October 23, 2022 at Schenley Plaza on the University of Pittsburgh campus. Helpful websites related to the podcast discussion today: DSAP: https://www.dsapgh.org/ or call/text us 4125659...
#141 - National Down Syndrome Society (NDSS)
September 29, 2022 10:00 - 14 minutes - 20.5 MBKandi Pickard, President and CEO of the National Down Syndrome Society, joined the podcast as part of our series on the national organizations who serve people with Down syndrome. You can find more information about NDSS here (https://www.ndss.org). If you have a podcast topic you would like us to address, please email [email protected]. If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please visit https://givetochildrens.o...
#140 - COVID Update - Omicron Boosters!
September 16, 2022 12:53 - 26 minutes - 37.1 MBDr. Nowalk joined the podcast again to give us a general COVID update and discuss specifically the new Omicron boosters. CDC Statement on Omicron Boosters https://www.cdc.gov/media/releases/2022/s0901-covid-19-booster.html If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter...
#139 - National Down Syndrome Congress (NDSC)
September 02, 2022 18:54 - 17 minutes - 24.7 MBJordan Kough, Executive Director of the National Down Syndrome Congress, joined the podcast as part of our "Meet the Nationals" series. To learn more about the NDSC, go to http://ndsccenter.org. If you have a podcast topic you would like us to address, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center and the work that we do, including this podcast, please go to http://givetochildrens.org/downsyndromecenter. Thank you to “...
#138 - Not Down, Up Mommy (with author Antoinette Scaffidi)
August 11, 2022 10:00 - 13 minutes - 19.1 MBAntoinette Scaffidi, author of the children's book Not Down, Up Mommy, joined the podcast to talk about the book and her thoughts on the importance of including children with disabilities in children's books. The book can be found at https://www.amazon.com/Not-Down-Mommy-Antoinette-Scaffidi/ If you have a podcast topic that you would like us to discuss, please reach out at [email protected]. If you would like to partner in the work of the Down Syndrome Center, including this p...
#137 - Swallowing Dysfunction and G-tubes
July 28, 2022 10:00 - 31 minutes - 42.7 MBSpeech language pathologist Sheri Rosen and Pediatric Surgeon Dr. Mike Morowitz joined the podcast to discuss swallow studies and gastrostomy tubes. If you have an idea for a future podcast, please e-mail us at [email protected]. If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please go to https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down S...
#136 - Healthy Lifestyle Choices Around Food and Exercise
July 14, 2022 10:00 - 30 minutes - 42.2 MBShannon Frizzell, registered clinical dietician, joined the podcast today to talk about strategies for healthy weight management in people with Down syndrome. For more information and resources: My Plate https://www.myplate.gov American Academy of Nutrition and Dietetics https://www.eatright.org American Heart Association https://www.heart.org/en/healthy-living/healthy-eating American Diabetes Association https://diabetes.org/healthy-living/recipes-nutrition If there are any ...
#135 - COVID Update (Vaccination for Younger Children, Boosters for Older Children)
July 01, 2022 16:29 - 31 minutes - 42.8 MBDr. Nowalk rejoins the podcast for an update on the COVID pandemic as it relates to people with Down syndrome. Topics discussed include a general COVID update, COVID vaccine booster doses for children >5 years old, primary COVID vaccination for children <5 years old. If you have a topic that you would like us to discuss on a future podcast, please reach out to [email protected]. If you would like to join us in the endeavors of the Down Syndrome Center, including this podcast,...
#134 - The Lucky Few (with Heather Avis)
June 16, 2022 10:00 - 19 minutes - 26.7 MBHeather Avis, co-host of The Lucky Few podcast joined our podcast today to talk about her journey and vision to "change the narrative" when it comes to how society views Down syndrome. To find more information and subscrie to The Lucky Few Podcast, go to https://www.theluckyfewpodcast.com. To find more information on The Lucky Few Podcast Foundation, go to https://theluckyfewfoundation.org/. If you have podcast topics that you would like us to address, please e-mail me at DownSyndr...
#133 - Catching Up with The Improvaneers (with Rob Snow)
June 02, 2022 10:00 - 22 minutes - 31.5 MBRob Snow (creator and founder of The Improvaneers) returns on the podcast to give us an update with how its going on the comedy show, the impacts of COVID, and the vision for the program. You can get more information on The Improvaneer Method by listening to our prior podcast #61 found at https://downsyndromecenter.libsyn.com/size/5/?search=rob+snow. To find out if The Improvaneers are coming to your area and how to get involved, please visit https://www.theimprovaneermethod.com/. If yo...
#132 - Down Syndrome Diagnosis Network (with Jen Jacob)
May 19, 2022 10:00 - 20 minutes - 28.2 MBJen Jacob, Founder and Executive Director of the Down Syndrome Diagnosis Network (DSDN) joined the podcast to talk about their work in the area of information and resource sharing for families. You can get connected to DSDN by going to https://www.dsdiagnosisnetwork.org. If you have any topics that you would like us to cover on the podcast, please reach out to me via e-mail at [email protected]. If you would like to partner with the work of the Down Syndrome Center, including th...
#131 - Domestic Adoption in Ds
May 05, 2022 10:00 - 16 minutes - 23.3 MBStephanie Thompson from the National Down Syndrome Adoption Network (NDSAN) joined the podcast today to talk about their work in domestic adoptions for children with Ds in the U.S. National Down Syndrome Adoption Network http://www.ndsan.org Please e-mail us with any topics you would like us to address on the podcast at [email protected]. To partner with our work, including this podcast, please visit: https://www.givetochildrens.org/downsyndromecenter.
#130 - The NEW 2022 Health Supervision Guidelines for Children and Adolescents with Down Syndrome (with Dr. Marilyn Bull)
April 19, 2022 15:41 - 33 minutes - 46.4 MBDr. Marilyn Bull, lead author of the 2022 American Academy of Pediatrics Health Supervision Guidelines for Children and Adolescents with Down Syndrome, joins the podcast today to discuss the latest guideline update released earlier this week! Dr. Bull is the Morris Green Professor of Pediatrics at Indiana University School of Medicine, Department of Pediatrics, in the Division of Developmental Pediatrics. She is the Director of the Down Syndrome Program at Riley Hospital for Children. T...
#129 - Supplemental Security Income (SSI) and Waivers
April 14, 2022 11:00 - 12 minutes - 9.49 MBDr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss supplemental security income (SSI) and waivers. If there are any topics you would like us to discuss on the podcast, please e-mail us at [email protected]. To partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter