Dementia Carers Count
54 episodes - English - Latest episode: 6 months ago -We are dedicated to family members and friends who are caring for someone with dementia. Through our podcast, we'll be sharing the stories and voices of family dementia carers.
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Episodes
Walk in my Shoes - Beth
October 20, 2023 15:00 - 19 minutes - 17.9 MBKate is joined by Beth, who shares her experience of caring for her dad, and the challenges of finding the right help when it's needed most.
Walk in my Shoes - Debra
October 20, 2023 06:00 - 12 minutes - 11.7 MBKate is joined by Debra, who shares her experience of caring for her husband, dealing with day-to-day challenges and building support networks.
Walk in my Shoes - Barb
October 18, 2023 06:00 - 18 minutes - 17.3 MBKate is joined by Barb, who shares her experience of caring for her mother, making memories, and finding balance.
Walk in my Shoes - Kelvin
October 16, 2023 06:00 - 32 minutes - 29.4 MBKate is joined by Kelvin, who shares his experience of caring for his mother, the unique challenges of being a Black carer, and his work to support the next generation of dementia care.
Dr Raja's Carer Clinic - The impact of changing routines
September 08, 2023 11:26 - 29 minutes - 40.1 MBIn this episode, our Head of Services Sue Hinds joins practising elderly and dementia care specialist Dr Raja to discuss why changing routines might be necessary, the impact it can have, and strategies to help those involved.
Incontinence problems and dementia
June 30, 2023 12:37 - 17 minutes - 24.7 MBIn this episode, Lorraine Haining is joined by Lissy Edwards to answer questions about incontinence and dementia, including the support available and how to talk about emerging problems.
Dr Raja's Carer Clinic - End of life care
June 23, 2023 13:17 - 26 minutes - 36.2 MBIn this episode, Dr Raja Badrakalimuthu is joined by Jane Stanfield to discuss what you can expect when someone you’re caring for enters into end of life care & how to look after your own emotional and psychological wellbeing.
Let's talk about identity
June 13, 2023 07:46 - 26 minutes - 36.4 MB"There's not a ranking system of who's the most carer." In this episode, Helen and Dr Gemima discuss the value of being recognised as a carer, but also why it is important for carers to maintain their own sense of identity, and how to tackle some of the challenges this brings.
Dr Raja's Carer Clinic - Mild Cognitive Impairment
June 08, 2023 09:56 - 28 minutes - 39.8 MBIn this episode, Sue and Dr Raja explore Mild Cognitive Impairment, the difference between dementia and an aging brain, and ways for carers to stay healthy.
Let's talk about sleeping
June 05, 2023 12:42 - 30 minutes - 41.2 MBIn this episode, Sue Hinds and Dr Gemima Fitzgerald discuss the importance of sleep, and the techniques carers can use to get a better night's rest.
A conversation with Sir Michael Morpurgo
May 30, 2023 15:01 - 32 minutes - 44.5 MBIn this episode, Melanie Blanksby speaks to author and former Children's Laureate Sir Michael Morpurgo about his life, telling stories, and the role of older people in our society
Storytelling - the great escape
February 02, 2023 08:25 - 24 minutes - 33.8 MBIn this episode, Nathan Jarvis speaks to AlzAuthors co-founder Marianne Sciucco about the importance of storytelling and sharing positive real life stories for families living with dementia. Explore the AlzAuthors website Get the Alzheimer’s & Dementia Caregiving Stories anthology ebook for free
Dr Raja's Carer Clinic - Dementia Symptoms and Diagnosis
January 27, 2023 11:44 - 25 minutes - 34.8 MBIn this episode, Sue joins Dr Raja in our first carer clinic, where they discuss the signs and symptoms of dementia and how your doctor will make a diagnosis.
Seeing the person, not the dementia
January 20, 2023 12:36 - 24 minutes - 34 MBIn this episode, Melanie Blanksby, acting chief executive at Dementia Carers Count, speaks to dementia campaigner and former carer Tommy Whitelaw about his experience of caring for his mother, and seeing the person and not the dementia.
Tips for managing medications at home
November 21, 2022 13:44 - 23 minutes - 32.5 MBIn this episode, Kate Legg, our Senior Specialist Practitioner, speaks to Specialist Practitioner and Queen's Nurse Lorraine Haining about managing medications at home. The beginning of this episode discusses a leaflet from the World Health Organisation, which can be found here: 5 Moments Leaflet.
The practicalities of returning to work
November 09, 2022 06:18 - 27 minutes - 37.7 MBIn this episode, Sue Hinds, our head of services, speaks to psychologist Dr Gemima Fitzgerald and career consultant Dawn Newey about the practical and emotional elements of returning to work after caring.
Peter is still Peter
November 02, 2022 14:28 - 27 minutes - 37.6 MBIn this episode, Melanie Blanksby, our acting chief executive, speaks to Peter Berry and Deb Bunt about what it means to have early onset dementia, living well with dementia and recognising how important identity and friendship are.
Spirituality and dementia - Carer Identity
October 26, 2022 05:30 - 22 minutes - 31.2 MBIn this episode, Kate Legg, our Senior Specialist Practitioner, speaks to Jane Stanfield, who as well as being an associate practitioner at Dementia Carers Count is also a chaplain in a dementia nursing home. They discuss how spirituality is important for both people with dementia and those who care for them, as well as answering your questions about how to stay involved with the faith and spiritual enrichment of a person with dementia.
The Benefits of Good Company
October 19, 2022 15:24 - 23 minutes - 31.8 MBIn this episode, Helen, our head of campaigns, speaks to Lucy and Felicity from the Good Company People, about how their organisation supports people with dementia, and the challenges of building a startup not-for-profit whilst being carers themselves.
Rebecca's Grandad
October 12, 2022 14:30 - 22 minutes - 31 MBIn this episode, Melanie, our acting chief executive, speaks to Rebecca Fuller, The Archers' Beth Casey, about her family's experience of dementia.
Visual Tools
October 05, 2022 06:37 - 26 minutes - 36.5 MBIn this episode, Sue Hinds, our Head of Services, speaks to Gina Smith, Founder of Create Visual Aids, about how we can use visual aids to work through communication challenges and help support people with dementia who have memory difficulties. Episode links: https://www.createvisualaids.co.uk/ https://www.talkingmats.com/
Dealing with daily needs
September 30, 2022 12:46 - 22 minutes - 31.2 MBIn this episode, Specialist Practitioner Lorraine Haining speaks to Kate Legg, Senior Specialist Practitioner, about some of the challenges people with dementia can have with daily tasks like washing or eating and drinking, and how we can resolve these challenges and prevent them becoming bigger problems.
Reaching Crisis
September 21, 2022 07:01 - 23 minutes - 31.8 MBIn this episode, Melanie, our acting chief executive, speaks to Helen and Gemima about the results of our carer survey and how carers can cope when they reach crisis. If you feel you've reached crisis point or are struggling to cope, Dementia Carers Count is here to help. 0800 652 1102 Our 0800 number is a free phone line to talk about the struggles you're having with a member of our team.
United: Caring for our loved ones living with dementia - an interview with the authors
September 15, 2022 14:48 - 24 minutes - 33.2 MBIn this episode, Melanie, our acting chief executive, speaks to Gina Awad and Tony Husband about their book "United: Caring for our loved ones living with dementia". They explore some of the book's themes, as well as speaking about how the real life stories the book tells have affected them and their own relationship with dementia.
Let's talk about grief
September 08, 2022 10:53 - 24 minutes - 34.1 MBIn this episode Sue, our head of services, speaks to Dr Gemima Fitzgerald, a clinical psychologist and one of our associate practitioners, about grief in relation to dementia. They also answer listener questions and share ways to help resolve and respond to the grieving process.
Music and Dementia Care
August 24, 2022 09:31 - 25 minutes - 34.9 MBMusic is an important tool in dementia care, with benefits for both the person with dementia and their carers. In this episode our specialist practitioners Katy and Kate discuss how to use music to improve the quality of life for people with dementia by reducing stress and bringing back memories. They also answer listener questions and share how anyone can use music to help care for people with dementia.
Carer Wellbeing
August 17, 2022 09:45 - 21 minutes - 30.2 MBIn this episode Kate is joined by wellbeing coach and associate practitioner Andrew Embling to discuss simple ways that carers can use to improve their mental wellbeing. Learning about everything from ha breathing exercises to the lesser-known wonders of the outdoors, this episode of the Dementia Carers Count podcast really is a must listen for anyone who looks after someone with dementia.
Nobby and Dementia: An interview with John Stiles
August 03, 2022 10:32 - 21 minutes - 29.9 MBFive of the 1966 World Cup winning England squad have gone on to develop dementia. In this episode, our chief executive Melanie speaks to John Stiles, son of Nobby Stiles, about the effect Nobby's dementia had on his family and their experience with the disease. John also talks about raising awareness of CTE - chronic traumatic encephalopathy - a condition caused by heading the ball in football, which is believed to contribute heavily to developing dementia later in life.
Carers Rights and Benefits During a Cost of Living Crisis
June 24, 2022 13:49 - 21 minutes - 29.8 MBRecorded during our Facebook Live Q&A session on 16/06/2022, Helen and Jane discuss real-life examples of the challenges faced by dementia carers. We cover the rising cost of living, Carers Assessments and power of attorney. We also look at the things you should consider after a diagnosis of dementia.
Series 2 - A Taster of Every Small Step 2021
October 12, 2021 07:35 - 3 minutes - 5.18 MBThis is just a taster of what we have lined up for you during our five-day celebration of the lives and contributions of family dementia carers. We look forward to walking with you and listening to incredible stories together. Thank you for elevating the voices of the 700,000 people in the UK supporting a friend or relative with dementia. Thank you for helping us make dementia carers count. #EverySmallStep2021 http://www.dementiacarers.org.uk/event
David & Terry (Every Small Step 2021)
October 12, 2021 07:29 - 22 minutes - 31.2 MBDavid and Terry are two of our wonderful family carers that took part in Every Small Step last year. We loved listening to their conversation so much that we asked them to come back for Every Small Step 2021, and we were delighted when they accepted. If you didn't catch their conversation last year, you can watch the animation we made of it here. Ambassadors for Dementia Carers Count, David and Terry are active in the dementia community, and they are passionate about sharing their stories t...
Hannah and Rebecca: Seeing life decades ago (Trailer)
October 12, 2021 07:15 - 1 minute - 2.59 MBHannah founded The Joy Club in 2019 (an online activity club that provides inspiration for a more joyful retirement ), inspired by her grandmother’s experience of dementia to focus on increasing healthy life expectancy for all. Rebecca is the Director of Dramaworkshop, a drama school for young people aged 7-20 whose aim is to inspire and develop confidence, creativity and imagination. In January 2020, Rebecca released a poem about her Grandad’s dementia which went viral. #EverySmallStep...
Hannah & Rebecca (Every Small Step 2021)
October 12, 2021 07:13 - 17 minutes - 23.7 MBHannah founded The Joy Club in 2019 (an online activity club that provides inspiration for a more joyful retirement ), inspired by her grandmother’s experience of dementia to focus on increasing healthy life expectancy for all. Rebecca is the Director of Dramaworkshop, a drama school for young people aged 7-20 whose aim is to inspire and develop confidence, creativity and imagination. In January 2020, Rebecca released a poem about her Grandad’s dementia which went viral.
Shaun Deeney (Every Small Step 2021)
October 12, 2021 07:08 - 17 minutes - 24.2 MBShaun is a former journalist and Emmy award-winning film and TV producer turned writer. He recently published the memoir Love and Care which charts his first year learning to care for his mum, who has Parkinson's dementia. #EverySmallStep2021 http://www.dementiacarers.org.uk/event
Andrew Embling (Trailer)
October 12, 2021 06:59 - 21 minutes - 29.9 MBAndrew is a wellbeing coach and trainer and an Specialist Practitioner with Dementia Carers Count. Andrew's interest in dementia stemmed from his mother’s diagnosis, and he was introduced to our charity when he attended one of our courses. Andrew says working with Dementia Carers Count is like joining a family with the shared intention of helping and empowering family dementia carers. Join Andrew for #EverySmallStep2021 http://www.dementiacarers.org.uk/event
Andrew Embling (Every Small Step 2021)
October 12, 2021 06:55 - 21 minutes - 29.6 MBAndrew is a wellbeing coach and trainer and a Specialist Practitioner with Dementia Carers Count. Andrew's interest in dementia stemmed from his mother’s diagnosis, and he was introduced to our charity when he attended one of our courses. Andrew says working with Dementia Carers Count is like joining a family with the shared intention of helping and empowering family dementia carers. Join Andrew for #EverySmallStep2021 http://www.dementiacarers.org.uk/event
John Stiles (Every Small Step 2021)
October 12, 2021 06:16 - 16 minutes - 23 MBJohn is a former footballer turned comedian and son of the legendary footballer Nobby Stiles, who died last October with advanced dementia. John spoke to us about his relationship with his father, the moments he cherished and the heavier stuff too. As well as his hopes for the future of dementia and football. Join John for #EverySmallStep2021 http://www.dementiacarers.org.uk/event
Giles Paley-Phillips (Every Small Step 2021)
October 12, 2021 06:11 - 19 minutes - 27 MBGiles is an award-winning author, influencer and co-host of the Blank podcast. Giles lost his mother to leukaemia when he was just six years old, and his grandmother was later diagnosed with dementia. Giles spoke to us about living with grief, using kindness as a force for change and practising gratitude. Join Giles for #EverySmallStep2021 http://www.dementiacarers.org.uk/event
Pippa & Trevor (Every Small Step 2021)
October 12, 2021 06:00 - 15 minutes - 21.7 MBPippa is a dementia writer and advocate. She writes prolifically about the elderly, their care and its funding, and about dementia, which she describes as stealing her mum from her family in a drawn-out 10-year raid. She is also the host of the award-winning podcast ‘Well I know now’. Trevor sits on our Carers Advisory Panel and is married to Yvonne who has young-onset Alzheimer’s and lives in a care home. He is passionate about helping other carers and since 2018 have spoken publicly at ev...
Lorraine Haining (Every Small Step 2021)
October 12, 2021 05:55 - 18 minutes - 25.7 MBLorraine is a Specialist Nurse Practitioner and Specialist Practitioner with Dementia Carers Count. For the last 18 years, Lorraine has worked in the field of dementia in the community in a variety of roles including as a community psychiatric nurse, in research, training and management, and as the head of dementia services in a retirement village. She’s currently the lead nurse for the IDEAS (Interventions for Dementia, Education, Assessment and Support) team at NHS Dumfries and Galloway. ...
Yael & Heather: Always on call (trailer)
October 12, 2021 05:42 - 2 minutes - 3.71 MBYael Shotts is our Community Engagement Officer. She leads our team of wonderful volunteers and attends carer and community groups all over the country telling people about our life-changing courses and recruiting Ambassadors to spread the word about our work. Yael was drawn to our charity because of her personal experience of her grandmother's Alzheimer's. Heather Brown is one of our Ambassadors and a true inspiration. Having cared for both her husband and her father with dementia, Heather...
Yael & Heather (Every Small Step 2021)
October 12, 2021 05:40 - 19 minutes - 26.7 MBYael Shotts is our Community Engagement Officer. She leads our team of wonderful volunteers and attends carer and community groups all over the country telling people about our life-changing courses and recruiting Ambassadors to spread the word about our work. Yael was drawn to our charity because of her personal experience of her grandmother's Alzheimer's. Heather Brown is one of our Ambassadors and a true inspiration. Having cared for both her husband and her father with dementia, Heather...
Lorraine Haining: You're not alone (trailer)
October 11, 2021 15:07 - 3 minutes - 4.36 MBLorraine is a Specialist Nurse Practitioner and Specialist Practitioner with Dementia Carers Count. For the last 18 years, Lorraine has worked in the field of dementia in the community in a variety of roles including as a community psychiatric nurse, in research, training and management, and as the head of dementia services in a retirement village. She’s currently the lead nurse for the IDEAS (Interventions for Dementia, Education, Assessment and Support) team at NHS Dumfries and Galloway. ...
Giles Paley-Phillips: The real Nana Q
October 11, 2021 06:36 - 3 minutes - 5.24 MBGiles is an award-winning author, influencer and co-host of the Blank podcast. Giles lost his mother to leukaemia when he was just six years old, and his grandmother was later diagnosed with dementia. Giles spoke to us about living with grief, using kindness as a force for change and practising gratitude. The full episode will be available on 13th October 2021 for #EverySmallStep2021 http://www.dementiacarers.org.uk/event
Peter and Deb: Slow Puncture (Trailer)
October 04, 2021 14:41 - 2 minutes - 3.24 MBPeter was diagnosed with Alzheimer’s disease in early 2015 aged 50. Deb is Peter’s best friend. They go cycling together every day and their friendship has enabled. Peter to continue cycling when he might otherwise have had to stop. This is a taster of their candid conversation as Peter tells the world what it is really like to live with a terminal condition and Deb learns to enjoy each day more fully. The full podcast episode will be published on 13th October 2021 for #EverySmallStep2021....
Peter Berry & Deb Bunt (Every Small Step 2021)
October 04, 2021 14:18 - 16 minutes - 22.9 MBPeter was diagnosed with Alzheimer’s disease in early 2015 aged 50. He lives in Saxmundham, Suffolk with his wife Teresa. He records a weekly video diary detailing his experiences and sharing advice for others about living with young onset dementia. After his diagnosis, Peter became very depressed but, being a ‘glass half full’ personality, has battled through this depression and focused on his main passion for cycling. He has used this passion to raise awareness of the condition, particular...
John Stiles
June 17, 2021 16:06 - 16 minutes - 15.1 MBTo commemorate Father’s Day, we recorded a podcast with John Stiles about his family’s experience of caring for his father, the legendary footballer Nobby Stiles, who died last October with advanced dementia. John is a former footballer turned comedian and an ardent supporter of Dementia Carers Count. In this podcast, he shared heart-warming tales from his childhood and spoke about his relationship with his father - the moments he cherished and the heavier stuff too.
Suzy Webster
March 14, 2021 07:00 - 26 minutes - 24.4 MBSuzy Webster spoke to us about her experience of caring for her mother, who has a diagnosis of hydrocephalus and Alzheimer’s Disease. Suzy won the award for An Exceptional Contribution by a Family Carer at last year’s Dementia Care Awards. An award which was advocated and sponsored by Dementia Carers Count. We are incredibly grateful that she shared her story with us.
Shobna Gulati and Nimisha (Every Small Step 2020)
March 14, 2021 06:00 - 18 minutes - 34.3 MBShobna Gulati is an award-winning actor, dancer, choreographer and presenter, Shobna recently published 'Remember me? Discovering My Mother as She Lost Her Memory'; a memoir on losing her mother to dementia. In her podcast, episode Shobna speaks to Nimisha, who cares for her grandmother, about the highs and lows of their caring experiences and shares an insight into some of the amazing work that family carers do every day.
Claire Goodchild and Juliet Long (Every Small Step 2020)
February 17, 2021 12:05 - 20 minutes - 38.3 MBIn this podcast, Claire, the Chief Executive of Dementia Carers Count, speaks to former carer Juliet Long about Juliet’s experience of caring for her mother. They discuss the duty that plays into caring roles and the ongoing support Juliet receives from the people she met on DCC’s course.