"Showing Our Stripes for Rare Disease Day…"
Connecting ALS
English - February 25, 2021 16:37 - 20 minutes - 37 MB - ★★★★★ - 48 ratingsHealth & Fitness Society & Culture als lou gehrig health research advocacy awareness connecting Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: "Traveling While Living With ALS…"
Next Episode: "Finding Hope on the Horizon Through ALS Research…"
This week, Mike and Jeremy are joined by Debbie Drell, director of membership at the National Organization for Rare Disorders, to discuss Rare Disease Day, the origin of NORD’s “Show Your Stripes” campaign and how NORD’s patient advocacy work has continued during the pandemic.
For more information on Show Your Stripes go to https://rarediseases.org/rare-disease-day/
This episode was produced by Garrett Tiedemann and is brought to you by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter.