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FDA Advisory Committee to Consider Tofersen…
Connecting ALS
English - March 09, 2023 05:01 - 27 minutes - 62.7 MB - ★★★★★ - 48 ratingsHealth & Fitness Society & Culture als lou gehrig health research advocacy awareness connecting Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Expanded Efforts at Advocacy in States…
Next Episode: Pressing for Increased Federal Funding for the Fight…
This week Jeremy talks to Dr. Neil Thakur about The ALS Association’s comments to the FDA urging them to approve tofersen, a gene therapy targeting SOD1 mutations. He then digs into the tofersen clinical trials with lead investigator Dr. Timothy Miller.
For more information on genetic testing and counseling go to https://www.als.org/understanding-als/who-gets-als/genetic-testing
This episode is brought to you by The ALS Association in partnership with CitizenRacecar.