Living with Crohn's Disease artwork

Living with Crohn's Disease

47 episodes - English - Latest episode: about 1 year ago -

Joe talks about his life with Crohn's from being diagnosed at 25, through surgeries, and other situations that you go through in the battle with Crohn's Disease. Through it all he has found a way to stay positive even during the worse days. He will share how he gets through testing day whether it would be an MRI or coloncscopy. Joe is sharing his side through a patients point of view and not a doctor's. He shares how to communicate with the doctor's and nurses that help him fight this chronic illness.

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Episodes

EP 22: Crohn's Test Results/Skin Cancer Surgery

February 20, 2023 02:00 - 38 minutes - 26.2 MB

In this episode, Joe updates everyone on the test results of his MRI and colonoscopy.   Will there be surgery?  He also shares his experience with skin cancer surgery and how he is handling it.  #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitis...

EP 21: Update on recovery

January 31, 2023 06:00 - 40 minutes - 27.8 MB

In episode 21, Joe give an update on his recovery and how he is trying to take positive steps.  He talks about his walks at different distances each day and talks about his tests that are coming up for him.  Joe also gives advice on how to talk to doctors when you are in the hospital and seeing different doctors every week.  He shares one thing he is having problems with mentally throughout this whole process. #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsaw...

Repost ep 17: 101 days in the hospital...Summer in the hospital

January 13, 2023 08:00 - 1 hour - 41.6 MB

Since July 21, Joe has been in the hospital with bleeding bowel movements.  But they haven't found where it was coming from for a long time.  The doctors going through all different kinds of situations to treat what is going on because they can't pinpoint where it was coming from and surgery being the last option.  Joe shares his story of what he went through that has ended up being 101 days in the hospital and 68 blood transfusions this year....so far. #crohns #ibd #crohnsdisease #colitis ...

Repost ep 4: Going through Crohn's flare up, waiting room, prepping for hospital stay

December 29, 2022 19:00 - 48 minutes - 33.5 MB

Joe talks about how it feels to go through a flare up and going to the Emergency room.  He also talks about what to take with you when going to the hospital because it might night be just a one day visit.  Joe talks about prepping and being ready and have a list of what to take with you. Any questions or comments contact Joe:  [email protected] #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #croh...

Ep 20 Trying not to see red

December 22, 2022 05:00 - 27 minutes - 19.1 MB

Joe talks about how he has been doing for the last month from walking to hoping not to see blood when he empty his ostomy bag.  He talks about having another blood transfusion (#75 and #76 for the year) and what is coming up next for him with tests and doctors.  He hopes to one day travel and talk at Crohn's conventions, to give a patients point of view and not just doctors.  Have a happy holiday everyone!! Any questions or comments you can email Joe:   [email protected] #crohns #...

Repost EP 1: First days of Crohn's...diagnosed, learning, and 1st surgery

December 01, 2022 15:00 - 46 minutes - 31.8 MB

Joe is reposting his first episode to help people on what it is like to go through all the tests and being diagnosed with Crohn's.  He shows what it was like for him learning about this disease and how it could effect everyday life.  Leading up to his first surgery.   #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #infl...

repost ep 16: Hard Road to Recovery...Mentally and Physically

November 25, 2022 08:00 - 32 minutes - 22 MB

Joe talks about his road to recovery after some time in the hospital.  He talks about ways he stays positive and tries to be happy about the little things. #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #inf...

EP 19: Living with an Ostomy Bag

November 21, 2022 07:00 - 47 minutes - 32.5 MB

Joe talks about his life with the ostomy bag and how seeing blood in the bag 5 nights in a row scared him to where he tried everything not to go back to the ER.  He came up with solutions on how he dealt with it and tries to stay on top of things, to prevent it from going further than 3-5 hours long.   #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisi...

Another hospital visit and transfusions

November 06, 2022 18:00 - 36 minutes - 24.9 MB

Joe talks about his visits to the hospital after seeing blood is his ostomy bag and how scary it was for him.  He also talks about all the different doctors that see him in the hospital and how to communicate with them and yet making sure that the Crohn's doctor and/or surgeon is still in charge of everything going on and not just the doctor's who show up at your bedside.  Communication with nurses and doctors are very important and Joe discusses how to make sure you know what is going on an...

Summer in the hospital

October 14, 2022 21:00 - 1 hour - 41.6 MB

Since July 21, Joe has been in the hospital with bleeding bowel movements.  But they haven't found where it was coming from for a long time.  The doctors going through all different kinds of situations to treat what is going on because they can't pinpoint where it was coming from and surgery being the last option.  Joe shares his story of what he went through that has ended up being 101 days in the hospital and 68 blood transfusions this year....so far. #crohns #ibd #crohnsdisease #colitis ...

Repost ep 4: Going through Crohn's flare up, waiting room, prepping for hospital stay

July 08, 2022 07:00 - 48 minutes - 33.5 MB

Repost EP 4:   Joe talks about going through a flare up and how he prepares for staying in the hospital.  He talks about what it was like to be in the waiting room and setting up a backpack of things that would make the experience easier and quicker.  He hopes this helps people with their stay no matter if it is for a weekend or longer. #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohns...

Repost ep 3: Emergency surgery with ostomy bag

July 06, 2022 22:00 - 54 minutes - 37.6 MB

Repost EP 3:   Joe shares his experience with emergency surgery.  He talks about how scary it was going through it and what happened afterwards with an ostomy bag.  Joe discusses how hard it was for him physically and mentally through it all.  It soon lead to his 4th surgery (3rd in the last year), to reconnect the intestine. #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis ...

Repost EP 1: First days with Crohn's...First Surgery

June 12, 2022 07:00 - 46 minutes - 31.8 MB

Reposting episode 1.  Joe talks about his days leading up to being diagnosed with Crohn's Disease.  He talks about the tests and going to new doctor's/specialist and trying to understand what is going on and what will happen next.  Joe, also talks about his first surgery and how he dealt with the outcome and results from it. #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  ...

Hard Road to Recovery...Mentally and Physically

June 09, 2022 00:00 - 32 minutes - 22 MB

In this episode, Joe talks about how his recovery is going after his month stay with 26 blood transfusions and 20 pound weight loss.  He talks about how it was hard for him to accept going for small walks and his day being done after that because of how tired he got.  Joe talks about going through the disability  to get payments to help with bills and rent.   #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy ...

Repost ep 2: more surgeries

May 15, 2022 19:00 - 41 minutes - 28.7 MB

This is a repost and talk about another surgery he had.  He talks about what it is like and feeling of going through it again with different preparation this time around.   #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #coli...

Ep. 15: 28 days in hospital...26 blood transfusions...and the mystery continues

May 02, 2022 19:00 - 1 hour - 54.6 MB

In this episode, Joe talks about going back into the hospital.  He spent over two weeks in the hospital and two different hospitals to find the resolution of where the bleeding in his intestines are coming from.  In 31 days, he spent 28 days in the hospital, 26 blood transfusions, and lost over 20 pounds.  He talks about how his body shut down and how frustrating it was going through all the tests and not finding where it was coming from so the doctors could resolve it.  Joe's body so worn d...

EP 14. Colonscopy and two hospital visits in two weeks

April 04, 2022 23:00 - 58 minutes - 40.4 MB

In this episode, Joe talks about his colonscopy and his two visits to the hospital.  One was like a crohn's flare up, while the second visit was a little more nerve reckoning to Joe and his family.  He had to call 911 for himself and where he couldn't get off the stretcher to go to the bathroom because his legs wouldn't move.  Where in 48 hours, Joe went from ER to ICU to cardiac center to overnight patient room.  Joe talks about his experience with nurses and doctors through his last two we...

Repost Ep 7: Dealing with stress of Crohn's...mentally, physically, and financially

March 16, 2022 20:00 - 1 second - 18.4 MB

In this episode, Joe talks about the stresses of Crohn's and always being in pain and finding people around you that are supportive.  He talks about doing things that make you happy even more a short amount of time to get your mind off of cramps or even upcoming appointments.  Joe shares his examples of this and how he has tried to stay positive through it all, even financially.  Hope you can find something in this episode to help you. #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ib...

Repost EP 1: First days with crohn's and first surgery

March 13, 2022 17:00 - 46 minutes - 31.8 MB

Reposting episode 1.  Joe talks about his days leading up to being diagnosed with Crohn's Disease.  He talks about the tests and going to new doctor's/specialist and trying to understand what is going on and what will happen next.  Joe, also talks about his first surgery and how he dealt with the outcome and results from it. #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  ...

EP 13...Emergency Stent Replace and Preparing Questions for Doctors

March 07, 2022 20:00 - 35 minutes - 24.4 MB

*Warning graphic content*.   After getting good news about a new part time job, Joe gets bad news the next day that his stent in his urinary tract moved close if not in the bladder area and had to have it replaced.  His recovery was unexpected from what happen in his previous two stent replacements, which was graphic and nerve racking experience if you aren't use to it.  Joe talks about preparing questions for procedures and surgeries, especially when you are recovering from home.  What you ...

Ep 6 repost: What foods may help and hurt you...also prepping to go to the hospital

February 20, 2022 19:00 - 42 minutes - 29.4 MB

Joe understands that everyone is different with this disease, not only with the symptoms but with eating also.  Sometimes keeping it simple is the best way.  He also shares how to prep for going to the hospital with a flare up by bring a backpack of clothes and other things you may need to help the time there go by more comfortable. #crohnlife  #crohnsandcolitis  #livingwithcrohns  #purplestrong  #crohnies #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawaren...

Ep 12 Different hospital visiting mandates

February 14, 2022 22:00 - 29 minutes - 20.2 MB

Joe talks about talking to all his doctors and getting his stint in his urinary tract replaced.  He wanted to talk about his experience with two different hospitals about visitors coming to see you as a patient or having a test or surgery.  Joe wanted to help you out and give awareness in what might come up if you are in the hospital for one day or a couple, so  you are prepared for situations like that. #crohnslife  #livingwithcrohnsdisease  #crohnsandcolitis  #urinarytract  #purplestrong ...

Repost EP 4...Going through Crohn's Flare up, waiting room and hospital stay

January 29, 2022 19:00 - 48 minutes - 33.5 MB

Joe talks about his flare up that sent him to the hospital.  In the waiting room, a suicidal man walked in yelling and screaming that he wants help or he is going to kill himself.  It was just Joe and him in the waiting room.  Joe also talks about his stay in the hospital while bleeding, and shares what he brought to make the stay more bearable for him. #livingwithcrohns  #crohnslife  #purplestrong #crohnsandcolitis  #crohnsflareup #crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwar...

Ep11 Joe's urinary tract effected by Crohn's

January 04, 2022 21:00 - 43 minutes - 29.7 MB

In this episode, Joe shares his experience about how Crohn's and his intestines are effecting his urinary tract.  He shares about the experience of going through his first surgery of getting the stint put into his urinary tract and the pain that soon followed.  This is what he is going through today and could lead to major kidney and urinary tract surgery soon.   #crohnslife  #crohnsandcolitis #livingwithcrohns  #livingwithcrohnsdisease  #purplestrong  #urinarytract  #stintinurinarytract  #...

Repost episode7: Dealing with stress of Crohn's...mentally, physically, and financially

December 19, 2021 14:00 - 26 minutes - 18.4 MB

In this episode, Joe talks about how he is dealing with stress and how it is effecting him physically with Crohn's.  Crohn's isn't always through the physical strain felt but also financially.  Joe talks about setting aside money for the different tests or events you may have with Crohn's.  He also wants to remind you to set aside time for yourself, even in the middle of the day, and reenergize yourself for the rest of the work day. #crohnslife  #purplestrong #crohnandcolitis #staystrong #l...

Episode 1 repost: First days of Crohn's and First surgery

December 12, 2021 20:00 - 46 minutes - 31.8 MB

Joe talks about his symptoms leading up to being diagnosed with Crohn's Disease.  He talks about how he handled it and leading up to his first surgery and then days after getting out of the hospital taking his last final to graduate college. #crohnslife  #crohnsandcolitis  #purplestrong  #livingwithcrohns  #crohnsdisease  

Repost Ep 1 First days with Crohn's and first surgery

December 10, 2021 07:00 - 16 minutes - 11.2 MB

Joe shares about his first time learning about Crohn's Disease, at age 25, and the struggles it soon came with.  Going to college, coaching, and even eating was hard.  Joe also shared about his time with all the tests which lead to his first surgery and taking his last final to graduate college, just days after coming home from surgery. #crohnslife  #purplestrong  #crohnsandcolitis  #livingwithcrohns  #livingwithcrohnsdisease email: [email protected]

86 times

December 05, 2021 23:00 - 28 minutes - 19.7 MB

Episode 10.   Joe talks about his past week of going to see 3 doctors for 3 different things...Crohn's, back, and urinary tract.  He shares about his procedure with his urinary tract and what is going on with everything else.  With this being Crohn's and Colitis Awareness week, Joe kept track of something that everyone deals with everyday....just Crohn's patients more than others.   email:  [email protected] #crohnslife  #crohnsandcolitis  #purplestrong  #staypositive  #crohnsdise...

Ep 6 repost: What foods may help and hurt you...also prepping to go to the hospital

November 22, 2021 22:00 - 42 minutes - 29.4 MB

Joe understands that everyone is different when it comes to eating with Crohn's Disease.  He shares some things that have been working out for him and others that he learned the hard way that does not.  Joe also helps how to prepare when going the hospital or ER, because he knows that if he has a flare up he will be there for probably 3 days.  He shares on things to bring and even where to get them online. (below are the links some of the items mention), but also plan a schedule so you can m...

ep9. talking to more doctors

November 09, 2021 21:00 - 21 minutes - 14.8 MB

Joe talked to his urologist and primary doctor on x-rays and procedure to make sure everything will be ready for possible surgery in the near future.  He talks about missing out on coaching basketball this season, for the second time in his 20 year "career".  He wants to help people out living with crohn's, by giving little tips on how take advantage of a good day and try to stay positive in the bad days. #livingwithcrohns  #crohnsandcolitis #purplestrong #crohnslife

Repost ep4 Going through a Crohn's Flare Up

November 01, 2021 21:00 - 48 minutes - 33.5 MB

Joe talks about his flare up that sent him to the hospital.  In the waiting room, a suicidal man walked in yelling and screaming that he wants help or he is going to kill himself.  It was just Joe and him in the waiting room.  Joe also talks about his stay in the hospital while bleeding, and shares what he brought to make the stay more bearable for him. #livingwithcrohns  #crohnslife  #purplestrong #crohnsandcolitis  #crohnsflareup

Repost scary 3rd surgery Ep. 3

October 27, 2021 23:00 - 54 minutes - 37.6 MB

This is a repost of episode 3, where Joe was in so much pain he couldn't get out of the chair with out paramedics help, which lead to emergency and possible life saving surgery.  The physical and mental this cause to him and introduced him to an ostomy bag.   #crohnslife  #crohnsandcolitis  #purplestrong  #livingwithcrohns

Health update

October 20, 2021 00:00 - 22 minutes - 15.6 MB

Joe shares an update on his health and what he is going through at this time.  Possible surgery, enlarged kidney, and muscle weakness.  He shares what will happen next and will give updates throughout. Email:  [email protected] #crohnslife   #livingwithcrohns  #purplestrong  #crohnsandcolitis  

2nd Surgery repost

September 29, 2021 03:00 - 41 minutes - 28.7 MB

This is a repost that  Joe wants to share again.  Joe talks about his 2nd surgery that was planned.  He talks about how it not only challenged him physically but mentally and emotionally.  He shares how he dealt with it, not knowing this will not be his last. #crohnslife  #crohnsandcolitis  #purplestrong #lifewithcrohns  #livingwithcrohns

Dealing with stress of Crohns...mentally, physically, and financially

September 21, 2021 21:00 - 26 minutes - 18.4 MB

In this episode, Joe talks about how he is dealing with stress and how it is effecting him physically with Crohn's.  Crohn's isn't always through the physical strain felt but also financially.  Joe talks about setting aside money for the different tests or events you may have with Crohn's.  He also wants to remind you to set aside time for yourself, even in the middle of the day, and reenergize yourself for the rest of the work day. #crohnslife  #purplestrong #crohnandcolitis #staystrong #l...

First days with Crohns and first surgery

September 10, 2021 06:00 - 46 minutes - 31.8 MB

Joe introduces himself and talks about being diagnosed with Crohn's Disease that lead up to his first surgery.  This podcast is from his point of view and what it felt like not know what the doctor's were talking about, the physical and emotional pain, and spending 3 weeks in the hospital after his first surgery. Email any questions to Joe at   [email protected] #crohnslife  #purplestrong  #crohnsandcolitis #livingwithcrohnsdisease *repost because this is free do have it on here ...

What foods may help and hurt you...also prepping to go to the hospital

August 29, 2021 20:00 - 42 minutes - 29.4 MB

Joe understands that everyone is different when it comes to eating with Crohn's Disease.  He shares some things that have been working out for him and others that he learned the hard way that does not.  Joe also helps how to prepare when going the hospital or ER, because he knows that if he has a flare up he will be there for probably 3 days.  He shares on things to bring and even where to get them online. (below are the links some of the items mention), but also plan a schedule so you can m...

New job with the Giants...then this happen

August 13, 2021 23:00 - 52 minutes - 36 MB

In this episode, Joe gives a little update on how he is doing since his hospital visit two weeks ago.  He talks about his first days with the Giants, working as part of the grounds crew, but also how something unexpected happen the day of 2nd training day with the Giants, that revealed to be a brain tumor.  Joe explains what it was like to go through that situation and not knowing if it was cancerous or not.  And unfriendly Crohn's was still making a guest appearence through this time too.  ...

New job...Crohn's Flare up...then brain tumor surgery all in 3 months

August 13, 2021 23:00 - 52 minutes - 36 MB

In this episode, Joe gives a little update on how he is doing since his hospital visit two weeks ago.  He talks about his first days with the Giants, working as part of the grounds crew, but also how something unexpected happen the day of 2nd training day with the Giants, that revealed to be a brain tumor.  Joe explains what it was like to go through that situation and not knowing if it was cancerous or not.  And unfriendly Crohn's was still making a guest appearence through this time too.  ...

New job with the Giants...Crohn's Flare up...then brain tumor surgery all in 3 months

August 13, 2021 23:00 - 52 minutes - 36 MB

In this episode, Joe gives a little update on how he is doing since his hospital visit two weeks ago.  He talks about his first days with the Giants, working as part of the grounds crew, but also how something unexpected happen the day of 2nd training day with the Giants, that revealed to be a brain tumor.  Joe explains what it was like to go through that situation and not knowing if it was cancerous or not.  And unfriendly Crohn's was still making a guest appearence through this time too.  ...

New job with the Giants...then they found a brain tumor

August 13, 2021 23:00 - 52 minutes - 36 MB

In this episode, Joe gives a little update on how he is doing since his hospital visit two weeks ago.  He talks about his first days with the Giants, working as part of the grounds crew, but also how something unexpected happen the day of 2nd training day with the Giants, that revealed to be a brain tumor.  Joe explains what it was like to go through that situation and not knowing if it was cancerous or not.  And unfriendly Crohn's was still making a guest appearence through this time too.  ...

Going through a Crohn's Flare up

August 03, 2021 20:00 - 48 minutes - 33.5 MB

In episode 4, Joe talks about what he goes through during a flare up.  (Understand everyone is different and even every time can be different experience) He describes about working for the San Francisco Giants, as part of the grounds crew and meeting his favorite player of all time...Will Clark.  How something so fun and could be going on and then two days later, end up in the hospital.  Joe also had an interesting experience this time in the ER waiting room, with  someone that was looking t...

Scary times leading to 3rd surgery

July 12, 2021 23:00 - 54 minutes - 37.6 MB

In episode 3, Joe shares his story about the scariest thing that happen in his bout with Crohn's Disease.  He talks about how his pain from what thought was a flare up turned into emergency surgery.  He discusses how he didn't know how bad he really was or where he was recovering until days later.  He also shares getting to sit front row at a Pearl Jam concert and then a California State Championship. Feel free to ask questions to Joe at:   [email protected] #crohnslife  #purplest...

2nd Crohn's surgery hitting me hard

June 24, 2021 23:00 - 41 minutes - 28.7 MB

In episode 2, Joe starts to talk about the fun time he had coaching college basketball and going to the NAIA National Tournament.  Soon after what feels like a pulled muscle turns out to be something more, which leads to a second surgery and the complications that come with it.  Joe talks about getting hit with bacteria in the blood and depression in the hospital that soon followed. #crohnslife  #purplestrong  #crohnsandcolitis #livingwithcrohnsdisease

NBA and NHL playoffs and more

May 17, 2021 05:00 - 36 minutes - 25.2 MB

Coach Joe talks about the NHL and upcoming NBA playoffs and gives his predictions on both.  He also gives an update on MLB action and games to watch the upcoming week.  You can email him at [email protected].  Open to talking points or questions about sports or teams you might have.  Have a great week

Sports update and who shows the best coverage in sports

April 25, 2021 17:00 - 26 minutes - 18.4 MB

Baseball and basketball updates....Also Coach Joe goes off on MLB Network to show more games from the past and around the world.  NBA TV does a great job, but there Coach Joe surprises everyone on the sports network that is the leader of showing coverage.

Final Four and Teams to watch in baseball

April 02, 2021 23:00 - 31 minutes - 21.5 MB

Coach Joe introduces himself to the podcast world in his first podcast.  Talks about the Men's Final Four matchups and teams that might be fun to watch this upcoming baseball season.