Episode 199 | Kate's Story- A daughter with Infantile Spasms
Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist
English - December 13, 2023 07:00 - 33 minutes - 30.5 MB - ★★★★★ - 78 ratingsParenting Kids & Family Health & Fitness Medicine nurse parents resident cancer child childlife childlifespecialist condition disease doctor Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Join me for an emotional and insightful conversation as I sit down with Kate Kostolansky in this episode of Child Life On Call. Kate, a dedicated mother and advocate, shares her touching journey of raising her daughter, Charlotte, who battles infantile spasms. In this heartfelt discussion, Kate sheds light on the challenges faced by families dealing with rare medical conditions, emphasizing the importance of parental instincts and advocating for timely medical attention. Discover Kate's inspiring efforts to create age-appropriate resources, including a poignant book and a comforting teddy bear, designed to support and educate children navigating epilepsy. This episode offers valuable insights into the world of pediatric epilepsy and the powerful impact of emotional support from peers. Kate's advocacy work and her family's emotional journey will surely resonate with anyone facing similar challenges. Tune in to gain a deeper understanding of navigating pediatric epilepsy and the remarkable strength found in advocacy and support. #InfantileSpasms #PediatricEpilepsy #ChildLife #Advocacy #RareMedicalConditions
In this episode, you will be able to:
Discover insights on parenting a child with infantile spasms.
Learn the importance of seeking timely medical attention.
Explore advocacy strategies for raising infantile spasms awareness.
Find age-appropriate resources for children with epilepsy.
The key moments in this episode are:
00:00:05 - Introduction to Childlife on Call podcast
00:01:24 - Kate's Family and Experience with Infantile Spasms
00:06:03 - Recognizing Infantile Spasms and Seeking Medical Help
00:11:37 - Advocacy for Infantile Spasms Awareness
00:15:54 - Challenges of Treatment and Advocacy
00:18:23 - Understanding the Impact of Epilepsy on Children
00:20:24 - Filling the Gap in Pediatric Epilepsy Resources
00:23:34 - Coping with EEG and Treatment
00:25:21 - Empowering Children through Understanding
00:29:30 - Resources for Children with Epilepsy
Ways to Connect with Kate
Char Bear Keeps Dancing Brave Bear
Use discount code CLOC10 to receive a discount!
Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.
Parents, download our free parent starter kit.
When you download our starter kit, you’ll learn how to:
Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedureThe first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.
Join me for an emotional and insightful conversation as I sit down with Kate Kostolansky in this episode of Child Life On Call. Kate, a dedicated mother and advocate, shares her touching journey of raising her daughter, Charlotte, who battles infantile spasms. In this heartfelt discussion, Kate sheds light on the challenges faced by families dealing with rare medical conditions, emphasizing the importance of parental instincts and advocating for timely medical attention. Discover Kate's inspiring efforts to create age-appropriate resources, including a poignant book and a comforting teddy bear, designed to support and educate children navigating epilepsy. This episode offers valuable insights into the world of pediatric epilepsy and the powerful impact of emotional support from peers. Kate's advocacy work and her family's emotional journey will surely resonate with anyone facing similar challenges. Tune in to gain a deeper understanding of navigating pediatric epilepsy and the remarkable strength found in advocacy and support. #InfantileSpasms #PediatricEpilepsy #ChildLife #Advocacy #RareMedicalConditions
In this episode, you will be able to:
Discover insights on parenting a child with infantile spasms.
Learn the importance of seeking timely medical attention.
Explore advocacy strategies for raising infantile spasms awareness.
Find age-appropriate resources for children with epilepsy.
The key moments in this episode are:
00:00:05 - Introduction to Childlife on Call podcast 00:01:24 - Kate's Family and Experience with Infantile Spasms 00:06:03 - Recognizing Infantile Spasms and Seeking Medical Help 00:11:37 - Advocacy for Infantile Spasms Awareness 00:15:54 - Challenges of Treatment and Advocacy 00:18:23 - Understanding the Impact of Epilepsy on Children 00:20:24 - Filling the Gap in Pediatric Epilepsy Resources 00:23:34 - Coping with EEG and Treatment 00:25:21 - Empowering Children through Understanding 00:29:30 - Resources for Children with Epilepsy
Ways to Connect with Kate
Char Bear Keeps Dancing Brave Bear
Use discount code CLOC10 to receive a discount!
Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.
Parents, download our free parent starter kit.
When you download our starter kit, you’ll learn how to:
Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedureThe first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.