Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist artwork

Episode 104 | Maureen’s Story: A Daughter with Bilateral Clubfoot

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

English - January 26, 2022 07:00 - 43 minutes - 99.2 MB - ★★★★★ - 78 ratings
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Previous Episode: Episode 103 | A Talk with an Expert: Kat Harrison on Living with Medical Challenges, Disability, Mental Health, and Chronic Illness
Next Episode: Episode 105 | How Child Life Specialists Help Kids and Families After Disasters

Today’s guest is Maureen, and she found out at her 20 week ultrasound that her daughter had clubfoot. She shares what families have to endure when confronted with a child with clubfoot. You’ll hear about B and B (boots and bar), serial casting, surgeries, doctors’ visits, and the amount of parent intervention that has to take place in the first four to five years of these kids’ lives. 

 

In this episode, we talk about…

[2:07] Maureen’s family and background

[4:53] Getting a clubfoot diagnosis in utero

[11:39] Processing her daughter’s clubfoot diagnosis

[13:28] Medical treatment for clubfoot

[17:14] Handling the stress of her daughter’s diagnosis

[23:32] The parental workload involved with clubfoot maintenance and treatment

[26:34] Maureen’s advice for other parents going through the boots and bar scenario

[30:05] Sleep challenges related to clubfoot

[31:52] Treatment since the boots and bar

[34:35] Maureen’s book: Clubfoot Chronicles

[40:27] What Maureen’s daughter has taught her through this experience

 

Connect with Maureen:

Website

Instagram

Podcast

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Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges.  We are so glad you are here.

 

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