Champions for HD Podcast
34 episodes - English - Latest episode: about 1 month ago -Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.
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Episodes
A Raw Conversation About Living Gene Positive - with Charlotte Conn
March 27, 2024 14:00 - 1 hour - 74.6 MB*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. Follow Champions/External links: linktr.ee/championsforhd Website Follow Shelby: https://www.shelbylentz.com/ linktr.ee/shelby_lentz In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through s...
Testing, Finding Support, and Mental Health with HD - With Jenna Woodard
February 15, 2024 03:00 - 1 hour - 47.1 MB*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and informatio...
The Champions for HD Podcast - Speech-Language Pathology with Paige Wikman
April 16, 2023 18:00 - 1 hour - 61.2 MB*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or email her at ([email protected]) Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F... Apple Podcast Link: https://podcasts.a...
Losing a Spouse With Huntingon's Disease with Amy Abbott
April 02, 2023 17:00 - 1 hour - 55.1 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes as Jody's HD unfortunately progressed. She is sharing the good, the bad, and the ugly of caregi...
"You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Bailey
August 23, 2022 13:00 - 1 hour - 48.2 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show. I hope you enjoy our conversation! Follow Champ...
"You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Bailey
August 23, 2022 13:00 - 1 hour - 48.2 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show. I hope you enjoy our conversation! Follow Champ...
Living Gene Positive in a Relationship - with Sarah and Brandon
May 13, 2022 14:00 - 1 hour - 59.3 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the importance of a strong foundation and partner in a relationship with HD. I hope you enjoy our conversation! Follow Champions: https://www.champion...
Catching up With Londen & Autumn Tabor - Autumn's Sweet 16 and more!
April 03, 2022 20:00 - 2 hours - 101 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntin...
Living Life Gene Positive with Samantha Peterson
March 28, 2022 01:00 - 1 hour - 72.5 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for herself, but her children. Listen to the episode to hear more about how Samantha is a Champion for HD! Order Brave Breanna: https://www.amazon.com/...
A Year Review of 2021: Over $30,000 Raised! 20 Families Served. Thank you!
January 05, 2022 00:00 - 42 minutes - 29.2 MBOrder Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Brave Breanna Dutch: https://www.huntington.nl/webwinkel/voor-kinderen.html Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Tell Us Your Story: https://www.championsforhd.org/tell-us-your-story Social Media Ambassador App: https://www.cham...
The Stages of Huntington's Disease Progression - Growing up with HD Trauma as a Child - With Jessica Geraghty
November 02, 2021 23:00 - 1 hour - 76 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life living gene positive. Listen to Jessica's full episode to hear more about how she is a Champion for HD! Order Brave Breanna: https://www.amazon...
An Open Conversation about HD Mental Health and Suicide - How to Overcome the Darkness with Domonique Link
September 17, 2021 14:00 - 1 hour - 42.8 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her life with a positive diagnosis and the importance of mental health in the HD community. Order Brave Breanna: https://www.amazon.com/Brave-Breann...
I wrote a children's book! Brave Breanna: How One Girl Smiled Her Way Through Juvenile Huntington's Disease
September 08, 2021 02:00 - 22 minutes - 15.5 MBOrder Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate) Support the show
The Importance of a Support System & Being Kinder to Ourselves with HD - Kya Rowlins
August 02, 2021 15:00 - 1 hour - 66.1 MBFollow Kya: https://www.instagram.com/kya90/ Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate)
The Importance of a Support System & Being Kinder to Ourselves with HD - Kya Rawlins
August 02, 2021 15:00 - 1 hour - 66.1 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Kya Rowlins. She shares her journey with HD in her childhood through her mother's battle with the disease, and her life being at-risk. Listen to Kya's episode to learn more about how she is a Champion for HD! Follow Kya: https://www.instagram.com/kya90/ Follow Champions: https://www.cha...
There is Still Life Left to Live with Juvenile Huntington's Disease - Londen and Autumn Tabor
July 22, 2021 23:00 - 2 hours - 89.8 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntin...
A Conversation with @ImNotDrunkLifeStyleBlog
July 07, 2021 18:00 - 1 hour - 60.8 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke for the second time. She was our first podcast guest, a Champions for HD Ambassador, and our current 2020 Champion for HD. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, wh...
Are there any benefits to testing for Huntington's Disease?
May 12, 2021 16:00 - 32 minutes - 22.2 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today we are deep diving into potential benefits of getting tested for Huntington's Disease. This question was left as a comment on our social media post today and it gave me the idea to come on here and talk about what benefits I have found about testing myself. This is personal, please do make sure to seek hel...
Having Hope and Faith with Huntington's Disease with Evonne Corrales
April 26, 2021 17:00 - 1 hour - 54.5 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Evonne. She is 32 years old and living with Huntington’s. She works as the Director of Youth and Childhood Ministries at a Catholic school in Indiana. She is also a Champions for HD 2021 Social Media Ambassador. A year ago, when she moved to Albany, she began to nice the first symptoms of HD...
Being a Caregiver for Juvenile Huntington's Disease with Marie
April 13, 2021 17:00 - 1 hour - 48.3 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Welcome back to the show. I first want to apologize for the delay in episodes. I ended up coming down with COVID a few weeks ago and I had it pretty badly. Thankfully I am feeling much better now, just fighting off severe fatigue, but I hear that can last a while. Today’s guest really hit me in my emotions. Mar...
Megan's in vitro fertilization ...SUCCESS!!! She's having a ?!
March 17, 2021 16:00 - 33 minutes - 22.9 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Megan returns to share her PREGNANCY from IVF! This means her baby will be HD FREE! What a blessing!! Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.she...
Reflecting on Her Father's Journey with HD - Loren Holifield
March 10, 2021 15:00 - 52 minutes - 36.4 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Loren joins me to share her father's journey of life before HD, after his initial diagnosis, and current life with him being in a nursing home. Despite the hardship, she continues to hold on to her favorite memories of him while also creating new ones. Her story will definitely make your heart warm. Follow Lore...
Continuing to Fight Back Despite the Onset of Symptoms - Heather Hankard
March 03, 2021 02:00 - 43 minutes - 30 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Heather is one of our Champions for HD donation recipients. She joins us to share her story with her diagnosis of Huntington's Disease, and how she continues to keep fighting despite having symptoms. She shares the highs and the lows as well as how her donation from Champions for HD has helped her during her bat...
Normalizing Grief...My Sister Would've Been 15
February 23, 2021 19:00 - 48 minutes - 33.4 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. My sister would've been 15 years old this month. Last Wednesday, February 17th was her birthday and the first one our family has spent without her. It's been nearly a year since she passed of Juvenile Huntington's Disease and the grieving has been an emotional rollercoaster that still continues. In this episode ...
Forgiveness, Grief & the Afterlife with Delaney Lentz
February 05, 2021 16:00 - 1 hour - 55 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. I am joined by my sister, Delaney, to talk about Huntington's Disease in our family from her perspective. She is a sophomore in college and living at-risk for the disease. We talk about overcoming trauma with forgiveness, and grieving the loss of someone from HD, as we lost our 14-year old sister to it last year...
HD Family Planning - An Open Conversation About Invitro Fertilization with Megan
January 20, 2021 19:00 - 52 minutes - 36.3 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Megan joins me to share her experience with IVF. She was one of the first to receive a grant from the nonprofit, Help Cure HD. Help Cure HD specifically focuses on HD family planning and granting funds for couples who want to do IVF but can't afford to finance It. Check out them at: https://helpcurehd.org/ Fo...
Be a Warrior Not a Worrier - Be Brave With Barb
January 08, 2021 16:00 - 1 hour - 51.5 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Our first episode of 2021! Brittany Johnson joins us to talk about her family overcoming her mother's diagnosis of Huntington's Disease in 2018 and how they are living their lives to the fullest despite having HD In the family. Please share this episode and leave us a review. Follow Britney and her blog: @be...
Healing from HD Family Trauma & the Impact of a Negative Diagnosis - Ashley Yerby
December 16, 2020 19:00 - 1 hour - 48.2 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Ashley joins me to be completely raw in her experience with Huntington's Disease. After a toxic relationship with her mother, who has the disease, receiving a negative diagnosis, and battling mental health, Ashley has overcome them all while being open with the community about her struggles. Follow Champions:...
Telling Your Story Matters - Heather & Nathan Thurgood
October 21, 2020 13:00 - 1 hour - 54.5 MBToday I talk with Heather and Nathan Thurgood and discuss their advocacy In the Huntington's Disease community. Nathan Is living with HD and Heather Is his biggest supporter, cheerleader, and advocate. Together they have been able to raise awareness and Impact so many lives through participating In clinical trials, speaking at events, and sharing their journey with HD anywhere and everywhere they can. They truly are champions for Huntington's Disease and are changing the world one day at a t...
Telling Your Story Matters with Heather & Nathan Wilmoth
October 21, 2020 13:00 - 1 hour - 54.5 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I talk with Heather and Nathan Thurgood and discuss their advocacy In the Huntington's Disease community. Nathan Is living with HD and Heather Is his biggest supporter, cheerleader, and advocate. Together they have been able to raise awareness and Impact so many lives through participating In clinical tria...
The Power of Your Mind - Overcoming Fear with Matt Szendrei
October 14, 2020 18:00 - 45 minutes - 31.6 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Matt joins me for an in-depth conversation about life with Huntington's Disease and overcoming the lingering fear that comes with It. After being diagnosed recently himself, he sees life In an entirely new perspective now that has made him grateful for every day. Follow Matt: https://www.instagram.com/the.real....
Championing Your Life Through a Positive Diagnosis with Jessica Robbins
May 25, 2020 03:00 - 39 minutes - 27 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today, Jessica Robbins and I discuss both of our journeys of testing for Huntington's Disease. We each received a positive diagnosis that changed our lives forever. Jessica shares her trials and triumphs with HD leading up to her testing process, and how she is conquering life post-positive diagnosis. She is a t...
An Open Conversation About Mental Health & Turning Adversity into Advocacy with @ImNotDrunkLifeStyleBlog
May 16, 2020 00:00 - 57 minutes - 39.3 MB**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke. We discuss mental health with HD as a caregiver, setting boundaries, and talking the opportunity to educate against hurtful HD stereotypes and stigma. Ashley was inspired to begin her blog #ImNotDrunkLifes...
Welcome to the Champions for HD Podcast
May 15, 2020 02:00 - 5 minutes - 3.72 MBWelcome to our official Champions for HD Podcast. We are a nonprofit organization fighting to aid families and cure Huntington's Disease one family and one voice at a time. My name Is Shelby Lentz and I began Champions for HD In 2018 to help other families, like mine, who have battled this disease head on. When I was diagnosed In 2017, I made It my mission to not be a victim, but to use my own journey as a tool to raise awareness and funds to cure this horrible disease. I love Rocky Balboa...