Celiac Straight Talk
121 episodes - English - Latest episode: about 1 month ago - ★★★★ - 26 ratingsLet's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.
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Episodes
82: Minisode with Alice Bast and Casey Walters
March 18, 2024 17:57 - 15 minutes - 10.6 MBIn this minisode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast speaks with Casey Walters about the challenges of having a young child with celiac disease. Alice’s personal journey as a celiac disease survivor and champion for research in this field, coupled with her prior experience of more than two decades in healthcare business development and marketing, taught her that patients need to be educated and empowered with solid information in order to make decisions about their desired...
81: A 90s Retrospective with Amy Ratner
March 14, 2024 08:00 - 42 minutes - 24.2 MBAmy Ratner joined Beyond Celiac in 2016 as the medical and science news analyst to provide coverage of celiac disease research news. She has extensive experience reporting on and writing about celiac disease. She was editor-in-chief, associate editor and contributing editor for 23 years at Gluten-Free Living magazine, where her work touched on all topics related to celiac disease, including lifestyle, diet, nutrition, and medical and research developments. When Amy’s daughter was diagnosed...
80: Town Hall with Dr. Debra Silberg and Dr. Jordan Dubow
February 20, 2024 09:00 - 59 minutes - 42.6 MBIn winter of 2023, Beyond Celiac welcomed Debra Silberg, MD, PhD, FACG as our new Chief Scientific Officer and Jordan Dubow, MD, as our new Chief Medical Officer. In this Town Hall, Dr. Silberg and Dr. Dubow unpack their backgrounds and what’s in store for Beyond Celiac research in 2024, as well as a Q&A segment about celiac disease. Discussions include topics such as the neurological impact of celiac disease, explanations of grant funding, and clinical trials for treatments. This event ...
79: New Insights into How Gluten Causes Damage with Dr. Arnold Han
January 18, 2024 07:00 - 59 minutes - 38.8 MBArnold Han, MD PhD, of Columbia University, was awarded the 2022 Beyond Celiac and SSCD Early Career Investigator Grant to investigate the role of CD8 T-cells in celiac disease. Thus far, Dr. Han’s innovative research has found more precise ways that gluten sets off damage to the intestine in those who have celiac disease, which he believes could help in the development of innovative approaches to finding a treatment. In our discussion, Han reveals what he’s discovered so far through this re...
78: Interview with Jackson Dunckel
December 11, 2023 12:00 - 26 minutes - 19.6 MBIn this episode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast interviews Jackson Dunckel, CFO of AMG, an eco-friendly manufacturing company. Jackson shares his celiac story in a candid conversation, from his delayed diagnosis in 2002 to managing his health today. In particular, Jackson shares his perspective as a long-time diagnosed man managing this serious genetic autoimmune disease.
77: When We're Not Podcasting...
December 05, 2023 12:00 - 20 minutes - 9.23 MBIn this episode, Beyond Celiac staff recount our recent accomplishments and projects—when we aren't podcasting, you can rest assured that we are working hard to improve the lives of celiac disease patients everywhere! This episode is a recording from our in-person Community Summit event, which happened September 30, 2023 in Greenwich, Connecticut. Listen to Celiac Straight Talk wherever you find podcasts.
76: Interview with 3rd Hour of Today Co-host Dylan Dreyer
November 28, 2023 14:27 - 16 minutes - 13.5 MBIn this heartfelt episode of Celiac Straight Talk, join Beyond Celiac CEO Alice Bast as she sits down with special guest Dylan Dreyer, beloved co-host of the 3rd hour of TODAY. The conversation delves into a candid exploration of Dylan's journey when her six-year-old son, Calvin, was diagnosed with celiac disease. From the initial shock of the diagnosis to the practical steps and emotional nuances of transitioning Cal to a strict gluten-free diet, this episode offers a genuine and relatable ...
75: The Empowered Patient with guest TV Personality Jenna Wolfe
November 10, 2023 17:18 - 22 minutes - 16.7 MBThis episode of Celiac Straight Talk is a dive deep into inspiring stories and advocacy for health and wellness. In this thought-provoking episode, Beyond Celiac CEO Alice Bast sits down with renowned TV personality Jenna Wolfe for a candid discussion on patient empowerment. Don't forget to like, share, and subscribe to stay updated on all things celiac disease! Get all the episodes of Celiac Straight Talk wherever you get your podcasts.
74: Living Your Best Gluten-Free Life
October 30, 2023 10:30 - 59 minutes - 39.1 MBThis is a recording of the "Living Your Best Gluten-Free Life" panel from our 2023 Community Summity. It features four gluten-free influencers, Phil, Liz, Erin and Emily, discussing how they've tackled their health conditions and thrived on the gluten-free diet. Phil is the creator behind @PhilHatesGluten, a popular TikTok and Instagram account. He uses humor to allieviate the burden of managing eosinophilic esophagitis. Liz Purvis is a celiac disease advocate and content creator (@yee...
73: Patient Empowerment with Juanita Belton
September 05, 2023 18:00 - 46 minutes - 63.8 MBIn this episode, we sit down with Juanita Belton, PA-C, MPH, physician assistant in gastroenterology and Director of Patient Empowerment at Color of Crohn’s & Chronic Illness (COCCI). COCCI was created to improve the quality of life for BIPOC who are affected by IBD, digestive disorders, and associated chronic illnesses through community, research, education, and advocacy. Juanita gives tips for talking with your doctor about your unique health needs. Learn more about Celiac Straight ...
72: Being an Athlete With Celiac Disease
August 24, 2023 19:51 - 28 minutes - 38.7 MBAmbassadors Hayden and Alyssa join podcast coordinator Leah Popovic as they discuss what it's like to experience an athletic life style with celiac disease. To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/
71: On Opera with Traveling Tenor Arturo Chacón Cruz
August 07, 2023 20:22 - 24 minutes - 15.8 MBWe sat down with Arturo Chacón Cruz to learn just how he manages to stay gluten-free while traveling all over the world to sing opera, as well as his advice for convincing others that, while the gluten-free diet can be annoying, your health is worth it. To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/
70: Dr. Hilary Jericho, Stanford University Develop Pediatric Celiac Program
July 25, 2023 13:00 - 22 minutes - 30.5 MBDr. Hilary Jericho became a part of the Stanford University team at the beginning of this year, working for the newly developed celiac disease program at the Lucile Packard Children’s Hospital. Learn about how Dr. Jericho's research in the psychosocial effects of celiac disease has made an impact on the Bay area. To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/
69: Lehigh Valley Gluten Free Creates Community, Camaraderie
June 28, 2023 19:04 - 44 minutes - 60.9 MBLooking for gluten free restaurants in Lehigh Valley, Pennsylvania? Look no further! Meet Jeff Vilson, the creator of Gluten Free Lehigh Valley—a platform where the gluten-free community can connect with peers, doctors and more. This project is pioneering an effort to make celiac disease and gluten intolerance better understood not only in Lehigh Valley, but in communities across the country.
68: DIY TikToker Emily Shaw Conquers Celiac Disease
June 06, 2023 13:00 - 28 minutes - 39.6 MBBy sharing her DIY interior design creations on TikTok, Emily Shaw became a social media sensation practically overnight. Shaw, who renovates spaces and repurposes budget household items, has nearly six million followers on TikTok alone, and has dedicated her career to this niche craft. Something her fans may not know is that she happens to have celiac disease, an autoimmune disease. As a true innovator, she’s learned to nimbly navigate her newfound fame while managing celiac disease....
67: Fatigue and Autoimmunity Mark Davis, PhD
April 04, 2023 13:00 - 55 minutes - 76.7 MBIn March, Beyond Celiac teamed up with Dr. Mark Davis, the Director of the Stanford Institute for Immunity, for a town hall session on t-cell dynamics in autoimmunity. Join us in learning about the importance of human studies and how the development mitochondrial physiology can help those suffering from non-GI symptoms of celiac disease.
66: Safely & Deliciously Dine Out With Senza Gluten
March 14, 2023 13:00 - 28 minutes - 38.8 MBLooking for an authentic gluten-free Italian meal? Teona Khaindrava will happily provide at Senza Gluten, located in the heart of Greenwich Village, New York City. Khaindrava, who opened the business in 2014, trains her hard working staff to prepare gluten-free pasta, cocktails, desserts and more while adhering to traditional Italian recipes and techniques. Learn how Senza Gluten has heightened the dining experience for people with celiac disease, as well as their mission to spread awareness.
65: MyMeal CEO Kayla King Kickstarts New App
February 21, 2023 14:00 - 23 minutes - 31.8 MBKayla King has been living with celiac disease for over 17 years, “centering her life” around food and maintaining a safe, healthy diet. After receiving a business degree and becoming a nutrition coach, King recently launched MyMeal, an app helping people with restricted diets find restaurants which cater to their needs. Learn about how King is using online advocacy to change the way people with celiac disease, chronic illnesses and allergies can safely go out to eat.
64: The State of Celiac Disease
February 07, 2023 14:00 - 11 minutes - 15.7 MBOur webinar from January 19, 2023 discusses some of the biggest celiac disease news and research from the past year. Learn about what is to come with these discoveries and how patients come upon a proper diagnosis, as well as celebrating the organization's 20 years of searching for life-changing services.
63: “The Show Must Go On” with Sam Doumit
January 24, 2023 14:00 - 39 minutes - 54.2 MBJoin Podcast Coordinator Leah Popovic as she speaks to well renowned actress and producer Sam Doumit about her experience living with a wheat allergy. Doumit, who starred alongside Rob Schnieder in the film “The Hot Chick,” provides insight to working in Hollywood with dietary restrictions, as well as how her attitude and self-advocacy has played a role in her health today.
62: Is a Genetic Test or Biopsy Necessary?
December 19, 2022 11:00 - 1 hour - 40.3 MBIn this episode, we chat with two renowned gastroenterologists, Dr, Benjamin Lebwohl and Dr. Ritu Verma, about the role genetic tests and biopsies play in diagnosing celiac disease. What can these tests tell us about a patient's health? Are they necessary to diagnose celiac disease? The conversation is followed by a community Q&A. Dr. Lebwohl and Dr. Verma are members of The Society for the Study of Celiac Disease (SSCD). The SSCD is a professional organization of physicians, nurses, ...
61: Sister, Sister
December 05, 2022 10:30 - 32 minutes - 20.3 MBIn this episode, we chatted with Colleen and Libby, two sisters who were diagnosed with celiac disease at the same time, shortly after their older brother was diagnosed. Their story emphasizes the importance of getting relatives tested, regardless of symptoms, and sheds light on what it's like to grow up with celiac disease today. This episode is sponsored by imaware. Use our code to get a discount on at-home testing kits!
60: Related Conditions Patient Q&A with Celiac Expert Dr. Guandalini
November 21, 2022 10:00 - 1 hour - 40.9 MBWorld-renowned celiac disease expert Dr. Stefano Guandalini, MD, sat down with us to answer your questions about celiac disease and the gluten-free diet. In this episode, the audience-submitted questions focused on conditions that are commonly seen alongside celiac disease. Dr. Guandalini is also the medical advisor for the sponsor of this Town Hall, imaware™.
59: Therapies Beyond the Gluten-Free Diet with Dr. Therrien
November 07, 2022 21:59 - 47 minutes - 33.1 MBWe facilitated a community Q&A with Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center, about potential non-dietary treatments for celiac disease. She answers your questions about how some of these potential treatments work, the role of the gluten challenge in clinical trials, and whether treatments may work for other autoimmune conditions, too. This event was sponsored by the Solutions for Celiac study on latiglutenase.
58: Age is Just a Number for Noah Lustbader
October 13, 2022 01:14 - 23 minutes - 32.2 MBBeyond Celiac ambassador Noah Lustbader is one of the youngest scientists working hands-on towards a cure for celiac disease. As a junior in college at Vanderbilt University, Noah is already pioneering a multi-centered project with Vanderbilt’s Clinic Director Dr. Dawn Adams, including centers such as Mayo Clinic and Harvard. In this episode, he talks about his experience as an undergraduate research assistant alongside Dr. Arnold Han at Columbia University's Irving Medical Center, studying ...
57: Himanshi’s Hardships With Celiac Disease in India
September 27, 2022 13:00 - 30 minutes - 41.8 MBHealthcare systems across the globe often fall short when caring for celiac disease patients. Himanshi Pareek shares how misinformation from her doctors in India worsened her condition, leading to her own scientific discoveries which countered the medical advice she received.
56: Do You Believe in (Roby’s) Magic?
September 12, 2022 13:00 - 15 minutes - 21.7 MBRoby Sobieski is an actor, model and magician whose appearance on “The Bachelorette” has lended him lots of social media popularity. His aunt, Alice Bast, founder and CEO of Beyond Celiac, connects him to our organization, where Roby has advocated for greater celiac disease awareness, and even volunteered at our 2020 virtual event entitled “An Evening Beyond Celiac.” In this episode, Podcast Coordinator Leah Popovic learns more about Roby’s connections to celiac disease, as well as his exper...
55: Celiac Disease in the Spotlight with Sarah Joy Brown
August 29, 2022 14:19 - 45 minutes - 63 MBYou might recognize Sarah Joy Brown from her various on-screen acting appearances, such as General Hospital and Big Momma’s House. Get to know more about her life behind the scenes as an actress with celiac disease, as she speaks with Podcast Coordinator Leah Popovic on the importance of visibility and advocacy, especially in the acting industry.
54: The Sky's The Limit
August 15, 2022 13:00 - 52 minutes - 72 MBHear our Reach Beyond Celiac ambassadors share advice on how to safely enjoy gluten-free foods in foreign countries.
53: Get to Know "A Gluten Free Family"
August 08, 2022 13:00 - 33 minutes - 45.9 MBPodcast creator, writer, social media figure, father with celiac disease – all of the above. Ben Hampton has made a name for himself in the celiac disease community, bringing awareness via “A Gluten Free Podcast” and his Instagram page, where he coined the name “A Gluten Free Family.” Listen as Ben talks about living gluten-free in Australia as a father of two with a newfound passion of celiac disease advocacy, especially for male identifying celiac disease patients.
52: Symptom Similarities
August 01, 2022 13:00 - 38 minutes - 52.8 MBIn this episode, our ambassadors with Reach Beyond Celiac discuss how their symptoms have progressed or changed before, during and after their celiac disease diagnosis.
51: All About the Interns
July 26, 2022 16:03 - 36 minutes - 49.4 MBDespite their vastly different diagnosis journeys, interns Leah Popovic and Charlotte Cebula share common threads as college-aged members of the celiac disease community. In this episode, get to know two of our summer interns as they connect their work with Beyond Celiac to their own personal experiences with celiac disease.
50: Tips From Our Ambassadors
July 18, 2022 14:24 - 41 minutes - 56.8 MBGet to know how our Reach Beyond Celiac ambassadors have discovered helpful tips to live a gluten-free life.
49: "The Celiac in Italy"
July 11, 2022 13:41 - 28 minutes - 39 MBCatalin Varela never allowed her celiac disease health crisis to hinder her ambitions. In this episode, Leah Popovic of Beyond Celiac speaks to Varela about her intense diagnosis journey which ignited a passion for nutrition, exploration and education. Now pioneering her own business based out of Florence, “The Celiac in Italy'' has lots to share with the community and beyond. Visit https://www.catalinvarela.com/ to view Catalin’s business.
48: A Discussion with DramaKueen
July 05, 2022 15:04 - 36 minutes - 50.3 MBShanese Shields, also known as “DramaKueen,” across the internet, is well-known for her time on A&E’s “60 Days In,” as a voluntary inmate of an Alabama correctional facility. Leah Popovic of Beyond Celiac moderates this episode, where we learn more about her experiences as a woman with celiac disease and how her time on television has drawn attention to the unjust treatment of incarcerated individuals with autoimmune diseases and dietary restrictions. Visit youtube.com/c/DramaKueenVlog to wa...
47: How Patients Can Change the Future of Celiac Disease
June 27, 2022 17:06 - 50 minutes - 69.4 MBKate Avery and Claire Baker of Beyond Celiac are joined by Doug Jacobstein, M.D. and Dan Leffler, M.D. for this town hall discussion, focusing on how patients are a pivotal aspect of developments in the celiac research community. Both panelists speak about their experiences with clinical trials and how new research can emerge with the help of patient participation.
46: Hidden in Plain Sight: “You Want Me To Do What?”
June 20, 2022 14:56 - 54 minutes - 74.4 MBIn 2021, Beyond Celiac held a virtual mini conference entitled “Hidden in Plain Sight” to explore the numerous experiences faced by celiac patients, especially those who struggle with misdiagnosis or a missed diagnosis. This episode (a recording from the mini-conference) centers on the invasive testing procedures endured by celiac patients, as well as the importance of accurate testing and scientific development. Along with Amy Ratner of Beyond Celiac, Hilary Jericho, MD and Isabel Hujoel...
45: Hidden in Plain Sight: “It’s All in Your Head”
June 15, 2022 16:59 - 45 minutes - 62 MBIn 2021, Beyond Celiac held a virtual mini conference entitled “Hidden in Plain Sight,” which explored the numerous experiences faced by celiac patients as they struggled to get diagnosed. This episode emphasizes the many neurological symptoms that often go overlooked as indicators of celiac disease. Panelists Gabrielle Zimmerman, Iain Croall (Ph.D.) and Nigel Hoggard (M.D.) expand upon their experiences and research in this focus area.
44: Patient Q&A with Celiac Expert Dr. Guandalini
March 23, 2022 15:12 - 57 minutes - 38.6 MBWorld-renowned pediatrician and celiac disease expert Dr. Stefano Guandalini sat down with us to answer your questions about celiac disease and the gluten-free diet. Even the most informed patients can learn something new from this episode!
43: Men's Roundtable
March 09, 2022 17:43 - 45 minutes - 28.8 MBIn this episode, our male ambassadors discuss some of the unique challenges men face in getting diagnosed and living with celiac disease, as well as the stigma friends and family may have about the gluten-free diet. Note: any use of the term "cross-contamination" should actually be "cross-contact."
42: Disparities in Celiac Disease
February 15, 2022 18:07 - 51 minutes - 39.2 MB“That advisory board concluded that race, ethnicity, age and gender can all cause delays in diagnosis, or, worse than that, a failure to diagnose at all.” Amy Ratner of Beyond Celiac, Pooja Mehta, MD, of Children’s Hospital Colorado and patient representative Jocelyn Langevine discuss disparities in diagnosing celiac disease; how they happen, why they happen, and what we can do to get more people diagnosed.
41: Scientific Breakthroughs and Research Updates; 2021 in Summary
January 27, 2022 21:43 - 53 minutes - 35.2 MBAmy Ratner and Kate Avery, MPH, of the Beyond Celiac Science Team discuss the most exciting celiac disease research published in the past year and how clinical trials for celiac disease treatments are progressing. Note: The term "cross-contamination" used at timestamps 38:34 and 38:45 should be "cross-contact."
40: Navigating Friendships with Celiac Disease
January 04, 2022 17:11 - 41 minutes - 28.2 MBWhen it comes to getting a new diagnosis, friends can be your greatest ally or a crushing loss if they don’t understand your new needs. Our Reach Beyond Celiac Ambassadors discuss the ins and outs of how celiac disease can affect a friendship, old or new. Note: at timestamps 17:14 and 18:33, the term “cross-contamination” should be “cross-contact.”
39: Jennifer Sealey-Voyksner, Co-Founder of ImmunogenX
December 15, 2021 17:42 - 25 minutes - 20.2 MBIn this episode we sit down with Jennifer Sealey-Voyksner, co-founder and chief scientific officer at ImmunogenX, a biotech company developing latiglutenase, a potential treatment for celiac disease. Jennifer, who has celiac disease herself, discusses her journey to diagnosis, why a treatment beyond the diet is important, and how latiglutenase works. Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat sy...
38: Parenting and Celiac Disease
December 08, 2021 20:54 - 38 minutes - 25.8 MBEven without an autoimmune disease, parenting can be tough. But if you’re a parent of a child with a food restriction like the gluten-free diet, this episode is for you. It features our Reach Beyond Celiac Ambassadors explaining their approach to raising children with celiac disease, including planning family vacations, becoming an advocate for their kid’s health, and how to get your little one the care and food they need, whether it’s at home, at school, or at a friend’s house.
37: Biggest Changes in the Celiac Disease World, ft. Erica Dermer of Celiac and the Beast
December 01, 2021 15:18 - 1 hour - 46.8 MBListen in to this thoughtful conversation between Amy Ratner of Beyond Celiac and Erica Dermer of Celiac and the Beast on some of the biggest changes in the celiac disease world since the 1990s, when Amy’s daughter was diagnosed. The pair also speculate about what the next decade or two might hold for our community. Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac ...
36: Child Care with CHOP Celiac Center
November 16, 2021 20:32 - 58 minutes - 45.6 MBIn this episode we sit down with Lisa Fahey, MD and Betsy Turner, PhD from the Children's Hospital of Philadelphia (CHOP) to discuss pediatric care of celiac disease. The conversation covers topics like introducing gluten to babies at risk, helping children cope with their diagnosis, transitioning to adult care and so much more! Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by ...
35: Family Matters, part 2
November 03, 2021 16:29 - 27 minutes - 18.9 MBIn this episode our Reach Beyond Celiac Ambassadors continue their conversation on how a celiac disease diagnosis can affect family relationships and give tips for eating together when some family members just don’t seem to understand your diagnosis. Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-...
34: Family Matters
September 30, 2021 13:25 - 29 minutes - 19.8 MBOur Reach Beyond Celiac Ambassadors discuss how a celiac disease diagnosis can affect family relationships and how to navigate eating safely when some family members just don’t seem to understand your diagnosis.
Episode 34: Family Matters
September 30, 2021 13:25 - 29 minutes - 19.8 MBOur Reach Beyond Celiac Ambassadors discuss how a celiac disease diagnosis can affect family relationships and how to navigate eating safely when some family members just don’t seem to understand your diagnosis.