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Special Guest Christie Zink Talks about her EB Awareness & Research Efforts
Butterfly Talk
English - October 27, 2015 20:00 - 28 minutes - 24.8 MB - ★★★★★ - 1 ratingHealth & Fitness epidermolysis bullosa Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Special Guest Jennifer (Lyric) Bolles talks about Life with EB
In honor of EB Awareness week today we'll be joined by Christie Zink, founder of "I Refuse EB" and her efforts to raise Awareness and funds to find a cure for Epidermolysis Bullosa.
irefuseEB.org was launched in 2012 to help raise awareness for EB, promote advocacy and support the research efforts taking place at the University of Minnesota by Dr. Jakub Tolar.