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Raising Epidermolysis Bullosa Awareness with my book Butterfly Child
Butterfly Talk
English - July 23, 2015 20:30 - 26 minutes - 23.2 MB - ★★★★★ - 1 ratingHealth & Fitness epidermolysis bullosa Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Special Guest Derra Nicole Sabo, talks about having EB and her books
The Host of the Podcast Silvia Corradin talks about her book "Butterfly Child: A Mother's Journey", her other books, websites etc.
Just before her 30th Birthday, Silvia found out she was pregnant with her first baby, which was stillborn at full term on March 1, 1995. After a miscarriage she had Nicky, diagnosed shortly after birth with Recessive Dystrophic Epidermolysis Bullosa. Nicky is 18 now and the struggles and pain he's been through are immense. Does she dare hope for a future for him? Yes. But it's not easy.
http://www.butterflychildamothersjourney.com