Amy McGuire, J.D., Ph.D., is a professor of biomedical ethics and director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Her professional interests include ethical and policy issues raised by emerging technologies, research ethics, informed consent and confidentiality. 

 

For more information on Baylor College of Medicine’s clinical genetic testing program: https://www.bcm.edu/healthcare/care-centers/genetics

 

See below for some of the research studies mentioned in the episode:

How Primary Care Providers Talk to Patients about Genome Sequencing Results: Risk, Rationale, and Recommendation

Newborn Sequencing in Genomic Medicine and Public Health

Genetics. No longer de-identified